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Tri-State Support Groups

Each support group provides a setting which is conducive to sharing concerns, information and feelings, in a confidential environment, where members provide encouragement, coping strategies and mutual support.  Meetings have both a social and an educational component which may include a guest speaker or DVD presentation.

We encourage patients to attend with their caregivers and family members allowing all to come to a better understanding of a patient’s journey with scleroderma, how this journey affects their relationships with others and to voice their own concerns when needed.

For meeting dates and times, please see calendar on main page of the website.  There is no charge to attend meetings and all are welcome to attend any support group regardless of location as we are meeting virtually.  However, solicitations or conducting research during meetings is prohibited.

Connecticut

Eastern CT
Leader: Rachael Barta
Tel: (860) 262-4578
Email: EasternCT@sclerodermatristate.org

Yale/New Haven
Leader: Adam Cerilli
Tel: (203) 927-4330
Email: NewHavenCT@sclerodermatristate.org

New Jersey

Northern NJ
Leader: Anita Ryan
Tel: (973) 726-0677
Email: NorthernNJ@sclerodermatristate.org

Bergen County
Email:BergenCountyNJ@sclerodermatristate.org

New York

Albany
Leader: Carla Gage
Tel: (518) 573-0259
Email: AlbanyNY@sclerodermatristate.org

Buffalo
Leader: Paulette Reed
Tel: (716) 400-2197
Email:BuffaloNY@sclerodermatristate.org

Cooperstown
Email:CooperstownNY@sclerodermatristate.org

Greater Rochester
Leader: Marilyn Sibley
Tel: (585) 723-1026 or (585) 234-0398
Email:RochesterNY@sclerodermatristate.org

Long Island
(Spanish Speaking Leaders)
Co-Leader: 
Beatriz Nunez
Tel: (631) 949-8265
Email:
 LongIslandNY@sclerodermatristate.org
Co-Leader: Myrna Carrasquillo
Tel: (631) 397-3024
Co-Leader: Suzette McMillian
Tel: (516) 859-8531

Nassau/Queens
Leader: EvaMarie Cole
Tel: (646) 270-3452
Email:NassauQueensNY@sclerodermatristate.org

New York City
Co-Leader: Tiese Mahabir
Tel: (917) 821-4831
Co-Leader: Zeba Hyder
Tel: (212) 777-2832
Email: 
NYNY@sclerodermatristate.org

Orange County, NY
Co-Leader: Jodi Lynn
Tel: (845) 778-7442
Co-Leader: Barbara Celnick
Tel: (845) 987-7737
Email: 
OrangeCountyNY@sclerodermatristate.org

home-inspire-logo.png Join the conversation at Inspire.com

 

The scleroderma community on Inspire.com is thousands of individuals affected by scleroderma talking to each other about their experience with the disease, covering a very wide range of topics. Inspire is a secure, monitored online community where your privacy is protected. It is particularly convenient for anyone who does not live near one a support group meeting place, or cannot attend meetings.

Support Groups are so important because they keep us connected with those we serve. If you are interested in starting a new group in an area that is currently underserved, please call the Tri-State Chapter (800) 867-0885 or email sdtristate@sclerodermatristate.org. Thank you!