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Welcome to the Southeast Florida Chapter Website!

Our chapter was founded in February 1989. Our mission is to help educate our patients and the community about scleroderma.

To donate directly, please mail checks to 3930 Oaks Clubhouse Drive #505, Pompano Beach FL 33069.

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COVID-19, Reviewed July 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More

 

STEPPING OUT TO CURE SCLERODERMA
~ VIRTUAL WALK ~
Saturday, February 27, 2021 Details To Follow

Chapter Support Group Meetings Going Virtual

Virtual Support Group

Click here for more information >>

 

Find a Cure for Scleroderma Through Advocacy

Make a difference in Washington - join our Advocacy Team >>

 
 
Social media outlets such as Facebook, Instagram and Twitter can often serve as an important communications tool for Scleroderma sufferers and supporters alike. We'll continue to update our website with timely information, but other outlets allow for a more interactive experience while you keep in touch with family, friends, and other Scleroderma Chapters across the country.

 Facebook
FACEBOOK
@sclerodermasefl
Instagram
INSTAGRAM
@sclerodermasefl
Twitter
TWITTER
@sclerodermasefl 
Inspire 
     

About Us

OFFICERS
President ~ Arnold Brownstein
Vice President ~ Martin Lehmann
Vice President Fundaising ~ Noel Weinstock
Secretary ~ Desiree James
TreasurerNancy Brownstein

[Past President ~ Jerry Lance]
[Past President | Board Member Ruth Greenspan]

We are grateful for Jerry and Kathy Lance whose service and dedication to our chapter has been a continuing source of support to our community.

Contact Information

Ferne Robin, Executive Director
Scleroderma Foundation, Southeast Florida Chapter
3930 Oaks Clubhouse Drive #505 
Pompano Beach, FL 33069
Phone: 954-798-1854 
Email: frobin@scleroderma.org

 

 

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BOARD MEMBERS
John Karay
Jessica Massengale
Lori Notis
Meryl Parr
John Chanoux

HONORARY BOARD MEMBER
Lonny Anger

MEDICAL ADVISORY BOARD
Dr. Andre Caruso, Psy.D
Melanie McMillion, MS, LMHC


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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch a video featuring a young woman's battle with Scleroderma.

Check out the speakers from the 22nd Annual Ruth Greenspan Memorial Patient Education Day

Find Us On The Web!

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National Sponsors
 
Diamond National Sponsors
 
Actelion Plain   Boehringer Ingelheim Plain
 
Local Sponsors
Park West