2020 Stepping Out to Cure Scleroderma Virtual Philly Metro Walk

Emma ONE in a Million

Team Name: Emma ONE in a Million

Thank you for visiting my Team Fundraising page to support the "Stepping Out to Cure Scleroderma" event!

Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support my team’s effort to raise funds for people living with scleroderma. To make a donation, click on one of the team members to make a gift towards their fundraising effort to help our team.

If you would like to join our team at the event, and walk and help raise funds, please click on “Join My Team” and follow the directions.

Please help today! Our team sincerely appreciates your support, and we ask you to please share this with anyone who you think might want to help.

Help our team bring more awareness to scleroderma so we can find a cure!

 

A little bit about us: We are walking for the fifth time to raise Scleroderma awareness. Our daughter, Emma, has juvenile Systemimc Scloerosis, a rare autoimmune disease. It is our mission to raise awareness for this disease in order to find a cure. It is a multi-system disease of unknown origin that has an incidence of 1 in 1 Million for children, affects females 4x more than males, affects caucasians more than other race in children, and has a mean age onset of 8.8 years. (Emma was 5 years old at diagnosis.) There is no cure for scleroderma and treatments are limited, but research is being done and we are hopeful for a cure.

Thank you for supporting Emma through her fight with systemic sclerosis. Even if you are unable to donate, you can help us by spreading the word about scleroderma.

Love,

Tom and Jen 

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