Patients & Newly Diagnosed:

Support Groups

The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting chapter and support group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.

Please click on a state to find a support group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our the national office at (800) 722-4673.

*Phone contacts are individuals who offer phone and email support, but do not run a support group.

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Alabama

Calera Area Support Group
Calera Public Library
9700 Hwy. 25
Calera, AL 35040
For more information, please contact Support Group Leader Jo Ann Bokenkamp
Email: JoAnnBokenkamp@yahoo.com
Phone: (334) 730-1363
Assistant Support Group Leader: Clarissa Hallowell
Email: bhmsclerofriends@yahoo.com
Phone: (205) 492-7482

Florence (Telephone Support)
Contact: Sarah Logan, 256-332-0048

Huntsville
Meetings are held at 4900 Meridian Street, Morrison Building, Room 101-A, Huntsville, AL 35762
Meetings go from 1 p.m. - 3 p.m. For information and direction, please call (256) 323-0715.

Arizona

Mohave Valley (Bullhead City) Support Group
Support Group Leader: Carol Hayward, 928-768-9323

Southern Arizona (Tucson) Support Group

Casas Adobes Congregational Church
6801 N. Oracle Rd.
Tucson, AZ 85704
Park in the East lot, off of Oracle Road
Support Group Leader: Pat Gould, (after 1 p.m.) 520-742-0199, pag90az@comcast.net
Support Group Leader: Matty Heenan 520-749-4709 or mattyheenan1@gmail.com

Please join us on the second Tuesday of the month from 1-3 p.m. Check below for 2018 dates:

January 9
February 13
March 13
April 10
May 8
No meetings in June, July and August
September 11
October 9
No meetings in November and December

For more information please contact Pat Gould at: (520) 742-0199

Phoenix Support Group
Support Group Co-Leaders:
Holly Roberts, 602-697-7727, hollyroberts@q.com
Diane Wilson, 615-293-2709, dwsclero@gmail.com

2019 Meetings:

January 26 - Abrazo Arrowhead Hospital (see below for new location)
February 23 - Arrowhead
March 23 - Natural Grocers 7th Ave. & Indian School
April 27 - Location to be Determined
May 18 - Arrowhead
June 22 - Location to be Determined
July - No Meeting
August - No Meeting
September 28 - Location to be Determined
October 26 - Potluck
November - No Meeting
December - No Meeting

Glendale address – Abrazo Arrowhead Hospital, 18701 N. 67th Ave., Glendale, Arizona - Sierra Room

Phoenix address – Abrazo AZ Heart Hospital, 1930 E Thomas Rd., Phoenix - 2nd floor classroom

Please email Holly or Diane to be included in monthly email list.

Arkansas

Benton Support Group
Support Group Leader: Pam Ray, 501-778-8737, pamray@aol.com

California

Fresno Support Group
Call for next meeting
Fig Garden Library, Fig Garden Meeting Room
3071 West Bullard Ave, Fresno, CA 93711
Contact: Mary Huckabee
Phone: (209) 620-6538
Email: maryhuckabee_sd@yahoo.com

Palo Alto Support Group
10:30 a.m. - 12:30 p.m., 2nd Saturday of each month
The Palo Alto Medical Foundation, 2nd Floor, Room N2 Conference Room
795 El Camino Real, Palo Alto, CA 94301
Contact: Rachel Ho
Phone: (415) 680-4389
Email: rachelhosf@gmail.com

Santa Rosa Support Group
10 a.m. - 12 p.m., 4th Saturday of the month
Sutter Medical Center Warrack Campus, 2449 Summerfield Rd, 2nd Floor, Santa Rosa, CA 95405
Contact: Jenene Robinson, jenjonrob@att.net, (707) 894-3605
**Schedule, location, topics or speakers subject to change. Please contact to confirm.

Turlock Support Group
10 a.m. – 12 p.m. Call for next meeting date.
Raley’s Store, 2900 Geer Road, Turlock, CA
Contact: Mary Huckabee
Phone: (209) 620-6538
Email: maryhuckabee_sd@yahoo.com

Southern California (Note: The Greater San Diego Chapter is now a part of the Southern California Chapter)

Colorado

Learn more about support groups in Colorado from our chapter.

Connecticut

Learn more about support groups in Connecticut from our Tri-State Chapter.

District of Columbia

Learn more about support groups in Washington D.C. from our chapter.

Delaware

Learn more about support groups in Delaware from our Delaware Valley Chapter.

