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Southern California Support Groups

Support groups provide a forum to share feelings, concerns, information, as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings.

Support groups often feature speakers specializing in scleroderma or related topics. To find out information about upcoming speakers or meeting topics, please contact the support group leader or chapter office.

These schedules are subject to change. Before attending a group for the first time, please call to verify date and time. Groups are free of charge and open to everyone, including patients, caregivers, family and friends.

Click a link to jump below to view more information about one or our support groups:

Bakersfield/Kern County | Camarillo/Ventura County | Central Coast | Crescenta Valley/Pasadena
Imperial County/El Centro | Inland Empire/San Bernardino | Los Angeles | Orange County
Palm Desert | San Diego/Encinitas | San Diego/Mission Valley | San Fernando Valley/Sherman Oaks
Santa Barbara | Whittier/San Gabriel | San Gabriel Valley

Support Group Announcements and Updates

Note: Due to COVID restrictions and for the safety of our participants all meetings will be held virtually until further notice.

Please visit our Facebook page for announcements, changes, alerts, etc.www.facebook.com/sclerodermasocal


Combined Support Groups

October:

 

October 30 at 10 AM
Peer Support Group Meeting
Los Angeles, Camarillo, SFV, Bakersfield, IE/SB (Link to follow once we near the date)

https://us06web.zoom.us/meeting/register/tZ0tcOCvrDouGt2ul2-L711LVaMopZ6D8ndq

 
(Please see the support groups participating with you so you can connect with the leaders by phone and or email to discuss your upcoming meeting.)
Participating support group leaders:
Los Angeles and Camarillo - Tina Burger - Phone: 310-699-7290 Email: tburger@scleroderma.org
SFV - Kelly Ryan - Phone: 818-974-2428 Email: Kelly@kellycryan.com
Bakersfield - Stephen Elrod - Phone: 661-201-1759 Email: stephenelrod168@yahoo.com
IE/SB - Christine Haddad - Phone: 909-754-5934 Email: christinehaddad81@icloud.com

November:

November 6 at 10:30 AM
Combined Meeting for ALL Support Groups on Zoom with Speaker:

When: Saturday, November 6th at 10:30 AM Pacific Time (US and Canada)
Speaker: Sara Jacobs DPT, OCS and guest, Dr. Susan Nyanzi
Topic: "The Benefits of Myofascial Release and Pilates Techniques for People Living with Scleroderma"
(This presentation will include live demonstrations by a licensed physical therapist and patient)

Please register in advance for this meeting:
https://us06web.zoom.us/meeting/register/tZMtdOCtpjkjGNdhUKEwCEVr-ULkBwFdPyvS
After registering, you will receive a confirmation email containing information about joining the meeting.

For any questions about this meeting please contact our patient services director:
Contact: Tina Burger
Phone: 310-699-7290
Email: tburger@scleroderma.org

 

 

Young Adult Support Group (Ages 17 - 30's) 
Meeting virtually twice a month on zoom.

Our young adult support group meetings provide a safe place to meet people your age living with scleroderma, where you can receive support, have some laughs and make long lasting friendships with others who truly understand what you're going through. Click Here to see our video.

To find out more about our young adult support group or to join a meeting, please email our young adult support group leaders below:
Support group Leaders:
Contact: Shervin Ghanoongooi
Email: sghanoongooi@scleroderma.org

or

Contact: Alejandra Serrano
Phone: 213-245-7439
Email: sclerowarrior18@gmail.com

 

 



 

Bakersfield
Kern County Support Group

Meetings are on Saturdays, 10 a.m. to 12 p.m., every other month
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Stephen Elrod
Phone: 661-201-1759
Email: stephenelrod168@yahoo.com

2021 Schedule: 

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Camarillo/Ventura County
Ventura County Support Group
Saturday, 10 a.m. to 12 p.m. 
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Tina Burger
Phone: 310-699-7290
Email: tburger@scleroderma.org

 

2021 Schedule: 

 

