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Welcome to the Texas Bluebonnet Chapter Website!

We are here to serve you, so please feel free to contact us about our support groups, educational resources and other events.
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Upcoming Texas Chapter Events:

Saturday, April 27, 2019:
Houston Stepping Out to Cure Scleroderma -
5K Run and Walk

Download a PDF Flyer for the Houston 5K Run/Walk

Saturday, May 4, 2019:
Patient Education Event -
Houston's "Straight Talk: A Patient Perspective" 

  • 9 a.m. to 4 p.m.
  • Conroe Regional Medical Center, First Floor Conference Center,
    504 Medical Center Boulevard, Conroe, Texas.  
  • Register today!  

For more info and updates, please check back or follow us on Facebook.

 Download a PDF Flyer for the Houston "Straight Talk" Patient Education Event

Saturday, June 1, 2019: 
San Antonio Stepping Out to Cure Scleroderma -
5K Walk/Run

Download a PDF Flyer for the San Antonio 5K Walk/Run

Tuesday, June 4, 2019: 
Awareness Event -
Speak Up for Scleroderma, in Austin

  • Awareness Event in Austin
  • Our Sponsor:  Sen. Carol Alvarado, Texas State District 6 (Houston)
  • South Steps of the Texas State Capital
  • Set Up at 11:30 a.m.
  • Starts at 12:00 p.m.
  • Ends at 1:00 p.m.
  • Contact Jacob Davila at jdavila@scleroderma.org or 281-706-6232

Saturday, June 29, 2019: 
Dallas/Fort Worth Stepping Out to Cure Scleroderma Walk

  • Click Here for More Information and to Register Online
  • Music City Mall (formerly Vista Ridge Mall) in Lewisville
  • 2401 South Stemmons Freeway, Lewisville, Texas
  • Entrance 3 near Cinemark Theatre
  • Registration begins at 8:30 a.m.
  • Walk begins at 10:00 a.m.
  • Ticket Raffle for donated items

Download a PDF Flyer for the DFW Walk

Tuesday, August 6, 2019: 
You Dine - They Donate
Fish City Grill in Lake Highlands (Dallas)

  • You Dine and Fish City Grill - Lake Highlands will donate 15% of total day's proceeds
  • 7170 Skillman Street, Suite 100 (at Walnut Hill), Dallas, Texas 75231
  • 11:00 a.m. to 9:00 p.m.

Download a PDF Flyer for the Fish City Grill - Lake Highlands fundraiser

Thursday, October 10, 2019: 
Painting With a Twist (Houston - Midtown)

  • Save the Date for this Fun Fundraiser for Texas Bluebonnet Chapter
  • 1111 Holman, Houston, Texas 77004
  • 7:00 p.m. to 9:00 p.m.
  • More details will come as we finalize, but we are excited for this one, because the San Antonio event was sold out!

Scleroderma-Related Patient Events

Saturday, May 18, 2019:
American Thoracic Society Public Advisory Roundtable (PAR) presents its
13th Annual FREE Patient/Family Forum in Dallas, Texas

  • Meet the Experts: Take Charge of Your Lung Health
  • Welcome message by Kerri Connolly,
    Chair of the ATS PAR and Scleroderma Foundation Director of Programs & Services
     
  • Outstanding panel, including: 
    Anne-Marie Russell, Ph.D., MSc.N., Daniel Croft, M.D., M.P.H., Narelle Cox, Ph.D.,
    Kathleen Lindell, Ph.D., and Kelly Chin, M.D
  • 10:00 a.m. to 2:00 p.m.
  • Hyatt Regency Hotel, 300 Reunion Blvd, Dallas, Texas  75207,
    Meeting Rooms: Reunion Ballroom A-F, Lobby Level
  • Please RSVP by email to cwhite@thoracic.org no later than Wednesday, May 8, 2019.  For more information, please contact Mr. Courtney L. White, (212) 315-8640
  • Click Here to Learn More
 

Advocacy and Awareness

Tuesday, June 4, 2019: 
Awareness Event -
Speak Up for Scleroderma, in Austin

  • Awareness Event in Austin
  • Our Sponsor:  Sen. Carol Alvarado, Texas State District 6 (Houston)
  • South Steps of the Texas State Capital
  • Set Up at 11:30 a.m.
  • Starts at 12:00 p.m.
  • Ends at 1:00 p.m.
  • Contact Jacob Davila at jdavila@scleroderma.org or 281-706-6232

Texas Chapter Support Groups

Vist our Support Groups Home Page for locations, dates & times of a Support Group meeting most convenient for you. 