Florida

If you live in Southeast Florida, learn more about support groups from the Southeast Florida Chapter. For other areas of Florida, look below:

Scleroderma Support Group of Volusia County (Florida)
Coronado Community United Methodist Church, New Smyrna Beach, FL, Room 109
Second Sunday every other month
Time: 2 p.m.
Contact for directions/info: Eileen Savell, (386) 689-4431, email: eileensavell.sclero@gmail.com

Jacksonville, Florida Support Group
Meetings take place at The Salem Centre, 7235 Bonneval Road, Room 234, Jacksonville, FL 32256
Meetings will be held from 12 Noon to 2 p.m. on the following 2019 dates:

January 12
February 9
March 9
April 13
May 11
June - No Meeting
July - No Meeting
August 10
September 14
October 12
November 9
December - No Meeting

For more information please contact: Co-Leader Sharon Thomdszski: netm0m@aol.com, or Co-Leader Lorraine Meide: lbmeide@yahoo.com.

Lady Lake Scleroderma Support Group
Support Group Leader: Jean Clark (352) 409-0429

Central Florida Support Group (Orlando Area)
Meetings take place at Exit Realty Office
401 S. Rosalind Ave., Orlando, Florida 32801

Upcoming 2019 Meetings:

Saturday, June, 8, 2019, 10 a.m. - 11:30 a.m.
"Panel Discussion on Scleroderma"
UCF Health Lake Nona Office, 9975 Tavistock Lakes Blvd., Orlando, Florida
July 13
September 7
November 2

For more information please contact:
Jan Gura: (407) 376-3076, JRGura@earthlink.net
Jennifer Scheinberg: (407) 257-5908, JPScheinberg@gmail.com

Sarasota Area Support Group
Waldemere Medical Plaza, 1921 Waldemere St., Sarasota, Florida
2nd Floor, Mimosa Room (located directly across from Sarasota Memorial Hospital on Waldemere Street).
Support Group Leader: Cindy Grantham-Spears (941) 539-4479, cindygrantham941@gmail.com
Please contact the Support Group Leader to confirm future meetings.

Susan Marie Foundation, Scleroderma Support Group Meeting
Location: Lakes Regional Library, Room B, 152900 Bass Rd, Ft. Myers
RSVP to Sandie Sneed at sandie@smsclerodermafoundation.com

2019 Meetings:

January 12, 2019: Conference Room B, 10 a.m. to 12 Noon
March 2, 2019: Conference Room B, 10 a.m. to 12 Noon

Tampa Area Support Group
New Generation Faith Ministries
8214 Peterson Road, Odessa, FL 33556

Meetings are held from 10 a.m. to 12 Noon on the first Saturday of every month.

Upcoming meeting: June 1, 2019

Support Group Leader: Arlene Sweeney Cornwall (813) 442-6133, nurse2die4@hotmail.com

Georgia

Learn more about support groups from our Georgia Chapter.

Idaho

Southern Idaho Scleroderma Support Group
For Patients, Family Members, and Friends
Location: St. Luke's Meridian Medical Center, 520 S. Eagle Rd., Meridian, ID 83642
Directions & Parking: Enter from Eagle Road and go to the main entrance. Parking is located at the front of the building.

Time: 10 a.m. – 12 Noon

Meeting Schedule:

Saturday, February 16, 2019
Saturday, March 16, 2019
Saturday, April 20, 2019
Saturday, May 18, 2019
Saturday, August 17, 2019
Saturday, September 21, 2019
Saturday, October 19, 2019

Event Schedule:

June 22, 2019

Scleroderma Foundation Day
Seattle, Washington
Mariners Game
https://www.mlb.com/mariners/tickets/specials/scleroderma-foundation
Enter Promo Code: SCLERODERMA

July 19-21, 2019

National Patient Education Conference
Chicago, Illinois

August 24, 2019

Idaho Arthritis Walk
8-11 p.m.
Kleiner Park, Meridian, Idaho

November 9, 2019

Idaho Patient Education Conference
St. Luke’s Regional Medical Center (Boise, Idaho)

For More Information:
Dee Burlile, M.E.d., Katy Koval, M.A.T., Selina Paul, and Sean Burlile, Ph.D.
scleroderma.idaho@gmail.com or (800) 722-4673

Illinois
Learn more about support groups from our Greater Chicago Chapter.