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Central Coast 
Central Coast Support Group (Servicing Northern Santa Barbara and San Luis Obispo County) 
Saturday, 11 a.m. to 1 p.m., every other month
Location: (We are currently not meeting in person. Meetings are via Zoom only)                                                                              
Contact: Pat Muran  (Habla Español)
Phone: 805-459-2362
Email: pat.ccssg@gmail.com

 

2021 Schedule: 

 

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Crescenta Valley/Pasadena
Crescenta Valley Support Group                                                           
Saturday, 10 a.m. to 12 p.m.  (see schedule below)                                                                   
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Alejandra Serrano
Phone: 213-245-7439
Email: sclerowarrior18@gmail.com

 

2021 Schedule: 

Crescenta Valley Peer Support Group meeting on Zoom.

When: Apr 24, 2021 at 10:00 AM Pacific Time (US and Canada)
Register in advance for this meeting:
After registering, you will receive a confirmation email containing information about joining the meeting.

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Imperial County/El Centro
Imperial County Support Group
Call for next meeting date and location
Location: (We are currently not meeting in person. Meetings are via Zoom only)

Contact: Debi Gray
Phone: 760-554-4942
Email: ivsclerogroup2017@yahoo.com.

2021 Schedule: 

TBA

  

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Inland Empire/San Bernardino
Riverside Support Group
10 a.m. to 12 p.m. 
Location: (We are currently not meeting in person. Meetings are via Zoom only)  
Contact: Christine Haddad
Phone: 909-754-5934
Email: christinehaddad81@icloud.com

 

2021 Schedule: 

 

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Los Angeles 
Los Angeles Support Group
10am – 12pm 
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Tina Burger
Phone: 310-699-7290
Email: tburger@scleroderma.org

 

2021 Schedule: 

 

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Orange County
The Orange County Scleroderma Support Group 
Meetings are held on the SECOND Saturday of alternate months, 11:30 a.m. to 2 p.m. 
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Bonnie Copeland
Phone: 714-606- 6059
Email: bonmail@pacbell.net
or
Contact: Roberta Hines
Phone: 562-745-8075
Email: hines.roberta50@gmail.com

 

2021 Schedule: 

 

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Palm Desert
Desert Area Support Group
We are looking for a new support group leader. If you are interested in leading a support group in this area, please contact Tina Burger tburger@scleroderma.org. No experience needed; we will help train and get things started. 
Contact: Tina Burger
Phone: 424-227-6475
Email: tburger@scleroderma.org 

 

2021 Schedule: 

TBA

 

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San Diego/Encinitas 
Encinitas Support Group
Saturday, 10 a.m. to 12 p.m., every other month
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Kelly Clemeshaw
Phone: 760-855-3449
Email: kclemeshaw@gmail.com

 

2021 Schedule: 

 

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San Diego/Mission Valley
Mission Valley Support Group
Saturday, 10 a.m. to 12 p.m., every other month
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Susan Okuno
Phone: 619-246-9393
Email: sokuno1@yahoo.com

 

 

2021 Schedule: 

 

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San Fernando Valley/Sherman Oaks
San Fernando Valley Support Group
Sunday, 11 a.m. to 1 p.m., every other Month (2nd Sunday)
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Map and directions
Contact: Kelly Ryan
Phone: 818-974-2428
Email: Kelly@kellycryan.com

 

2021 Schedule: 

 

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Santa Barbara
Santa Barbara Support Group

Meetings are on Saturdays, 10 a.m. to 12 p.m.
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Cindy Cattaneo                              
Phone:  (805) 895-7384 
Email:  ccattaneo123@gmail.com   

 

2021 Schedule: 

  

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Whittier/San Gabriel
Whittier/San Gabriel Support Group
10 a.m. to 12 p.m.
Location: (We are currently not meeting in person. Meetings are via Zoom only)
Contact: Penni LaVoot
Phone: 714-313-8539 
Email:plavoot@gmail.com

 

2021 Schedule: 

 

San Gabriel Valley Peer Support Group
Contact: Catherine Baca
Phone: 626-232-8449
Email: MyLivingSpecialist@gmail.com