John and Ilene's Hope Raisers Team Page

2019 Stampede Scleroderma, Stepping Out

John and Ilene's Hope Raisers

Hi:

Keeping the passion alive

As you know that in 2018, I retired and to help keep myself busy I knew I had to give back and help. I have decided to join the Board of Directors of the Scleroderma – Michigan Chapter. I have taken an active role in helping the board by assisting in a Webinar series that we help our patients and caregivers deal with Scleroderma. I am still the race director for the Run / Walk at the zoo each year.

The reason for fund raising has not changed and that is to raise awareness and a cure for Scleroderma.

During the past year I have been approached by a few people to talk with friends or loved ones that have been recently diagnosed with Scleroderma. Like most people they run to the internet to try understand the disease they know nothing about and much and out of date information and fear over takes them.

We try to inform patients -” Scleroderma is a treatable disease even though there is no cure”

The Scleroderma Foundation Michigan Chapter has been serving its members and patients for 42 years. We are still growing within the State of Michigan. We continue our efforts of awareness in the medical community, patients and the public about Scleroderma. We now have 3 Patient Education seminars in Michigan. Our patients can also participate in a virtual support group and never have to leave home, which is hard for a lot of patients. Every year we are able to increase the money for research. With your help we can continue to serve the patients affected by Scleroderma.

Quick refresher course on What is Scleroderma?

Scleroderma is a chronic, often progressive autoimmune disease-like rheumatoid arthritis, lupus, and multiple sclerosis-in which the body’s immune systems attacks its own tissues. The disease, which literally means “hard skin” can cause thickening and tightening of skin, as well as serious damage to internal organs, including the lungs, heart, kidneys, esophagus, and gastrointestinal tract. For some individuals, Scleroderma is a nuisance. For others, it is a life-threatening disease. For most people with Scleroderma, the disease has serious impact on daily life. And, although medications can sometimes help, there is no cure yet.

Last year through your generosity our team raised over $9.000. The walk is being held again at the Detroit Zoo in Royal Oak, MI on Sunday June 2, 2019. This year will mark our 40th walk/run and the 17th year that our family has participated.

Please help me by donating, walking or running.

This is the only solicitation I do each year. You can make a donation at the following web address:
http://www.scleroderma.org/goto/michalski1

If you rather send a check it should be made out to the Scleroderma Foundation and sent to me by June 1, 2018

Address: John Michalski
48084 Tilch
Macomb MI. 48044

I want to thank you from the bottom of my heart for any help you can give. If you know of anyone else who would be interested in donating, running, walking or volunteering please forward this to them. If you have any questions please feel free to call or write me. Also if you know anybody who would like additional information on Scleroderma they can reach out to me and I will help them obtain the information they are seeking. ( Phone 586-719-0482)

Sincerely,

John Michalski and the Late Ilene Michalski

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