Indiana

Central Indiana Scleroderma Self Help Group (TWO LOCATIONS)
North Location - 7250 Clearvista Drive, Indianapolis, IN 46256
#CHN 7250, Visionary Ballpark Conference
This is on the Community Hospital North campus in the 7250 building, second floor

South Location - Community Hospital South, 1402 East County Line Rd., Indianapolis, IN 46227
Conference Rooms 5 & 6

Meetings include time to meet and greet and share stories and information. Some of the meetings will have guest presenters. The atmosphere is informal and later arrivals are welcome.

Contact: Maureen Hays at mhays85@att.net, (317) 781-9726

Iowa

For more information about support groups in Iowa, contact the Heartland Chapter.

Kansas

Topeka Area Support Group
Topeka Shawnee County Library
1515 SW 10th Ave, Topeka, KS 66605
Hughes Room #205
First Meeting will be September 14 from 6 p.m. - 8 p.m.
For more information please contact Support Group Leader Emily Morris at (785) 215-1236 or emilymorris0417@hotmail.com

Wichita Support Group
Support group meets the second Saturday of every month at 10:30 a.m.
For meeting location, please contact Support Group Leader Sharon Leiker (316) 683-8335, leikers@cox.net

Louisiana

Baton Rouge Support Group
Contacts:
Del Anselmo, 225-756-2452 (home) or 225-324-3666 (cell) delzorah@gmail.com
Rebecca Nugent 225-270-5590
The Settlement Shopping Center, Suite C-1
7809 Jefferson Highway
Baton Rouge, LA 70810

Many, Louisiana Area Support Group

Beulah Baptist Church
31665 Hwy 191
Many, LA 71449
Please contact Support Group Leader Tina Dowden for more info at 936-332-3296 or sclerodermamany@gmail.com

New Orleans Area Support Group
University Medical Office Bldg. (UMOB)
2025 Gravier Street New Orleans, LA 70112
Meeting time is 6 p.m. to 8 p.m.
For more information, please contact the Support Group Leader Joy Mitchell - nolascleroderma@gmail.com or 504-301-7737.

Maine
For more information about support groups in Maine, contact the New England Chapter.

Massachusetts

For more information about support groups in Massachusetts, contact the New England Chapter.

Michigan

For more information about support groups in Michigan, contact the chapter.

Minnesota

For more information about support groups in Minnesota, contact the chapter.

Missouri

For more information about support groups in Missouri, contact the chapter.

Nebraska

For more information about support groups in Nebraska, contact the Heartland Chapter.

Nevada

Las Vegas Area Support Group

Check back soon for more information on upcoming meetings.

New Hampshire

For more information about support groups in New Hampshire, contact the New England Chapter.

New Jersey

For support groups in Burlington/Camden, Warren and Woodbury, contact the Delaware Valley Chapter.

For support groups in Northern New Jersey, contact the Tri-State Chapter.

New Mexico

To inquire about creating a support group, please contact SFinfo@scleroderma.org, or call 800-722-4673.

New York

For information about support groups in New York, contact the Tri-State Chapter.

North Carolina

Durham
Triangle Area Support Group
Support Group Leaders: Teresa Stone, (919) 596-0560, m. (919) 323-9598, stone35@frontier.com
or Jane Pahner, 919-969-7676, japahner@yahoo.com
Bethesda Baptist Church, 1914 South Miami Boulevard, Durham, N.C.
2 p.m. - 4 p.m.

2019 Meeting Dates

January 13
February 10
March 10
April 14
May 19
June 9
July 14
August 11
September 8
October 13
November 10
December - no meeting

Fayetteville Scleroderma Support Group
The Fayetteville Scleroderma Support Group meets in the Medical Arts Center at 101 Robeson St., Room 106; 10 a.m. to 12 p.m. on the third Saturday of every month except for July and December.
Scleroderma patients and their loved ones are invited for support and information about the disease.
For more information, please contact Support Group Leaders:
Donna Thomas 910-308-9792 and Kim Sublett 910-237-2390 or via email at donnat55@embarqmail.com

Ohio

For more information about support groups in Ohio, contact the chapter.

Oklahoma

For more information about support groups in Oklahoma, contact the chapter.

Oregon

For more information about support groups in Oregon, contact the chapter.

Pennsylvania

WESTERN PENNSYLVANIA

Pittsburgh Area

Last Saturday of every month except where noted; 3 p.m. - 4:30 p.m.
Panera Bread (meeting room) - please note the new location.
5430 Centre Avenue, Pittsburgh, PA 15232.

