Stepping Out to Cure Scleroderma - Rochester

Team Gabby

Hey Ya'll,

For those of you who don't know me, I'm Gabby!

I am a twenty four years old and have been battling Scleroderma for about 17 years. Scleroderma is an auto-immune disease for which there is currently no cure. The best we can do is to treat the symptoms.

I was seven years old when we knew something was wrong. At that time, my fingers, toes, and lips began to turn purple when I got cold. The doctors diagnosed Raynaud’s Phenomenon. Raynaud’s causes poor circulation that leads to sores on my fingers and toes that don’t heal very easily. I have taken medication, endured treatments, and undergone surgeries to try to improve my circulation. Last year the flesh on the tip of one of my fingers became necrotic, so part of that finger had to be amputated as a result. The past 2 years I have had to have hand surgeries on both my left and right hands that involved replacing a damaged artery in each hand to help increase bloodflow, which has helped greatly! My hands have been doing remarkably well since then!

While others fighting this disease suffer from even worse symptoms, my biggest struggle is currently the scarring in my lungs. Over the years, it has become more and more difficult for me to breathe deeply due to the buildup of scar tissue. The array of imaging and testing done over the past many years documents this decline to my current lung function of just about 34 percent.

About three and a half years ago I received a stem cell transplant in Chicago in the hope that it will put my Scleroderma into remission. The doctors told me that it may help me to regenerate some lung tissue and, therefore, regain some lung function. I was in beginning stages of heart failure at the time and the transplant helped my heart back to normal! I'm doing significantly better than I was before the transplant and am still seeing improvements today! My last visit to Chicago in January showed improvements in lung function which was amazing news...stem cells sure can do amazing things!

Living with disease doesn't bring me down because it has taught me so much. I have a great life. I intend to live it fully and enjoy it every day with a big smile on my face! I have the greatest support system filled with so many loved ones who bend over backwards for me whenever I need them. I am so thankful for being surrounded by such an amazing family and group of friends. They are the reason I wouldn't trade any of this for anything. Thanks for reading about my journey and I hope to see you at the walk! :)

When: June 1, 2019
Where: Seneca Park (Longhouse Shelter), 2222 Saint Paul St.
Rochester, NY
Registration Time: 9:00 a.m.
Walk Time: 10:00 a.m.

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Thank you for visiting my personal fundraising page to support the "Stepping Out to Cure Scleroderma" event!

Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support me and help raise funds for scleroderma patients. To make a donation, click the "Donate Now" button that appears under my photo. Then, just follow the instructions.

If you would like to join me at the event, and walk and help raise funds, please click on “Join My Team” and follow the directions.

Please help today! I sincerely appreciate your support, and please share this with anyone who you think might want to help.

Help me bring more awareness to scleroderma so we can find a cure!

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