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2020 Awareness Items

Awareness Items are great gifts! Rock Your Teal!
(800) 867-0885

Call the Tri-State office to order awareness items for your friends and family. Rock your TEAL and spread awareness of scleroderma!

2020 Inspire - Step Up

It's Time to Step Up for Scleroderma!

Check out our Facebook page for more information how you can make an IMPACT!

 

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Find support that fits your lifestyle

Visit our support group web-page here  If you don’t find a support group to fit your lifestyle, consider starting one yourself!  We will help you all the way!

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SclerodermaVideo.com

Whether you are a patient, caregiver, family member, or medical professional, SclerodermaVideo.com is an invaluable resource! 

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COVID-19: Information and frequently asked questions regarding the COVID-19 vaccines have been addressed by the Foundation's Medical & Scientific Advisory Board. (Updated February 10, 2021) Read More

Tri-State News regarding Coronavirus, Covid-19

Your health and safety and that of every person affected by scleroderma is of paramount importance to the Scleroderma Foundation Tri-State Chapter. The Tri-State Chapter takes very seriously the threat the coronavirus presents to individuals living with scleroderma.

Therefore, we have moved our support group meetings to virtual or canceled some in the short term. View our calendar above for individual meeting details.

Our Stepping Out to Cure Scleroderma Walks for June have transitioned to virtual walks as well. Consider Stepping Out and raising awareness in your community, your way! Click on Tri-State Events for further information.


Scleroderma Foundation Tri-State Chapter Podcast

 

 

Scleroderma E-News

 

Stay Updated with Tri-State Chapter Events & News

Sign Up for the Scleroderma E-News Today!


Want to Inspire Your Community?

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#StepUp4Scleroderma

 

 For more ways to get involved - Contact csnider@scleroderma.org

 

 

 

 

 

 

2021 SFTS Virtual Banner

Virtual Walk pages are live!

What is a virtual walk?

The walking is real - it's the community that's virtual. 

With a virtual walk, you choose your own course, your starting time and who walks next to you!

2020 Virtual Walks

Represent the Scleroderma Community by wearing a scleroderma t-shirt of choice and share your photos on social media using #SteppingOutforScleroderma #SFTristate

Don't have a scleroderma t-shirt?

Order a 2021 Stepping Out to Cure Scleroderma walk t-shirt for $10.00 with your registration!

You can also call the office at 607-723-2239 and order yours by phone (while supplies last).

Step Out in one of these Virtual Walks on June 26, 2021

Albany, NY   |   Binghamton, NY   | Buffalo, NY

Long Island, NY   |   Manhattan, NY   |   New Haven, CT

Poughkeepsie, NY   |   Ridgefield Park, NJ   |   Rochester, NY

Syracuse, NY   |   Westchester, NY

Cannot participate on June 26th?  That's okay! Sign up and participate anytime you can.  We will be sharing photos on our social media that day, and hope you will too (see above for social media tags) - but we'll be excited to hear about your walk whenever you do it.

Can't register online?  Download the registration form and mail it to our office at Scleroderma Foundation Tri-State Chapter 59 Front St, Binghamton, NY 13905

You don't have to be a registered participant to win a Silent Auction. Check out the Silent Auction.   Bid on one or more of the following: gift cards, gift baskets, gift certificates, television, HiDow Tens Package and a photography package donated by various companies and individuals within our scleroderma community.  

Step Up & Step Out for Scleroderma!

 Together we can Make an Impact!

 


 

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We have converted these educational events to video presentations for the health and safety of our scleroderma
patient community. The presentations are on SclerodermaVideo.com for viewing in the comfort of your own home.

Location

Speakers

Albany, NY

New Haven, CT

Yale University

New York, NY

HSS

 

 

About Us

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Who Are We?

The Scleroderma Foundation Tri-State Chapter is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  All donations are qualified charitable donations to the fullest extent of the law. Our federal tax identification number is 13-3128296. All donations are gratefully accepted.

Our Vision

Striving for a cure!

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

 

 


Contact Information

Bruce R. Cowan, Executive Director
bcowan@scleroderma.org


Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free: 800-867-0885
Fax: 607-723-2039

Staff 

Candice Snider, Fundraising Manager
csnider@scleroderma.org

April Roberts, Office Administrator
aroberts@scleroderma.org

Ariel Galvez, Program Services Manager
agalvez@scleroderma.org

Board of Directors 

Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Amy Gietzen 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 

Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Monique Hinchcliff, M.D., M.S. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Founder Member
Harry Spiera, M.D.

 

 

 
National Sponsors
 
National Sponsors
 
Gold Corporate Sponsor

Boehringer Ingelheim Plain
 

Silver Corporate Sponsor

Horizon Therapeutics logo
 

Chapter Sponsorship Opportunities

Thank you for considering a corporate or individual donation to the Tri-State Chapter. For more information, please contact Candice Snider at csnider@scleroderma.org.