Support Groups
The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting chapter and support group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.
Please click on a state to find a support group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our the national office at (800) 722-4673.
*Phone contacts are individuals who offer phone and email support, but do not run a support group.
COVID-19: Imporant information regarding mask wearing for people with scleroderma and the CDC guidelines, from the Foundation's Medical & Scientific Advisory Board. (Updated May 17, 2021)
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¿Habla Español? | Virtual Groups
BIPOC Support Group
The Scleroderma Foundation’s BIPOC Support Group was founded to address the needs of Black, Indigenous, and People of Color affected by scleroderma. This new virtual support group provides innovative educational opportunities, emotional support, and scleroderma related resources. Facilitators: Marilyn Sibley and Erion Moore.
First Meeting: May 2, 2021, 4 p.m. Eastern Time
Click here to register for this Zoom meeting.
Calera Area Support Group
Calera Public Library
9700 Hwy. 25
Calera, AL 35040
For more information, please contact Support Group Leader Jo Ann Bokenkamp
Email: JoAnnBokenkamp@yahoo.com
Phone: (334) 730-1363
Assistant Support Group Leader: Clarissa Hallowell
Email: bhmsclerofriends@yahoo.com
Phone: (205) 492-7482
Florence (Telephone Support)
Contact: Sarah Logan, 256-332-0048
Huntsville
Meetings are held at 4900 Meridian Street, Morrison Building, Room 101-A, Huntsville, AL 35762
Meetings go from 1 p.m. - 3 p.m. For information and direction, please call (256) 323-0715.
Mohave Valley (Bullhead City) Support Group
Support Group Leader: Carol Hayward, 928-768-9323
Southern Arizona (Tucson) Phone/Email Support Group
Support Group Leader: Pat Gould (after 1 p.m.) (520) 742-0199, pag90az@comcast.net
Phoenix Support Group
Support Group Co-Leaders:
Holly Roberts, 602-697-7727, hollyroberts@q.com
Diane Wilson, 615-293-2709, dwsclero@gmail.com
Al Stockman, alstockman100@gmail.com
MEETING LOCATIONS:
- Phoenix: Banner Hospital, North Sandstone Room, 12th Street & McDowell
- Glendale: Arrowhead Abrazo, Sierra Room, 67 Ave. & 101st
Please email Holly or Diane to be included in monthly email list.
Benton Support Group
Support Group Leader: Pam Ray, 501-778-8737, pamray@aol.com
If you live in Southern California, learn more about support groups from the Southern California Chapter. (Note: Greater San Diego is now a part of the Southern California Chapter). For Northern California, see below.
Fresno Support Group
This grgoup is not currently meeting
Fig Garden Library, Fig Garden Meeting Room
3071 West Bullard Ave, Fresno, CA 93711
Contact: Mary Huckabee
Phone: (209) 620-6538
Email: maryhuckabee_sd@yahoo.com
Palo Alto Support Group
10:30 a.m. - 12:30 p.m., 2nd Saturday of each month
The Palo Alto Medical Foundation, 2nd Floor, Room N2 Conference Room
795 El Camino Real, Palo Alto, CA 94301
Contact: Rachel Ho
Phone: (415) 680-4389
Email: rachelhosf@gmail.com
Santa Rosa Support Group
10 a.m. - 12 p.m., 4th Saturday of the month
Sutter Medical Center Warrack Campus, 2449 Summerfield Rd, 2nd Floor, Santa Rosa, CA 95405
Contact: Jenene Robinson, jenjonrob@att.net, (707) 894-3605
**Schedule, location, topics or speakers subject to change. Please contact to confirm.
Turlock Support Group
This group is not currently meeting.
Raley’s Store, 2900 Geer Road, Turlock, CA
Contact: Mary Huckabee
Phone: (209) 620-6538
Email: maryhuckabee_sd@yahoo.com
Learn more about support groups in Colorado from the Rocky Mountain Chapter.
Learn more about support groups in Connecticut from the Tri-State Chapter.
Learn more about support groups in Washington D.C. from the Greater Washington, D.C. Chapter.
Learn more about support groups in Delaware from the Delaware Valley Chapter.
If you live in Southeast Florida, learn more about support groups from the Southeast Florida Chapter. For other areas of Florida, look below:
Grupo De Apoyo Bilingüe De Esclerodermia De Miami
De 1 a 2 pm en Español y de 2 a 3 pm en Inglés
En South Miami Hospital - 6250 Sunset Drive Miami, FL 33143
Contactar al líder del grupo Monica Ramirez si tienen preguntas y para mas informacion sobre fechas de reunions.
