10th Annual Amy K. Parrish Patient Education Conference

Saturday, February 8, 2020, at the Medical Center of South Carolina, Charleston, SC.

Keynote Speaker:

2019 Scleroderma Foundation Doctor of the Year, Dr. Jessica Farrell, Clinical Pharmacist and Associate Professor at Albany College of Pharmacy and Health Sciences.

People living with scleroderma wage an ongoing battle, not only to cope with their symptoms, but to get access to medication needed for disease management at a price that isn't prohibitive. Navigating our nation's complex healthcare insurance structure often results in a new and stressful full-time job for people already struggling with a debiliating condition.

Dr. Farrell built a case for the use of CellCept in the treatment of systemic sclerosis.  Thanks to her efforts, mycophenalate mofetil is now listed in the Medicare drug database for off-label use in scleroderma, paving the way for its inclusion on the drug compendia for other insurance carriers. Dr. Farrell has said, "with rare conditions like systemic sclerosis, every aspect of medical care can be met with a roadblock, especially when it comes to insurance coverage for medication. Healthcare providers, supporters and patients have no choice to advocate for this condition and fight to pave new paths to accomplish even small feats."  Thanks to Dr. Farrell's work, there is one less roadblock on the path to treatment for people with scleroderma.

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Registration and other information coming soon!

Susan E. Melvin

President

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About Us

Board of Directors
Susan Melvin, President
Karen Kemper, PhD., Vice President
Frances Parrish, Treasurer
Melody Breen, Secretary

Contact Information

Board Members

• Bobby Francis