The Scleroderma Foundation's "Virtual University" Patient Education Summer Series was offered in place of the 2020 National Patient Education Conference, which was canceled because of the COVID-19 pandemic.
To continue to deliver on the promise of its mission, the Foundation adapted conference programming to the virtual environment and created an exciting series of webinars, live meetings, workshops, and Scleroderma-related education videos.
These weekly online events cover everything from managing symptoms to everyday living advice from individuals with scleroderma, physicians, and specialists. The fall series begins September 2 and thewinter series starts in November. Nearly all of the sessions were video recorded and posted to www.scleroderma.org/summerseriesvideos.
|DATE||TOPIC and SPEAKER|
|7/8||Telemedicine: Strategies for a Successful Visit with JoAnna Harper, Pharm.D., R.Ph., CEO of Pain Partners, LLC
|7/15||Scleroderma Medications: What Works? How Can I Get It? with Jessica Farrell, Pharm.D., Albany College of Pharmacy and Health Sciences
|7/22||Cannabis Conundrum: Weighing the Pros and Cons of THC, CBD, and Related Compounds in Scleroderma with JoAnna Harper, Pharm.D., R.Ph., CEO of Pain Partners, LLC
|7/29||How to Navigate Going Back to College in the Age of COVID-19 with Sneha Dave, Founder & Executive Director, Health Advocacy Summit
|8/5||Scleroderma Lung Disease with Jerry Molitor, M.D., Ph.D., University of Minnesota Medical School
|8/12||Fun Science: How to Extract DNA from Fruits (Kids Get Scleroderma, Too! Webinar) with Carol Feghali-Bostwick, Ph.D., Medical University of South Carolina College of Medicine
Resource link: Banana DNA Extraction Protocol
PLEASE NOTE: the recording of this webinar (August 12) will not be posted to YouTube out of respect for the privacy of the children who participated.
|8/19||What Do Your Dentists and Your Physicians Want You to Know About Scleroderma, Oral Health, and You? with David Leader, D.M.D., M.P.H., Tufts University School of Dental Medicine
|8/26||Skin Care and the Art of Camouflage Makeup with Vivian Stephens, professional makeup artist
Many thanks to our generous sponsors:
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