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Welcome to the Southeast Florida Chapter Website!

Our chapter was founded in February 1989. Our mission is to help educate our patients and the community about scleroderma.

To donate directly, please mail checks to 3930 Oaks Clubhouse Drive #505, Pompano Beach FL 33069.

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COVID-19 UPDATE, March 30, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More

 

STEPPING OUT TO CURE SCLERODERMA
FAMILY FUN DAY AND WALK

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Another beautiful Saturday morning stroll in Coconut Creek. Cool in the shade, hot in the sun and warm in the company of Scleroderma Warriors. Thanks to the teams, their members & donors, family and friends and the nice woman who gave me an extra piece of chicken.

170 volunteers and participants raised over $54,000 for our chapter. Thanks to all and see you in 2021 for the 17th Annual Walk.
See Photos [HERE]

Chapter Support Group Meetings

Click here for more information >>

 

Find a Cure for Scleroderma Through Advocacy

Make a difference in Washington - join our Advocacy Team >>

 
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FACEBOOK
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@seflscleroderma TWITTER
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#sclerodermasefl
INSTAGRAM

About Us

OFFICERS
President Noel Weinstock
Vice President ~ Martin Lehmann
Secretary ~ Melanie McMillion
TreasurerArnold Brownstein

[Past President ~ Jerry Lance]
[Past President | Board Member Ruth Greenspan]

We are grateful for Jerry and Kathy Lance whose service and dedication to our chapter has been a continuing source of support to our community.

Contact Information

Ferne Robin, Executive Director
Scleroderma Foundation, Southeast Florida Chapter
3930 Oaks Clubhouse Drive #505 
Pompano Beach, FL 33069
Phone: 954-798-1854 
Email: frobin@scleroderma.org

 

 

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BOARD MEMBERS
Lonny Anger

John Karay

Jessica Massengale
Lori Notis
Maricarmen Bandin
Aldo Hreczny
John Chanoux

MEDICAL ADVISORY BOARD
Andre Caruso
Nancy Brownstein

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch a video featuring a young woman's battle with Scleroderma.

Check out the speakers from the 22nd Annual Ruth Greenspan Memorial Patient Education Day

Find Us On The Web!

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National Sponsors
 
Diamond National Sponsors
 
Actelion Plain   Boehringer Ingelheim Plain
 
 
Corporate National Sponsors
 
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Local Sponsors
Park West