CONTACT: Caroline & Tim Graettinger SFgroupPITT@gmail.com; (724) 743-3642.

2019 Dates

January 26
February 23
March 30
April 27
May 25
June 29
July 27
August 31
September 28
October 26
November 30
December 28

For more information about additional support groups in Pennsylvania, contact the Delaware Valley Chapter.

Puerto Rico

San Juan

Contact: Manny & Sylvia Quevedo, 787-792-4038, or 787-792-3882, email lordrealty@lordrealty.com.

Rhode Island

For more information about support groups in Rhode Island, contact the New England Chapter.

South Carolina

For more information about support groups in South Carolina, contact the chapter.

South Dakota

Black Hills Support Group

Rapid City Public Library
610 Quincy Street, Rapid City, SD 57701

Meetings are the first Wednesday of every month (except where noted) from 5 p.m. to 7 p.m. at the Rapid City Public Library.

June 12* (2nd Wednesday)
July 10* (2nd Wednesday)
August 7
September 4
October 2
November 6
December 4

For more information, please contact Support Group Leader Ron Sasso
Email: BHScleroderma@gmail.com, Phone: (605) 593-3759

Sioux Falls Support Group

For information about the Sioux Falls Support Group, contact the Heartland Chapter.

Tennessee

For more information about support groups in Tennessee, contact the chapter.

Texas

For more information about support groups in Texas, contact the chapter.

Utah

Utah Regional Support Group
Support Group Leader: Rachel Lando: (305) 761-4186, ScleroSLC.Rachel@gmail.com
Info on meeting dates to come.

Vermont

For more information about support groups in Vermont, contact the New England Chapter.

Virginia

Fredricksburg, Virginia Support Group
Support Group Leader: Christine Hamblin, 540-720 -2079, hamblinc@aol.com

Mary Washington Hospital-Cafeteria
1001 Sam Perry Blvd.
Fredericksburg, VA 22401

2018: 9/27, 10/25
2019: 2/28, 3/28, 4/25 and 5/23

All meetings start at 7 p.m.

Norfolk (Phone Support)
Contact: Audrey Gutterman, 757-855-5200, audgut@aol.com.

Richmond Area Support Group
Support Group Leaders: Christine Hamblin, 540-720 -2079, hamblinc@aol.com; Teresa Crumpler, 804-233-5809, cteresa@comcast.net; or Shirley Hill-Rasberry, 804-329-5223, tacnn@comcast.net

Washington

For more information about support groups in Washington, contact the chapter.

West Virginia

Huntington Area Support Group
River Cities Community Church
4385 Route 60 East
Huntington, WV 25705

Thursday, March 7 at 6:30 p.m. in Room 301
Please park in the RED lot
You will see two doors with canopies, use the second door.
For more info contact Karen Baker
karen_baker69@yahoo.com
1-304-736-9882

Weirton (Telephone Support)
Contact: Sandra Fennych, 304-723-5177, sfennych@comcast.net

Wisconsin

Green Bay/Northeast Wisconsin
Dates/Times: Second Wednesday of every month, 1-3 p.m.
Location: Bellin Health Family Medical & Wellness Center Bellevue
3263 Eaton Road
Green Bay, WI 54311

Support Group Leader: Valarie Hutchison
920-544-9676
sclerodermawi@gmail.com

Milwaukee Area

Dates/Times: Third Saturday of every month, 10 a.m. - 12 p.m.
Location: Froedtert Hospital (Community Conference Room 2)
8700 W. Watertown Plank Rd.
Milwaukee, WI 53226
Community Conference Room 2 located in the Wisconsin Athletic Club building.
Enter building on the 87th Street side and look for Community Conference Room entrance.

Support Group Leader:
Kelly Kohls, sclerodermamilw@gmail.com

For more information about support groups in Wisconsin, please contact the Greater Chicago Chapter.

Spanish-Speaking Contacts

In Los Angeles: Josephine Battyany, (310) 287-0793
In NY: Beatriz Nunez, 631-667-2655
In Puerto Rico: Manny Quevedo, 787-399-4038 (Monday – Friday 8:30 a.m. – 5 p.m. only), lordrealty@lordrealty.com

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Wilmington area Support Group

Support Group Leader- Betty Hughes- 1-910-231-7925

This group meets at the Pender County Public Library

103 S Cowan St, Burgaw, NC 28425

For upcoming meeting, please contact the Support Group Leader to confirm times and dates