NEW SUPPORT GROUP BROCHURE (ENGLISH) DOWNLOAD
NEW SUPPORT GROUP BROCHURE (ESPANOL) DOWNLOAD

Want to learn how you can get started hosting support group meetings in your area?
Check out our brochure below and contact Debbie Charlton for any questions you might have, OR visit our Texas Support Group page to find a group meeting near you.

 


The TBC has a new YouTube channel

Help us reach 100 subscribers!

We are excited to announce that the Texas chapter has been busy adding excellent content to our new YouTube channel. Here, you will be able to view video content from past patient education events, fundraisers, and more...but we need your help!

We are hoping to boost our numbers by obtaining 100 subscribers. This milestone will grant our page a CUSTOM URL that will make this channel easier to find for those looking to access our library of videos.

Please show your support TODAY by visiting our new page and clicking the "Subscribe" button. We appreciate all the continuous love and support from our social media followers and look forward to finding even more ways to keep you informed on what all the Texas chapter is doing to fight for the cure.

CLICK HERE to visit our channel and subscribe!


For questions, please email us at txchapter@scleroderma.org OR contact our office at (281) 880-4992.

About Membership:

Stay connected with the Scleroderma Foundation all year. Join the foundation today, and you will receive the quarterly national magazine, Scleroderma Voice, plus other news about special events, the latest research updates and more! Become a member today >>


Follow us on Social Media:

FACEBOOK        TWITTER        INSTAGRAM       YOUTUBE

Mission

The Scleroderma Foundation has a three-fold mission of support, education, and research.

SUPPORT:  To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.

EDUCATION:  To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.

RESEARCH:  To stimulate and support research to improve treatments and, ultimately, find the cause and cure of scleroderma and related diseases. 

 

For more information about our chapter, feel free to download our brochure from a link below:

About Us

Executive Committee
Audrey Brouwer, Chapter President
Kathy Baker, Vice President, (c) Programs and Services
Peggy Brown, Treasurer, (c) Budget and Finance
Diane Lee, Secretgary, (c) Volunteers, Website, Newletter

Board of Directors 
Misti Chapman
Debbi Charlton
Jacob Davila, (c) Public Awareness/Advocacy/Juvenile
Jason Delancy
Jovana Desarden
Misty Rushing

Committee Chairs and Office Volunteers (non-Board)
Emily Woods, (c) Medical Advisory Board
 

Medical Advisory Board
Shervin Assassi, M.D.
Gowri Balachandar, M.D.
Melissa Costner, M.D.
Alexander Duarte, M.D.
Hernando Garcia M.D.
Heidi Jacobe, M.D.
Mark D. Khorsandi, M.D.
Maureen D. Mayes, M.D.
Richard W. McCallum, M.D.
Philip L. Nauert, D.D.S. 
Dipan J. Shah, M.D. 
Matthew Q. Pompeo, M.D.

Contact Information

Edna Mackey, Office Manager
Scleroderma Foundation 
Texas Bluebonnet Chapter
110 Cypress Station Drive, Suite 117
Houston, TX 77090

Phone: (281) 880-4992
Fax: (281) 880-4996
TXchapter@scleroderma.org


 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

video.jpgVideo Gallery

Watch videos pertaining to events held by our chapter and a few fun extras.

 

Check Us Out On The Web!

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Actelion 2019 sponsor      Boehringer Ingelheim 2019 sponsor

We now have TWO Houston area Support Groups: one in Deer Park for the Southeast side of Houston and the North Houston group meets at our new Texas Chapter office near I-45 and 1960.