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Stepping Out SEFL

Welcome to the Southeast Florida Chapter Website!

Our chapter was founded in February 1989. Our mission is to help educate our patients and the community about scleroderma.

To donate directly, please mail checks to 3930 Oaks Clubhouse Drive #505, Pompano Beach FL 33069.

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COVID-19, January 8, 2021: Information and frequently asked questions regarding the COVID-19 vaccines have been addressed by the Foundation's Medical & Scientific Advisory Board. Read More

STEPPING OUT TO CURE SCLERODERMA
~ VIRTUAL WALK ~ 

CAR PARADE TO CURE SCLERODERMA
Saturday, February 27, Tradewinds Park

~ MUST REMAIN IN VEHICLE WHILE AT THE PARK ~ 

See Details Below

Furry Friend
18 Month Calendar

Furry Friends 18 Month Calendar (July 2021-December 2022) will bring you joy as we spotlight our fur babies who are such an important part of our lives and families. If you want to submit your favorite pet photo for inclusion in the calendar please follow the instructions HERE
  VW
VIRTUAL WALK

Like most events we are going VIRTUAL this year. Due to COVID 19 concerns we are transforming our 17th Annual Stepping Out to Cure Scleroderma to a Virtual Event. You can now walk however you want, where ever you want while still raising funds and awareness for Scleroderma! HERE
  Raffle
RAFFLE TICKETS

Framed prints featured in our VIRTUAL Walk raffle. Tickets available alone or in a variety of Bundles. You will receive an email with raffle ticket numbers after your purchase and the live drawings will be held on ZOOM Meetings on April 1, 2021.
View prints HERE
  Parade
CAR PARADE

Local residents register now for a car parade at Tradewinds Park. A print out for your car will be available when you register. HERE
All participants must remain in their vehicles the entire time. Plase decorate your car prior ro arriving at the park.
We will meet in the parking lot of the Atala pavilion at 10:30am, with the parade starting at 11:00am. There will be a fee to enter the park.



 

Find a Cure for Scleroderma Through Advocacy

Make a difference in Washington - join our Advocacy Team >>

 
 
Social media outlets such as Facebook, Instagram and Twitter can often serve as an important communications tool for Scleroderma sufferers and supporters alike. We'll continue to update our website with timely information, but other outlets allow for a more interactive experience while you keep in touch with family, friends, and other Scleroderma Chapters across the country.

 Facebook
FACEBOOK
@sclerodermasefl
Instagram
INSTAGRAM
@sclerodermasefl
Twitter
TWITTER
@sclerodermasefl 
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About Us

OFFICERS
President ~ Arnold Brownstein
Vice President ~ Martin Lehmann
Vice President Fundaising ~ Noel Weinstock
Secretary ~ Desiree James
TreasurerNancy Brownstein

[Past President ~ Jerry Lance]
[Past President | Board Member Ruth Greenspan]

We are grateful for Jerry and Kathy Lance whose service and dedication to our chapter has been a continuing source of support to our community.

Contact Information

Ferne Robin, Executive Director
Scleroderma Foundation, Southeast Florida Chapter
3930 Oaks Clubhouse Drive #505 
Pompano Beach, FL 33069
Phone: 954-798-1854 
Email: frobin@scleroderma.org

 

 

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BOARD MEMBERS
John Karay
Jessica Massengale
Lori Notis
Meryl Parr
John Chanoux

HONORARY BOARD MEMBER
Lonny Anger

MEDICAL ADVISORY BOARD
Dr. Andre Caruso, Psy.D
Melanie McMillion, MS, LMHC


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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

0316jm.jpgVideo Gallery

Watch a video featuring a young woman's battle with Scleroderma.

Check out the speakers from the 22nd Annual Ruth Greenspan Memorial Patient Education Day

Find Us On The Web!

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National Sponsors
 
National Sponsors
 
Janssen   Boehringer Ingelheim Plain
 
Local Sponsors
Park West