Stepping Out to Cure Scleroderma - Rochester

Forever Friends



Its 2021, time to Step Up & Step Out for Scleroderma!!! The Rochester Scleroderma Support Group will be hosting its annual Stepping Out To Cure Scleroderma Virtual Walk on Saturday, June 26, 2021. 

While we will not be able to gather in person this year, we're still inviting our friends and family to join us. 

How can you support our Team? 

1. To participate, simply register as a virtual walker, and ask friends and family to join our team, "Forever Friends."

2. Donate funds. Any monetary amount is appreciated.

3. Support us through indivual activities. Run, Walk, Hike, Bike rides, Cook outs etc. 

4. Share your experience on social media.  Let's represent Rochester!!!

 For seventeen years, our sister, Rosa Johnson reached out to her family and friends requesting their support to help promote scleroderma awareness through community events, and fundraising. Your donations have helped to address our three-fold mission of education, support, and research.

Rosa’s family has volunteered to continue her legacy by taking up torch to lead the Rochester “Stepping Out to Cure Scleroderma” walk.

If you’re not able to participate in an activity, but would like to still support our team, the organization and their efforts, please make a "DONATION!”

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support our fundraising efforts.

You may send a check or money order directly to SF Tri State Inc. Chapter, 59 Front Street, Binghamton, NY 13905. Memo: Rochester Walk/Forever Friends

All contributions go to the Scleroderma Foundation/Tri-State Chapter to help find a cure and support those whose lives have been affected by scleroderma.

If you would like to find out more about scleroderma and the Foundation, please visit

Many thanks for your support -- and don't forget to forward this website to anyone who you think might want to make a donation to the cause.

May God continue to BLESS YOU for your spirit of GIVING!

Sending hugs and smiles!

The Family of Rosa Johnson
(Team Captains)
Marilyn Sibley & Linda Lehtonen Pratt
Rosa Johnson (Our guardian angel)

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