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SF Virtual University Summer Series LogoThe Scleroderma Foundation's "Virtual University" Patient Education Summer Series was offered in place of the 2020 National Patient Education Conference, which was canceled because of the COVID-19 pandemic.

To continue to deliver on the promise of its mission, the Foundation adapted conference programming to the virtual environment and created an exciting series of webinars, live meetings, workshops, and Scleroderma-related education videos.

These weekly online events cover everything from managing symptoms to everyday living advice from individuals with scleroderma, physicians, and specialists. The fall series begins September 2 and thewinter series starts in November.  Nearly all of the sessions were video recorded and posted to www.scleroderma.org/summerseriesvideos.

DATE TOPIC and SPEAKER
7/8 Telemedicine: Strategies for a Successful Visit with JoAnna Harper, Pharm.D., R.Ph., CEO of Pain Partners, LLC
7/15 Scleroderma Medications: What Works? How Can I Get It? with Jessica Farrell, Pharm.D., Albany College of Pharmacy and Health Sciences
7/22 Cannabis Conundrum: Weighing the Pros and Cons of THC, CBD, and Related Compounds in Scleroderma with JoAnna Harper, Pharm.D., R.Ph., CEO of Pain Partners, LLC
7/29 How to Navigate Going Back to College in the Age of COVID-19 with Sneha Dave, Founder & Executive Director, Health Advocacy Summit
8/5 Scleroderma Lung Disease with Jerry Molitor, M.D., Ph.D., University of Minnesota Medical School
8/12 Fun Science: How to Extract DNA from Fruits (Kids Get Scleroderma, Too! Webinar) with Carol Feghali-Bostwick, Ph.D., Medical University of South Carolina College of Medicine
Resource link: Banana DNA Extraction Protocol
PLEASE NOTE: the recording of this webinar (August 12) will not be posted to YouTube out of respect for the privacy of the children who participated.
8/19 What Do Your Dentists and Your Physicians Want You to Know About Scleroderma, Oral Health, and You? with David Leader, D.M.D., M.P.H., Tufts University School of Dental Medicine
8/26 Skin Care and the Art of Camouflage Makeup with Vivian Stephens, professional makeup artist

 

 

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