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APPLY TO JOIN US FOR CAPITOL HILL DAY – SEPTEMBER 16-18, 2019
(applications due June 10)

Download the application form today! Use the same form for scholarship and non-scholarship applicants.

The Scleroderma Foundation provides the opportunity to meet with policy makers on Capitol Hill to educate and generate awareness about scleroderma-related issues that are important for continued scientific research. Of critical importance in 2019 is our drive for scleroderma to be re-listed as an approved condition eligible for research funding through the Department of Defense’s Peer-Reviewed Medical Research Program.

An effective Capitol Hill Day advocate is...

  • A registered voter (if 18 or over).
  • Affected by scleroderma, whether yourself or a loved one.
  • 2018 CHD Group at Rep Beatty Office 2Someone who can tell his/her story about living with scleroderma succinctly.
  • Willing to talk openly with lawmakers about how scleroderma has affected your life.
  • A good listener.

Capitol Hill Day Activities

  • Pre-training includes basic talking points about our efforts and how to share your story briefly, yet effectively.
  • Face-to-face meetings with members of Congress and their legislative assistants and staff.
  • Up to ten meetings on the Hill with others from the Scleroderma Foundation. Each team includes one or more experienced Capitol Hill Day advocates.
  • Sharing first-hand stories about the impact scleroderma has on your life.

Schedule

  • 2018 CHD Group Photo for mailingMonday, September 16 (6 p.m.) – arrive by late afternoon; required briefing dinner provides talking points, meeting schedules and time for Q&A.
  • Tuesday, September 17 (8 a.m. to 4:30 p.m.) – Capitol Hill
    • Group photo on Capitol steps followed by morning meetings.
    • Lunch hosted by the Scleroderma Foundation.
    • Meetings resume until 4:30 p.m.
    • Participants transported back to hotel.
    • Dinner provided for those staying Tuesday night.
  • Wednesday, September 18 – depart for airport.

Capitol Hill Day Application

All persons interested in participating in this event (scholarship and non-scholarship) must complete a Capitol Hill Day application. Click link to download. Below are instructions to use the fillable fields of the PDF form.

Please note: As a patient-focused organization, voices of patient advocates are essential to the success of our advocacy efforts. The Capitol Hill Day application will ask about your patient status, the need for an accompanying caregiver or parent and the necessity for a wheelchair, walker, scooter, oxygen tank, etc. The sole purpose for asking these questions is to help us—as a group—to be as prepared as possible for every aspect of the Capitol Hill Day experience. Recognizing that those who live with scleroderma face daily challenges, we ask these questions so that all participants can focus on being effective advocates on Capitol Hill. Capitol Hill Day is a long and physically challenging day and some distances between meetings may be significant. Flexibility and understanding are essential as unexpected things will happen.

Below are instructions to use the fillable fields of the PDF form (opening the document online to complete will likely result in error).

  • Download a free version of Adobe Reader (essential for using the application form).
  • With the downloaded application open on your computer, Save As a new file to your computer.
  • Close the new file you saved, and then reopen it.
  • Complete the form by filling in the appropriate fields. Note that check boxes default to one choice.
  • If necessary, print and complete by hand (scan/email or mail to the national office--must be received by June 10).
  • To complete the form on your tablet or smartphone, follow the prompts and instructions on your device.

DEADLINE: completed applications must be received at the national office by 5 p.m. on Monday, June 10, 2019.

Applications from people who live in Congressional districts listed below receive high priority from the review committee because members of Congress from these districts serve on committees that are relevant to our advocacy efforts including the Energy and Commerce and Appropriations Committees.

STATE

DISTRICT(S)

STATE

DISTRICT(S)

Alabama

2, 4, 7

California

5, 6, 9, 13, 18, 20, 27, 29, 31, 34, 36, 38, 40, 42, 44, 52

Connecticut

1, 3

Illinois

2, 5, 7, 9, 10, 15, 16, 17

Missouri

7

Montana

Statewide

New Hampshire

2

Nevada

2, 4

Oregon

2, 5

Washington

1, 3, 4, 5, 6