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Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

2019-KathleenRileyPhotography-0763-(ZF-8709-93620-1-310).jpg

Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

2019-KathleenRileyPhotography-7500-(ZF-8709-93620-1-166).jpg

Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

2019-KathleenRileyPhotography-0850-(ZF-8709-93620-1-371).jpg

Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

2019-KathleenRileyPhotography-0576-(ZF-8709-93620-1-116).jpg

Welcome to the Minnesota Chapter Website!

We are dedicated to providing support for people living with scleroderma, caregivers, and the general public. We want to help enhance the quality of life for patients

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COVID-19 UPDATE, May 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More

 

 

SAVE THE DATE!

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Mark your calendars, we're gearing up for the VIRTUAL 2020 Stepping Out to Cure Scleroderma 5K Walk on Sunday, June 14, 2020!

Walk around your living room, around the block, in your backyard or on your treadmill - wherever you can safely practice social distancing AND walk in memory of or in honor of a Scleroderma Warrior! 

While we may not be walking together in person, we can still gather together as a community supporters virtually while supporting Scleroderma Foundation - MN Chapter programs and services and raising money for research and funding. We encourage you to create your virtual team, consider a generous donation, and take pictures of the creative ways you'll be participating. Make sure to post your pictures on Facebook, Instagram and Twitter with #MySteppingOutSelfieMN!

Register your team and/or donate online.

 

 

About Us

Our Mission:

The mission of the Scleroderma Foundation Minnesota Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

 

 

Contact Information:

Scleroderma Foundation, Minnesota Chapter
P.O. Box 240244
Apple Valley, MN 55124

Phone: 877-794-0347
Email: MNChapter@scleroderma.org

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Board of Directors: 

Kris Maas, President
Dawn Matuza, Vice President
Deborah Orman, Secretary
JoAnn Borden, Treasurer

Elaine Robashkin
Sue Zeigler
Renate Melillo
Jason Jordan
Amy Jensen

Dr. Jerry Molitor, Medical Advisor

Breaking News: New Support Group!

Brainerd.jpgHey, Brainerd residents, we have a new support group created just for you! We are constantly amazed by the drive, kindness and selflessness of the Scleroderma Foundation support group leaders, and no one embodies all of those qualities more than Amy Jensen, who launched the Brainerd Support Group in November 2018. 

We chatted with Amy and asked her about her inspiration, mission and goals for the Brainerd Support Group. Read on below!

1. Why did you choose to start a support group in the Brainerd area? 
“I started attending the West Metro (in Edina) support group a couple of years ago, after officially receiving my diagnosis. I had been skeptical about attending a support group, thinking that it would have the potential to be a negative or depressing experience. To my pleasant surprise, attending a support group was a very positive experience, where I was able to ask other group members about their experiences and learn more about scleroderma and how it affects each person differently. My husband and I relocated to the Brainerd area from the Twin Cities in Spring 2018. I volunteered to start a support group here, in hopes to provide a similar experience to others who are going through scleroderma.” 

2. How many members did you have when it started? Is it growing and where are you at now? 
We had four of us (including my husband and me) at our very first meeting in November 2018. We continue to be at four members but are hoping to grow as the word spreads about our group. I recently contacted a large health system in the area, and they printed our support group information in their provider newsletter. We are continuing to look for other ways to spread the word.” 

3. What kinds of activities and events do you participate in? 
“With our support group, we have been focusing on getting to know and support each other and share information. As part of my personal journey with scleroderma since being diagnosed four years ago, I've attended the local Health and Wellness Conferences each fall, and the Stepping Out Scleroderma walks at Lake Phalen. My husband and I also went to the national Scleroderma Conference, which was an amazing experience.”

4. What has been the most rewarding part of starting the support group? 
“Providing a positive and safe environment for people with scleroderma.”

5. What are your long-term goals for this group? 
“My primary long-term goal for the group is to continue to grow awareness of scleroderma in the Brainerd Lakes area. Additionally, I hope this group serves as a social network so patients and their caregivers don't feel isolated in their journey.”

6. How has the group benefitted members? 
Being diagnosed with scleroderma can be scary. The support group is a safe place where members can share their experiences and ask questions. We keep it positive and supportive.”

Want to join this support group? Learn more about upcoming meetings on our Facebook page or on our website!

 

 

 


 

Announcing the Karen Bryan Memorial Scholarship Fund

Karen

It is with heavy hearts that we announce the passing of long-time support group leader and Scleroderma Warrior, Karen Bryan.
After being diagnosed in 2001, Karen continued to find joy in new activities, like kayaking, yoga and ZUMBA. She loved attending concerts and traveling with her husband, Bob. They attended the National Patient Education Conference in Philadelphia in 2018 and they loved to spend winters in Florida. Karen never lost her passion for living, despite the many challenges that scleroderma threw at her. 
We miss her dearly, but we will be inspired by her example forever.

In honor of Karen and her passion for scleroderma education and awareness, we would like to announce the Karen Bryan Memorial Scholarship Fund. This fund will raise money to provide scholarships for scleroderma patients to attend the annual National Patient Education Conference.

If you are interested in donating to the Karen Bryan Memorial Scholarship Fund, please make checks payable to the Scleroderma Foundation - MN Chapter with notation to the Karen Bryan Memorial Scholarship Fund.

We appreciate your generosity and donation to Karen's legacy!

Karen kayaking

   

 

A very special thank you to our sponsors!

National Sponsors

 
Diamond National Sponsors
 
Actelion Plain   Boehringer Ingelheim Plain