Rocky Mountain Stepping Out to Cure Scleroderma Adventure

Team Jill
Team Jill

Team Jill

Dear Family and Friends,
The virtual Scleroderma Walk is quickly approaching! It is a special year for the Rocky Mountain Chapter of the Scleroderma Foundation as they are celebrating their 20th Year Anniversary!! 


The Scleroderma Foundation is trying to raise money for patient education and to support research for a cure. In addition to raising money, the Scleroderma Foundation would like team leaders (like me!) to do something special to mark the 20th anniversary. I have decided to run a mile each day during the campaign to raise awareness and show support for this event. That means I will attempt to run 180 miles by June 29th. As you can imagine, I could barely walk prior to my life saving stem cell transplant and now I am planning to run. And I am doing this because I know of so many others afflicted by this disease cannot. This year marks my 7th anniversary since my stem cell transplant. I am doing better than ever, and my lungs have improved tremendously!!  


Not only is it a special anniversary year for the foundation, but through Covid, the Rocky Mountain Chapter has grown. They discovered that during virtual support groups, people were participating from as far away as Mexico. This year, the the Rocky Mountain Scleroderma Foundation will expand to Utah and create a new group to support more people in the region.


Additionally, scientists have finally created a drug that can help people with lung fibrosis. This drug could have helped me 12 years ago. There is still a long way to go in finding a cure, but we are making progress!!!


If you can, please join my virtual team, “Team Jill” and make a donation to support patient education and to help find a cure for Scleroderma.

Thank you ALL for everything you have done for me and your continued support through this journey! Without you, I would not be where I am today, and I am eternally grateful!!


All my love,
Jill

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