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Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

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Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

104171942_10221376818962208_7525615846986478080_n.jpg

Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

2019-KathleenRileyPhotography-0850-(ZF-8709-93620-1-371).jpg

Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

104209244_2713485625422854_1755446445238339261_n.jpg

Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

 

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COVID-19 vaccine Q&A from the Foundation's Medical & Scientific Advisory Board. (Updated 8/20/2021)

THANK YOU!

Stepping Out Logo Keeping Our Promise

Thank you to all who participated and raised funds for the 2021 Stepping Out to Cure Scleroderma Virtual Walk! Remember that it's not too late to donate. Click here to donate to a Stepping Out participant or team

Keep the fun going on social media. Show us your crazy outfits and the unique ways that you participated. Post photos of you and your crew on social media with #MySteppingOutSelfieMN and #SteppingOutMN2021, and be sure to tag the chapter's social media accounts: Instagram, Twitter, and Facebook.

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About Us

Our Mission:

The mission of the Scleroderma Foundation Minnesota Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

 

 

Contact Information:

Scleroderma Foundation Minnesota Chapter
P.O. Box 240244
Apple Valley, MN 55124

Phone: (877) 794-0347
Email: MNChapter@scleroderma.org

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Board of Directors: 

Kris Maas, President
Dawn Matuza, Vice President
Deborah Orman, Secretary
JoAnn Borden, Treasurer

Sue Zeigler
Amy Jensen
Ann Mogilevsky

Dr. Jerry Molitor, Medical Advisor

pexels-pixabay-355952 (1).jpgSubmit Your Topic Suggestions!

This fall, we will be hosting the annual Patient Education Conference virtually again in order to keep our staff, volunteers, speakers and attendees safe.

Despite hosting this event online, we want to make sure that scleroderma patients and their guests get the most that they can out of this experience. That's why we're turning to all of YOU! We want to know which topics you want covered at this year's virtual conference and what would be most valuable for you.

Please submit your topic ideas to Kris Maas at kmaas@scleroderma.org, or Alyssa Putzer at aputzer@scleroderma.org.

We look forward to hearing your ideas!

 


 

Announcing the Karen Bryan Memorial Scholarship Fund

Karen

It is with heavy hearts that we announce the passing of long-time support group leader and Scleroderma Warrior, Karen Bryan.
After being diagnosed in 2001, Karen continued to find joy in new activities, like kayaking, yoga and ZUMBA. She loved attending concerts and traveling with her husband, Bob. They attended the National Patient Education Conference in Philadelphia in 2018 and they loved to spend winters in Florida. Karen never lost her passion for living, despite the many challenges that scleroderma threw at her.
We miss her dearly, but we will be inspired by her example forever.

In honor of Karen and her passion for scleroderma education and awareness, we would like to announce the Karen Bryan Memorial Scholarship Fund. This fund will raise money to provide scholarships for scleroderma patients to attend the annual National Patient Education Conference.

If you are interested in donating to the Karen Bryan Memorial Scholarship Fund, please make checks payable to the Scleroderma Foundation - MN Chapter with notation to the Karen Bryan Memorial Scholarship Fund.

We appreciate your generosity and donation to Karen's legacy!

Karen kayaking

   

 

A very special thank you to our sponsors!

 
National Sponsors
 
Platinum Corporate Sponsor

       Janssen
 

Gold Corporate Sponsors

Boehringer Ingelheim Plain
 

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