Correo Electrónico: miamiradgroup@gmail.com, Telefono:(786) 300-1242
Miami Scleroderma Bilingual Support Group
From 1 to 2 pm in Spanish and from 2 to 3 pm in English
At South Miami Hospital - 6250 Sunset Drive Miami, FL 33143
Contact support group leader Monica Ramirez with any questions and for information on future meeting dates
Email: miamiradgroup@gmail.com, Phone: (786) 300-1242
Scleroderma Support Group of Volusia County, Florida
Coronado Community United Methodist Church, New Smyrna Beach, FL, Room 109
Second Sunday every other month
Time: 2 p.m.
Contact for directions/info: Eileen Savell, (386) 689-4431, email: eileensavell.sclero@gmail.com
Jacksonville, Florida Support Group
Meetings take place at The Salem Centre, 7235 Bonneval Road, Room 234, Jacksonville, FL 32256
Meetings will be held from 12 Noon to 2 p.m.
For more information please contact: Lorraine Meide: lbmeide@yahoo.com.
Central Florida Support Group (Orlando Area)
Meetings take place the second Saturday of every month online. To attend the virtual meeting, please contact Jan and Jenn at sclerodermacflsg@outlook.com.
Jan Gura: (407) 376-3076
Jenn Scheinberg: (407) 257-5908
Sarasota Area Support Group (Inactive)
Susan Marie Foundation, Scleroderma Support Group Meeting
Location: Lakes Regional Library, Room B, 152900 Bass Rd, Ft. Myers
RSVP to Sandie Sneed at sandie@smsclerodermafoundation.com
Tampa Area Support Group
New Generation Faith Ministries
8214 Peterson Road, Odessa, FL 33556
Meetings are held from 10 a.m. to 12 Noon on the first Saturday of every month.
Support Group Leader: Arlene Sweeney Cornwall (813) 442-6133, nurse2die4@hotmail.com
Learn more about support groups in Georgia from the Georgia Chapter.
Learn more about support groups in Idaho from the Northwest Chapter.
Learn more about support groups in Illinois from the Greater Chicago Chapter.
Learn more about support groups in Indiana from the Greater Chicago Chapter.
Learn more about support groups in Iowa from the Heartland Chapter.
Topeka Area Support Group
Topeka Shawnee County Library
1515 SW 10th Ave, Topeka, KS 66605
Hughes Room #205
For more information please contact Support Group Leader Emily Morris at (785) 215-1236 or emilymorris0417@hotmail.com
Wichita Support Group
This group has ceaed meeting. If you are interested in starting a group and serving as the support group leader, please contact SFinfo@scleroderma.org.
Baton Rouge Support Group
Contacts:
Del Anselmo, 225-756-2452 (home) or 225-324-3666 (cell) delzorah@gmail.com
Rebecca Nugent 225-270-5590
The Settlement Shopping Center, Suite C-1
7809 Jefferson Highway
Baton Rouge, LA 70810
Many, Louisiana Area Support Group
Beulah Baptist Church
31665 Hwy 191
Many, LA 71449
Please contact Support Group Leader Tina Dowden for more info at 936-332-3296 or sclerodermamany@gmail.com
New Orleans Area Support Group
University Medical Office Bldg. (UMOB)
2025 Gravier Street New Orleans, LA 70112
Meeting time is 6 p.m. to 8 p.m.
For more information, please contact the Support Group Leader Joy Mitchell - nolascleroderma@gmail.com or 504-301-7737.
Maine
Learn more about support groups in Maine, contact the New England Chapter.
Learn more about support groups in Massachusetts from the New England Chapter.
Learn more about support groups in Michigan, from the Michigan Chapter.
Learn more about support groups in Minnesota, from the Minnesota Chapter.
Learn more about support groups in Missouri, from the Missouri Chapter.
Learn more about support groups in Nebraska, from the Heartland Chapter.
Las Vegas Area Support Group
Check back soon for more information on upcoming meetings.
Learn more about support groups in New Hampshire, from the New England Chapter.
If you live in Burlington/Camden, Warren and Woodbury Counties, learn more about support groups from the Delaware Valley Chapter.
If you live in Northern New Jersey, learn more about support groups from the Tri-State Chapter.
To inquire about creating a support group, please contact SFinfo@scleroderma.org, or call (800) 722-4673.
Learn more about support groups in New York, from the Tri-State Chapter.
Durham
Triangle Area Support Group
Support Group Leaders: Teresa Stone, (919) 596-0560, m. (919) 323-9598, stone35@frontier.com
or Jane Pahner, 919-969-7676, japahner@yahoo.com
Bethesda Baptist Church, 1914 South Miami Boulevard, Durham, N.C.
2 p.m. - 4 p.m.
