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Current Ohio Advocacy Initiative (Bill introduced November 13, 2019):

Thank you Represenative Randi Clites and Representative Tim Ginter for sponsoring #OhioHB412, which is a bill to create an Ohio Rare Disease Council! #OHRareDiseaseCouncil #rarediseases. The Scleroderma Foundation Ohio Chapter is proud to support this bill. We're hoping it passes unanimously!

2020 Ohio Advocacy Day

We're holding a rally in Columbus on Friday, June 26, 2020 at 12-3.  Anyone can join us for free!  We will meet with representatives, hear from a couple of speakers at the Ohio Statehouse lawn and hopefully receive a signed proclamation declaring June as Scleroderma Awareness Month from the Governor of Ohio!

Current Federal Advocacy Initiatives:

On September 17, 2019, Tina Fellows, Executive Director; Josette Frye, Board Member and Event Leader; Demeshia Montgomery, Board Member and Advocacy Committee Chair, and Carmella Anderson, Education Day Committee, visited key representatives to explain the need for our recently-introduced bill during Capitol Hill Day. This bipartisan and budget-neutral bill which would establish a commission to improve coordination of National Institutes of Health (NIH)-supported research related to scleroderma and other fibrotic diseases. The goal for the journey was to gain as many co-sponsors of the bill as possible.  We now have 28 co-sponsors. There’s an easy way to help advocate for scleroderma. 

Please sign and return the advocacy letter asking your member of Congress to co-sponsor our bill! All advocacy letters are hand-delivered to members’ offices on Capitol Hill.   Scan and email your advocacy letter to That’s the fastest way to get your letter to Capitol Hill. You may also mail it to the following address: Scleroderma Foundation, Attn: Advocacy, 300 Rosewood Drive, Suite 105, Danvers, MA 01923. Thank you!