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Welcome to the Texas Bluebonnet Chapter Website!

We are here to serve you, so please feel free to contact us about our support groups, educational resources and other events.
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Upcoming Texas Chapter Events:


Saturday, September 28, 2019, 9 am - 4 pm
2ND BI-ANNUAL SCLERODERMA DAY
presented in partnership with
UT Health Scleroderma Center
FREE PATIENT EDUCATION Event
 
Houston, UTHealth Texas Medical Center - South

  • Registration Required.  Please register by Sunday, September 22 so we can order lunch for all attending.

    

Sunday, September 29, 10 am - 3 pm
Look for Texas Scleroderma Awareness Booth
at the SILCOVIA YMCA COMMUNITY Event

San Antonio 

   
Thursday, October 10, 7 pm - 9 pm

Painting With a Twist Fun & Fundraising Event
Houston - Midtown
 $35 class fee

   
November 7 - 9 

Scleroderma Awareness at
PULMONARY FIBROSIS FOUNDATION SUMMIT 2019

San Antonio

    
 

Advocacy and Awareness

September 16 - 18
Scleroderma Capitol Hill Day

Jacob Davila is representing Texas Bluebonnet Chapter at the Scleroderma Foundation Capital Hill Day

You Can Help - Make Your Voice Heard

H.R. 3446, the National Commission on Scleroderma and Fibrotic Diseases Act of 2019, was introduced in the U.S. House of Representatives by Rep. Peter T. King (R-NY-2).The bill is bipartisan and budget neutral. If passed by Congress, the bill would establish a commission to improve coordination of National Institutes of Health (NIH)-supported research related to scleroderma and other fibrotic diseases.

Click HERE to download and complete the advocacy letter asking your U.S. Representative to cosponsor H.R. 3446. All advocacy letters will be hand delivered to members’ offices on Capitol Hill.

 


Texas Chapter Support Groups

Vist our Support Groups Home Page for locations, dates & times of a Support Group meeting most convenient for you. 

NEW SUPPORT GROUP BROCHURE (ENGLISH) DOWNLOAD
NEW SUPPORT GROUP BROCHURE (ESPANOL) DOWNLOAD

Want to learn how you can get started hosting support group meetings in your area?
Check out our brochure below and contact Debbie Charlton for any questions you might have, OR visit our Texas Support Group page to find a group meeting near you.

 


The TBC has a new YouTube channel

Help us reach 100 subscribers!

Please show your support TODAY by visiting our new page and clicking the "Subscribe" button. We appreciate all the continuous love and support from our social media followers and look forward to finding even more ways to keep you informed on what all the Texas chapter is doing to fight for the cure.

CLICK HERE to visit our channel and subscribe!


For questions, please email us at txchapter@scleroderma.org OR contact our office at (281) 880-4992.

About Membership

Just a reminder on how you can become a member and support the Scleroderma Foundation and the Texas Bluebonnet Chapter. 
We can't do what we do without your support! 

Your $25 annual dues and other donations can be made  
 
or checks and your Membership/Renewal Application can be mailed to:
Scleroderma Foundation Texas Bluebonnet Chapter
110 Cypress Station Dr.  Suite 117
Houston, TX  77090  

Follow us on Social Media:

FACEBOOK        TWITTER        INSTAGRAM       YOUTUBE

Mission

The Scleroderma Foundation has a three-fold mission of support, education, and research.

SUPPORT:  To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.

EDUCATION:  To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.

RESEARCH:  To stimulate and support research to improve treatments and, ultimately, find the cause and cure of scleroderma and related diseases. 

For more information about our chapter, feel free to download our brochure from a link below:

About Us

Executive Committee
Diane Lee, Chapter President, (c) Newsletter & Website
Misti Chapman, Vice President, (c) Social Media
Jason Delancy, Treasurer, (c) Budget and Finance
Jovana Placido, Secretary, (c) Fundraising & Development

Board of Directors 
Debbi Charlton, (c) Support Groups
Jacob Davila, (c) Public Awareness/Advocacy/Juvenile
Sarah Dodson, (c) Donor Development
BJ Harp, Support Groups & Patient Education Programs
Misty Rushing, (c) Patient Education Programs

Committee Chairs and Office Volunteers (non-Board)
Emily Woods, (c) Medical Advisory Board
Mandy Montane, (c) Grant Writing

Medical Advisory Board
Shervin Assassi, M.D. - Rheumatology, Houston
Melissa Costner, M.D. - Dermatology, Dallas
Alexander Duarte, M.D. - Pulmonology, League City
Hernando Garcia M.D. - Pulmonology, El Pason
Heidi Jacobe, M.D. - Dermatology, Dallas
Mark D. Khorsandi, M.D. - Hand Surgery, Houston
Maureen D. Mayes, M.D. - Rheumatology, Houston
Richard W. McCallum, M.D. - Gastroenterology 
Matthew Q. Pompeo, M.D. - Wound Care, Dallas
Fernando Torres, M.D. - Pulmonology, Dallas
Hani Zamil, M.D. - Gastroenterology, Houston

Contact Information

Edna Mackey, Office Manager
Scleroderma Foundation 
Texas Bluebonnet Chapter
110 Cypress Station Drive, Suite 117
Houston, TX 77090

Phone: (281) 880-4992
Fax: (281) 880-4996
TXchapter@scleroderma.org


 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos pertaining to events held by our chapter and a few fun extras.

 

Check Us Out On The Web!

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Actelion 2019 sponsor      Boehringer Ingelheim 2019 sponsor

We now have TWO Houston area Support Groups: one in Deer Park for the Southeast side of Houston and the North Houston group meets at our new Texas Chapter office near I-45 and 1960.