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Tri-State Support Groups

Each support group provides a setting which is conducive to sharing concerns, information and feelings, in a confidential environment, where members provide encouragement, coping strategies and mutual support.  Meetings have both a social and an educational component which may include a guest speaker or DVD presentation.

We encourage patients to attend with their caregivers and family members allowing all to come to a better understanding of a patient’s journey with scleroderma, how this journey affects their relationships with others and to voice their own concerns when needed.

For meeting dates and times, please contact the support group leader.  There is no charge to attend meetings and all are welcome.  However, solicitations or conducting research during meetings is prohibited.

Connecticut

Eastern CT
Leader: Rachel Barta
Tel: (860) 262-4578
Email: EasternCT@sclerodermatristate.org
Meeting Place: Canterbury Library - Mtg Rm 1 
1 Municipal Dr, Canterbury, CT  06331 

Greater Enfield
Co-Leader: Teri Beebe
Tel: (860) 741-5028
Email: EnfieldCT@sclerodermatristate.org
Meeting Place: Enfield Public Library 
104 Middle Rd, Enfield, CT 06082

Yale/New Haven
Leader: Adam Cerilli
Tel: (203) 927-4330
Email: NewHavenCT@sclerodermatristate.org
Meeting Place: North Haven Medical Center – Suite 2B - Waiting Room
6 Devine St., North Haven, CT 06473

New Jersey

Northern NJ/Bergen County
Co-Leader: Anita Ryan
Tel: (917) 815-9415
Email: NorthernNJ@sclerodermatristate.org
Co-Leader: Natalie Puccio-Murdolo
Tel: (201) 838-4408
Email: BergenCountyNJ@sclerodermatristate.org
Meeting Place: St. Joseph's Wayne Medical Center
224 Hamburg Turnpike, Wayne, NJ 07470

New York 

Albany
Co-Leader: Carla Gage
Tel: (518) 573-0259
Co-Leader: Raymond Littlejohn, Jr.
Tel: (518) 271-7025
Email: AlbanyNY@sclerodermatristate.org
Meeting Place: Sunnyview Hospital
1270 Belmont Ave, Schenectady, NY 12308

Buffalo
Co-Leader: Amanda Hebert
Tel: (716) 997-6551
Co-Leader: Deborah Golinski
Tel: (716) 563-4790 | godebbie.dg@gmail.com
Email: BuffaloNY@sclerodermatristate.org
Meeting Place: Our Lady of Peace Church - Community Center
10950 Main Street, Clarence, NY 14031

Cooperstown
Co-Leader: Rebecca Davidson
Tel: (607) 644-4203
Email: CooperstownNY@sclerodermatristate.org
Co-Leader: Marilyn Waterhouse
Tel: (607) 432-7115
Meeting Place: Jackie's Restaurant 
3688 Main Street, Milford, NY 13807

Greater Rochester
Leader: Marilyn Sibley
Tel: (585) 723-1026 or (585) 234-0398
Email: RochesterNY@sclerodermatristate.org 
Meeting Place: University of Rochester Medical Center - Conference Room ACF-A/B
601 Elmwood Ave, Rochester, NY 14642

Long Island
(Spanish Speaking Leaders)
Leader: Beatriz Nunez
Tel: (631) 949-8265
Email: LongIslandNY@sclerodermatristate.org
Assistant Leader: Myrna Carrasquillo 
Tel: (631) 398-3024
Meeting Place: Northwell Health Southside Hospital - Board Room
301 East Main St, Bay Shore, NY 11706

Nassau/Queens
Co-Leader: Heidy Dornau
Co-Leader: Evamarie Cole
Tel: (646) 270-3452
Email: NassauQueensNY@sclerodermatristate.org
Meeting Place: St. Philip & St. James Church - Parish Hall, back door
432 Lakeville Rd, Lake Success, NY  11040

New York City
Co-Leader: Tiese Mahabir
Tel: (917) 821-4831
Co-Leader: Zeba Hyder
Tel: (212) 777-2832
Email: NYNY@sclerodermatristate.org
Meeting Place: Hospital for Special Surgery - 5th floor St. Giles Conference Room
535 East 70th St, New York, NY 10021

Orange County, NY
Co-Leader: Jodi Lynn
Tel: (845) 778-7442
Co-Leader: Barbara Celnick
Tel: (845) 986-9112
Email: OrangeCountyNY@sclerodermatristate.org
Meeting Place: Jacobowitz and Gubits, LLP | 2nd Floor - Conference Room A
158 Orange Avenue, Walden, NY 12586

Support Volunteers
These volunteers help provide support to those in areas where currently there is no local support group.

Adirondack Region, NY
Support Contact: Wendy Faubert
Tel: (518) 566-1280
Email: AdirondackNY@sclerodermatristate.org

Central NY Region
Support Contact: Suzanne Craft
Tel: (315) 953-4011
Email: CentralNY@sclerodermatristate.org

Staten Island NY Region
Support Contact: Jeanne Ryan
Tel: (917) 531-6564
Email: StatenIslandNY@sclerodermatristate.org

Volunteer Support Coordinators
These volunteers provide support with meetings and special events such as Scleroderma Walks, Health Fairs, and Patient Education Forums.

Rochester Area
Support Contact: Diane Reynolds
E-mail: ladydi2u1956@yahoo.com

Support Contact: Shaleeya McFadden
Email: shaleeyamcfadden@yahoo.com

Support Contact: Tracy Mieszczak
Email: TracyLynn407@yahoo.com

Support Contact: Mona Isler
Email: ramona918@gmail.com

home-inspire-logo.png Join the conversation at Inspire.com

The scleroderma community on Inspire.com is thousands of individuals affected by scleroderma talking to each other about their experience with the disease, covering a very wide range of topics. Inspire is a secure, monitored online community where your privacy is protected. It is particularly convenient for anyone who does not live near one a support group meeting place, or cannot attend meetings.

Support Groups are so important because they keep us connected with those we serve. If you are interested in starting a new group in an area that is currently underserved, please call the Tri-State Chapter (800) 867-0885 or email sdtristate@sclerodermatristate.org. Thank you!