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Local Resources

State-Specific RARE DISEASE RESOURCE LISTS - State Resources  for Families and Professionals.  Go to:

University of Toledo Scleroderma Program
The Ruppert Center at University of Toledo Health Center Campus
3120 Glendale Ave, 1st floor 
Toledo, Ohio 43614
Phone: 419-383-4271
Fax: 419-383-6244
Appointments: 419-383-3627

Cleveland Clinic Scleroderma Program
The Cleveland Clinic
9500 Euclid Avenue, Desk A50
Cleveland, OH 44195
Appointments: 216-444-9945

The Ohio State University Wexner Medical Center Scleroderma Clinic
2050 Kenny Road
Suite 2200, Pavilion
Columbus, OH 43221
Appointments: 614-293-4837 

Past Presentations with Helpful Information:

Living Well with Scleroderma:  Elaine Furst, RN, BSN, MA, presented "Living Well with Scleroderma" at our Virtual Support Group. Download Ms. Furst's meeting notes here

Dental Issues and Scleroderma:  Dr. David Leader presented about Dental Issues and Scleroderma in our Virtual Support Group on Tuesday, July 9. Download Dr. Leader's presentation here >>

Coping with Stress and Long-term Ilness by Barbara Brugler, LISW (article)

Scleroderma, The Basics:  View Dr. Altorok's presentation here>>

Debunking Myths About Dietary Supplements:  View Dr. Cathy Rosenbaum's presentation here>>

Occupational Therapy's Role in Scleroderma Symptom Management:  View presentation by Kim Forehand, MOTR/L here>>

Exercise and Scleroderma:  View presentation by Dr. Deb Kegelmeyer here>>

The Patient - Doctor Relationship:  View presentation by Elaine Furst, RN, BSN, MA here>>

Scleroderma Lung Disease:  View Presentation by Dr. Robert Schilz here>>

Pulmonary Artery Hypertension and Scleroderma Treatment Options:  View presentation by Dr. Jean Elwing here>>

Environmental Factors in Scleroderma:  View presentation by Dr. Richard Silver here>>

Management Challenges of the Gastrointestinal Tract in SSc: - View presentation by Dr. Tracy Frech here>>

Social Security Administration 101: - View presentation by Daniel Damceski here>>

Scleroderma - An Overview: - View presentation by Dr. Ali Ajam here>>

More resources will be added soon!