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Increase awareness of the disease and the Scleroderma Foundation's mission of support, education, and research.

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COVID-19 Information & Recommendations

2021 Virtual National Patient Education Conference

Pre-Doctoral Summer Fellowship Awards

  • Learn more about the new Arnold Postlethwaite, M.D., Pre-Doctoral Summer Fellowship Awards

Virtual University, Patient Education Series

  • LEARN about the Scleroderma Foundation's 2020 Virtual University, patient education series.

Awards

  • See the 2020 awardees and celebrate the dedication and passion of our volunteers and chapters to advancing the Scleroderma Foundation's mission of support, education, and research.

Current Job Openings

 

Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

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News

Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #907; March 5, 2021

  • Actemra Approved by FDA for SSc-ILD
  • GoToMeeting: Coping with Mental Health Issues and Living with a Chronic Illness, March 6, 2021, 7 - 8:30 p.m. Eastern
  • WEBINAR: 20th Annual Cheri Woo Scleroderma Education Seminar, Saturday, March 13, 2021, 10 a.m. 3:30 p.m. Pacific Time
  • VIDEO: Making Tough Healthcare Decisions: A Toolkit by Dr. Thombs
  • Share Your Vaccination Photo!
  • WEBINAR: SPIN-CHAT: Worry Management (Part II), Wednesday, March 10, 7 p.m. Eastern Time
  • Anna Belle Carter Memorial Scholarship
  • ¿Es Usted Padre o Madre de un Niño con Prob-lemas de Salud Mental, Problemas Médicos y/o una Enfermedad Rara?
  • Are you a parent of a child with a mental health condition, a medical condition, and/or a rare disease?
  • COVID 19 Information & Recommendations, Updated February 10, 2021
 

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