Welcome to my "Hope Raising" Page for TAP INTO A CURE!
AchievementsNo Badges Have Been Earned
Ms. Emma Lynn Straub
Fundraising Honor Roll
Mr. Brendan Dillon
Don & Jamie Giuseppi
A & H Fernandez
Kendall and Jameson
Aunt Judy & George
The Walsh Family
The Denby Family
Joe and Donna Ross
Rick and lori lavoie
Bill & Janet McMillen
Bill & Fil
Elissa & Elliott Aten
On Friday, February 7th, 2014, City Tap House will be hosting my Drexel senior project event, "Tap Into A Cure", which will serve as a fundraising and awareness event benefitting The Scleroderma Foundation. Through setting up and executing the event for my senior project, I hope to educate others about the disease and the symptoms that it can show. I believe that an increase in awareness would help with diagnosing the disease, decreasing misdiagnosis, as well as support an increase in funding for research. However, I know that making it out to the event, especially for those of you who live outside of Philadelphia, will not be possible for some of you. That's why I've set up this page to "Hope Raise" for the Scleroderma Foundation.
I am asking you to support both me, and finding a cure for this disease by donating to The Scleroderma Foundation, and will be extremely grateful for all who do.
As many of you know, the past year has been quite a challenge for me. In October of 2012, I discovered a bald spot on the back of my head and I had had a rash on my leg for some time before that. Shortly after the discovery, I became very ill and was running a high fever. I went to the doctor, and was diagnosed with a severe fungal infection. I was put on intense medication and had to get my liver checked every two weeks because the medicine put me at risk for liver failure. After two months of being on the medication, I was still sick, the rash on my leg persisted, and my hair had continued to fall out. I was taken off of the medication and then endured weeks of blood tests, amongst other types of tests to try and figure out what was making all of this happen. At that point, there were days when I could not get out of bed on my own, and had severe pain in almost every part of my body.
After months of trying to figure it out, and a lot of online research, I was finally sent to a rheumatologist. It was then that I was diagnosed with systemic scleroderma and pre-lupus, along with other scleroderma related conditions. I have had symptoms of scleroderma for years, and they were diagnosed as other illnesses, mostly with a variety of gastrointestinal conditions. There are 300,000 Americans that have scleroderma, and my story is not unlike that of many others that have the disease. Scleroderma is an autoimmune disease, which means that the body’s immune system attacks itself. Scleroderma involves the hardening and tightening of the skin and connective tissues. It has two forms; systemic, which affects the internal organs, internal systems, and the skin, and localized, which affects the skin.
The Scleroderma Foundation funds an average of $1 million in new grants each year to find the cause and cure for scleroderma. This is supported by fundraising events and donations, such as my senior project event. There is a lack of government funding for scleroderma research, and therefore The Foundation relies heavily on donations, fundraising, and support from the public.
Thank you so much for taking the time to read my story and, in advance, for attending the event and/or donating here. I am so grateful for the support that I continuously receive from all of you.
Some more information about donating:
- Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
- All contributions are for the Scleroderma Foundation to use to help find a cure for those whose lives have been affected by scleroderma.
- If you would like to find out more about scleroderma and the Foundation, please visit www.scleroderma.org.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
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