Friends of Betsy aka My Scleroderma Sisters Team Page

Rocky Mountain Stepping Out to Cure Scleroderma Adventure

Scleroderma changed everything about my life and now each day is a precious gift.
Scleroderma changed everything about my life and now each day is a precious gift.

Friends of Betsy aka My Scleroderma Sisters

Today, as I set up the team I do it for all my Scleroderma Sisters. Those who are my angels that love me from above and those that walk with me by my side. I am so bless to have all of you with me on this journey and humbled by your strength and courage. You amaze me.

 

2021 Update:   In the last month I have lost 3 more friends to this miserable disease.  It is crazy that in 2021 we have no real cure for a disease that kills so many, turns us to stone and destroys so many lives.  My story could have ended so many times before I do not take each breath for granted.  



From my book:  Unstoppable A Recipe for Success in Life and Business by Betsy Craig

Imagine yourself sitting on an exam table, in one of those light cotton flimsy gowns, nothing glamorous about that "gown", butt stuck to the paper, waiting for the doctor to enter, knowing that its going to be no new or horrible news. Door opens and instead of the doctor in walks a nurse practitioner I had never seen before. She is shaking her head (I shake mine back and forth in a no motion) as she says hello and quickly looks back down at the folder she holds in her hand. I know its my folder. I am on pins and needles waiting to hear what she has to say. She moves to the counter in the corner of the tiny exam room of my rheumatologist’s office.
Looking up she says I am so sorry to say this, but you have Systemic Scleroderma, you have 12 to 18 months to live I really suggest you get your affairs in order. The air all at once gets sucked out of the room. She keeps talking but I can't hear her. All I can hear is my own voice screaming in my head.

Get out of here. This can't be happening. I am 40 years old. The year is 2005 and there is still so much I want to do. I have to get out of here. I need to get home to my new husband and preteen daughter. My daughter, I want to see her graduate from high school. I got to go.

So, as any good self-respecting woman knows how to do -I stuff my unmentionables in my purse and run out of that office. As fast as I possibly can. As I am driving home, I think I am going to die, 12 to 18 months, 12 to 18. Up to this point I lived my life mostly as a spoiled lady who thought the world owed me and the glass was always 1./2 empty. Every single thing changed for me that day and from that day to this the tools and skills to see life differently has literally kept me alive.

Given the choice to give up or get up, I chose to get up, re-frame how I see the world and change my path......That was 18 years ago and I am still rasining money, awareness and support to change the paths of those behind me with this horrific disease.

IF you are able will you donate to support my virtual walk this year? Click “Join My Team” and follow the directions. Please help today! I sincerely appreciate your support, and please share this with anyone who you think might want to help.

With deep gratitude and love,

Betsy

 

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