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Welcome to the Southeast Florida Chapter Website!

Our chapter was founded in February 1989. Our mission is to help educate our patients and the community about scleroderma.

To donate directly, please mail checks to 3930 Oaks Clubhouse Drive #505, Pompano Beach FL 33069.

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It's time for the Southeast Florida Chapter's 2nd Annual VIRTUAL 5K. Many friends and family members "competed" last year and we're hoping that you'll join us again.
It's only $10 to register and it's all in good fun to create your own 5K - be creative...be crazy. Follow THIS LINK for complete details and registration. 
Then send a pictureof your completed 5K to our Virtual 5K Adventure Page  You may also send in Messenger on that page or email to seflchapter@scleroderma.org and we'll post for you.  


Chapter Support Group Meetings

Click here for more information >>


Find a Cure for Scleroderma Through Advocacy

Make a difference in Washington - join our Advocacy Team >>

@seflscleroderma TWITTER

About Us

President ~ Arnold Brownstein
Vice President ~ Noel Weinstock
Secretary ~ Melanie McMillion
Treasurer ~ Stacy Alonso

[Past President ~ Jerry Lance]
[Past President | Board Member Ruth Greenspan]

We are grateful for Jerry and Kathy Lance whose service and dedication to our chapter has been a continuing source of support to our community.

Contact Information

Ferne Robin, Executive Director
Scleroderma Foundation, Southeast Florida Chapter
3930 Oaks Clubhouse Drive #505 
Pompano Beach, FL 33069
Phone: 954-798-1854 
Email: seflchapter@scleroderma.org


Click image above to meet our board.

Lonny Anger

Courtney Caliendo
John Karay
Martin Lehmann
Jessica Massengale
Melanie McMillion
Chris Miller
Lori Notis
Maricarmen Bandin
Aldo Hreczny


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Photo Gallery

Look through photo galleries from previous events held by our chapter.



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Watch a video featuring a young woman's battle with Scleroderma.

Check out the speakers from the 22nd Annual Ruth Greenspan Memorial Patient Education Day

Find Us On The Web!

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National Sponsors


Actelion 2019 sponsor      Boehringer Ingelheim 2019 sponsor

Local Sponsors
Park West