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Additional information on COVID-19 and scleroderma

March 20, 2020

A Message from Scleroderma Foundation CEO, Robert J. Riggs

Dear Foundation Members, Friends and Supporters:

Robert Riggs, CEOWe are all being advised and required by government authorities to change our regular routines, which impacts every aspect of our lives. The interconnectedness of our world, our nation, and our communities has, perhaps, never been more evident than now. Yet, in these challenging times, we are reminded that people throughout history have overcome adversity by forgoing what is normal daily activity and embracing changes and sacrifices that will ultimately benefit us all.

The Scleroderma Foundation is with you through this difficult period as we explore and employ new ways to meet our mission. We will be enhancing our online educational programs; continuing our work to advance awareness of scleroderma and its impact on patients and families; and we remain constant in our commitment to research. Our 2020 research grants, and those awarded in previous years that are already in progress, continue to be funded in order to maintain the momentum we see in scientific advancement.

The leadership of our Medical & Scientific Advisory Board is in daily contact with the Foundation’s national office team to ensure that the best information and emerging knowledge is available to our community regarding the COVID-19 pandemic and how best to protect the most vulnerable of those in our scleroderma family. Our global scleroderma patient organization partners are also working in concert to share information.

Changes are required of us all. Foundation support group meetings, patient education events and fundraisers have been cancelled at least through the end of April, and we will communicate further changes as required in this critical time. It’s important that our community take steps now to ensure the safety of ourselves and our families. Please read and follow the guidelines that we keep updated, www.scleroderma.org/covid19_msab.

Rest assured, the work of the Scleroderma Foundation continues much thanks to our volunteers, chapter and support group leaders, our national office team, the National Board of Directors and the Medical & Scientific Advisory Board, all of whom are committed to advancing our mission.

Thank you for your ongoing support as we face these challenging times together.

Gratefully,

Robert Riggs Signature first name

Robert J. Riggs
Chief Executive Officer

 

Additional information on COVID-19 and scleroderma