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Tri-State Support Groups

Each support group provides a setting which is conducive to sharing concerns, information and feelings, in a confidential environment, where members provide encouragement, coping strategies and mutual support.  Meetings have both a social and an educational component which may include a guest speaker or DVD presentation.

We encourage patients to attend with their caregivers and family members allowing all to come to a better understanding of a patient’s journey with scleroderma, how this journey affects their relationships with others and to voice their own concerns when needed.

For meeting dates and times, please contact the support group leader.  There is no charge to attend meetings and all are welcome.  However, solicitations or conducting research during meetings is prohibited.


Eastern CT
Leader: Rachael Barta
Tel: (860) 262-4578
Email: EasternCT@sclerodermatristate.org
Meeting Place: Canterbury Library - Mtg Rm 1 
1 Municipal Dr, Canterbury, CT  06331 

Yale/New Haven
Leader: Adam Cerilli
Tel: (203) 927-4330
Email: NewHavenCT@sclerodermatristate.org
Meeting Place: North Haven Medical Center – Suite 2B - Waiting Room
6 Devine St., North Haven, CT 06473

New Jersey

Northern NJ
Email: NorthernNJ@sclerodermatristate.org

Bergen County
Email: BergenCountyNJ@sclerodermatristate.org

For meetings in NJ, contact the office at (800) 867-0885

New York

Leader: Carla Gage
Tel: (518) 573-0259
Email: AlbanyNY@sclerodermatristate.org
Meeting Place: Sunnyview Hospital
1270 Belmont Ave, Schenectady, NY 12308

Co-Leader: Amanda Hebert
Tel: (716) 970-1831
Co-Leader: Deborah Golinski
Tel: (716) 563-4790 | godebbie.dg@gmail.com
Email: BuffaloNY@sclerodermatristate.org
Meeting Place: Our Lady of Peace Church - Community Center
10950 Main Street, Clarence, NY 14031

Leader: Marilyn Waterhouse
Tel: (607) 644-4203
Email: CooperstownNY@sclerodermatristate.org
Meeting Place: Jackie's Restaurant 
3688 Main Street, Milford, NY 13807

Greater Rochester
Leader: Marilyn Sibley
Tel: (585) 723-1026 or (585) 234-0398
Email: RochesterNY@sclerodermatristate.org
Meeting Place: University of Rochester Medical Center - Conference Room ACF-A/B 
601 Elmwood Ave, Rochester, NY 14642

Long Island
(Spanish Speaking Leaders)
Co-Leader: Beatriz Nunez
(631) 949-8265
Email: LongIslandNY@sclerodermatristate.org
Co-Leader: Myrna Carrasquillo 
(631) 398-3024
Meeting Place: Northwell Health Southside Hospital - Board Room
301 East Main St, Bay Shore, NY 11706


Leader: Evamarie Cole
(646) 270-3452
Email: NassauQueensNY@sclerodermatristate.org
Meeting Place: St. Philip & St. James Church - Parish Hall, back door
432 Lakeville Rd, Lake Success, NY  11040


New York City
Co-Leader: Tiese Mahabir
(917) 821-4831
Co-Leader: Zeba Hyder
Tel: (212) 777-2832
Email: NYNY@sclerodermatristate.org
Meeting Place: Hospital for Special Surgery - 5th floor St. Giles Conference Room
535 East 70th St, New York, NY 10021


Orange County, NY
Co-Leader: Jodi Lynn
(845) 778-7442
Co-Leader: Barbara Celnick
(845) 987-7737
Email: OrangeCountyNY@sclerodermatristate.org
Meeting Place: Jacobowitz and Gubits, LLP | 2nd Floor - Conference Room A
158 Orange Avenue, Walden, NY 12586







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The scleroderma community on Inspire.com is thousands of individuals affected by scleroderma talking to each other about their experience with the disease, covering a very wide range of topics. Inspire is a secure, monitored online community where your privacy is protected. It is particularly convenient for anyone who does not live near one a support group meeting place, or cannot attend meetings.


Support Groups are so important because they keep us connected with those we serve. If you are interested in starting a new group in an area that is currently underserved, please call the Tri-State Chapter (800) 867-0885 or email sdtristate@sclerodermatristate.org. Thank you!