Stepping Out to Cure Scleroderma - Ridgefield Park

Scleroderma Squashers

I’m so excited you are visiting my team page for our Stepping Out to Cure Scleroderma walk in Ridgefield Park on June 8!


My name is Claudette Johnson. I’m twelve years old and I was diagnosed with scleroderma a couple of years ago.


There are so many people who have scleroderma, but no one seems to know about it. When I was first diagnosed, I didn’t have a clue what it was. But Dr. Li at Hackensack Hospital explained that it is an autoimmune disease that started by attacking my left arm. I love to play outside so I was scared that scleroderma would stop me from doing certain things. I soon learned that exercise and even playing piano helps my fingers, wrist, and arm stay strong and healthy. The treatments sometimes hurt but the doctors and nurses make it ok. They help in all different ways and are really nice.

In December the doctors and nurses found that my scleroderma had acted up and I needed to go on more IVs. I don't like IVs but I know that it will help me (and I would get a lot of candy).


There is no cure for scleroderma. Please help us raise money to find one! And if you’re free on June 8th, we’d love to have you join our team!


Thank you so much,
Claudette Johnson and her team of Scleroderma Squashers


PS My mom says “don’t forget corporate matches!” whatever that means.

 

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