Fayetteville Scleroderma Support Group
The Fayetteville Scleroderma Support Group meets in the Medical Arts Center at 101 Robeson St., Room 106; 10 a.m. to 12 p.m. on the third Saturday of every month except for July and December.
Scleroderma patients and their loved ones are invited for support and information about the disease.
For more information, please contact Support Group Leaders:
Donna Thomas 910-308-9792 and Kim Sublett 910-237-2390 or via email at donnat55@embarqmail.com
Ohio
Learn more about support groups in Ohio from the Ohio Chapter.
Learn more about support groups in Oklahoma from the Oklahoma Chapter.
Learn more about support groups in Oregon from the Oregon Chapter.
If you live in Eastern Pennsylvania, learn more about support groups from the Delaware Valley Chapter. For Western Pennsylvania, see below.
Pittsburgh Area
Last Saturday of every month except where noted; 3 p.m. - 4:30 p.m.
Panera Bread (meeting room)
5430 Centre Avenue, Pittsburgh, PA 15232.
CONTACT: Caroline & Tim Graettinger SFgroupPITT@gmail.com; (724) 743-3642.
Read the group flyer
Contact: Manny & Sylvia Quevedo, 787-792-4038, or 787-792-3882, email lordrealty@lordrealty.com.
Learn more about support groups in Rhode Island from the New England Chapter.
Learn more about support groups in South Carolina from the South Carolina Chapter.
Black Hills Support Group
Rapid City Public Library
610 Quincy Street, Rapid City, SD 57701
Meetings are the first Wednesday of every month (except where noted) from 5:30 p.m. to 7 p.m. at the Rapid City Public Library.
For more information, visit www.systemicscleroderma.org, or contact Support Group Leader Ron Sasso, BHScleroderma@gmail.com, (605) 593-3759
Sioux Falls Support Group
For information about the Sioux Falls Support Group, contact the Heartland Chapter.
Learn more about support groups in Tennessee from the Tennessee Chapter.
Learn more about support groups in Texas from the Texas Bluebonnet Chapter.
Greater Salt Lake City Support Group
10 a.m. - 12 p.m. Mountain Time, First Saturday of the Month
Join Zoom Meeting: https://us02web.zoom.us/j/86806730209
Phone: (669) 900-6833; Meeting ID: 868 0673 0209
Zoom meeting passwords are listed in our monthly email. Contact the meeting support group leader if you have any questions about the group, or if you need the Zoom password.
Support Group Leader: Rachel Lando: (305) 761-4186, rachel.lando@gmail.com.
Meeting dates:
March 6, 2021 - Join on Zoom
April 3, 2021 - Join on Zoom
May 1, 2021 - Join on Zoom
June 5, 2021 - Join on Zoom
July 3, 2021 - Join on Zoom
August 7, 2021 - Join on Zoom
Vermont
Learn more about support groups in Vermont from the New England Chapter.
Fredricksburg, Virginia Support Group
Support Group Leader: Christine Hamblin, 540-720 -2079, hamblinc@aol.com
Mary Washington Hospital-Cafeteria
1001 Sam Perry Blvd.
Fredericksburg, VA 22401
All meetings start at 7 p.m.
Norfolk (Phone Support)
Contact: Audrey Gutterman, 757-855-5200, audgut@aol.com.
Richmond Area Support Group
Support Group Leaders: Christine Hamblin, 540-720 -2079, hamblinc@aol.com; Teresa Crumpler, 804-233-5809, cteresa@comcast.net; or Shirley Hill-Rasberry, 804-329-5223, tacnn@comcast.net
Learn more about support groups in Washington State from the Northwest Chapter.
Huntington Area Support Group
River Cities Community Church
4385 Route 60 East
Huntington, WV 25705
Thursday, March 7 at 6:30 p.m. in Room 301
Please park in the RED lot
You will see two doors with canopies, use the second door.
For more info contact Karen Baker
karen_baker69@yahoo.com
1-304-736-9882
Weirton (Telephone Support)
Contact: Sandra Fennych, 304-723-5177, sfennych@comcast.net
Learn more about support groups in Wisconsin from the Greater Chicago Chapter.
- En Los Angeles: Josephine Battyany, (310) 287-0793
- En New York: Beatriz Nunez, (631) 667-2655
- En Puerto Rico: Manny Quevedo, (787) 399-4038 (solo lunes a viernes, 8:30 a.m. 5 p.m.), lordrealty@lordrealty.com
Wilmington area Support Group
Support Group Leader- Betty Hughes- 1-910-231-7925
This group meets at the Pender County Public Library
103 S Cowan St, Burgaw, NC 28425
For upcoming meeting, please contact the Support Group Leader to confirm times and dates
