Stepping Out to Cure Scleroderma - Ridgefield Park

Team Krieger at the 2019 NJ Walk
Team Krieger at the 2019 NJ Walk

Krieger

FRIENDS, COLLEAGUES AND FAMILY:

As President of the Scleroderma Foundation, Tri-State Chapter, serving NJ, NY and CT, it is my honor to be in this role at a time when significant research discoveries are being made that we hope will lead to both better treatments and cures for this painful, chronic and sometimes deadly disease.

THIS YEAR OUR WALK IS VIRTUAL.  BUT OUR FUNDRAISING NEEDS ARE GREATER THAN EVER.  PLEASE READ MY STORY ... 

I can personally say, that the progress made in research and treatments has benefited me in dramatic ways.  While my symptoms started when I was 17, I wasn't diagnosed with Scleroderma until I was 39 yrs old. that was significantly due to the lack of familiarity with the disease by internists and general practitioners at the time and limited protocols for diagnosis especially if symptoms are not severe. Scleroderma manifests itself in many different ways as does the onset and progression.  About a year ago my health started to dramatically decline (pre-Covid).  I had difficulty walking the length of my street without getting out of breath.  Even taking 2 flights of stairs in my house was difficult.  I went through a battery of tests and was put on a drug and treatment regimen that has significantly improved my quality of life and most probably extended my life.  None of this would have been possible if it weren't for investment in research.   But research alone is not all that the money we raise supports.  It goes towards educating patients to be their own advocates and support their wellbeing.  It goes towards educating medical practitioners, the public and our legislatures to advocate for more research dollars.  

I want to thank all of you who have supported Team Krieger and my Walk efforts over the last decade.

I hope you can please find a way to do so again now.  Can you match last year's donation?  How about adding even another $10?

Please go to: 

http://www.scleroderma.org/goto/mkrieger

If you have any questions or want to just say hello, please do!


Also, the chapter has silent auction items available on www.scleroderma.org/sfts-silentauction.  They will be announcing the winners this Saturday, June 26th on Facebook Live - check out their Facebook page www.facebook.com/SclerodermaTS beforehand for and find something to buy.

 

Again, my thanks and please stay safe and healthy!

 

Marc Krieger - 201-805-4875 - marcskrieger@gmail.com

President, Scleroderma Foundation, Tri-State Chapter, Inc. 

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The Scleroderma Foundation is a national organization with chapters all over the US. Its mission is three fold: Support, Education and Research. All contributions go to the Scleroderma Foundation/Tri-State Chapter to help find a cure and support those whose lives have been affected by scleroderma.

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