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Upcoming Events

Sclero-What? Ninth Annual Scleroderma Regional Education Day

The 2021 Heartland Chapter Education Day is happening on Zoom, Saturday, October 9th, 2021, from 9:00 a.m. to Noon CST. This education day is FREE and open to the public. 

The event will include exciting door prize drawings. REGISTER for a chance to win!

EVENT ACCESS:

Zoom Meeting ID & URL (audio and video): 313 046 7732; https://us02web.zoom.us/j/3130467732
Phone (audio only): US: +1 253 215 8782 or +1 346 248 7799
If prompted, enter meeting ID followed by pound sign: 3130467732#

AGENDA:

Time Presentation Speaker 
9:00 am 
9:10 am
WELCOME
Includes introductions and opening statements
Lacey Bodnar
President of Heartland Chapter
9:10 am 
10:00 am
Scleroderma 101 Flavia Castelino, MD
Director, Scleroderma Program
Director, Research Training Assistant Professor of Medicine, Harvard Medical School
10:00 am 
10:10 am
Short Break   
10:10 am 
11:00 a.m.
Interstitial Lung Disease in Scleroderma: What questions should I be asking?
Jane Dematte D'Amico, MD
Professor of Medicine (Pulmonary and Critical Care), Feinberg School of Medicine, Northwestern University
11:00 am 
11:10 am
Short Break   
11:10 am -
12:00 pm
Therapeutic Plasma Exchange (TPE)
Treatment for Scleroderma
Ed Harris
Director, Scleroderma Education Project
 
12 p.m. EVENT WRAP-UP & CONCLUSION
Includes any final questions and where to find a recording of the program
Heartland Chapter Board of Directors

SPEAKER BIOS:   

   Flavia Castelino, MD

 Dr CastelinoDr. Flavia Castelino is the Director of the Scleroderma Program at Massachusetts General Hospital and an Assistant Professor of Medicine at Harvard Medical School. She is a board-certified physician in the Division of Rheumatology, and she specializes in the treatment of scleroderma and connective tissue disease-associated interstitial lung disease (CTD-ILD). Dr. Castelino founded the MGH Scleroderma Program with a focus on providing outstanding comprehensive care for patients with scleroderma and related conditions. Dr. Castelino is additionally a principal investigator on several clinical trials evaluating novel therapies for the treatment of scleroderma.

 

   Jane Dematte D'Amico, MD

DAmico.jpg

 Dr. Dematte is the Director of the Interstitial Lung Disease Program at Northwestern University. Her clinical interest and expertise are in the evaluation and management of interstitial lung disease with a particular focus on lung disease associated with connective tissue diseases such as scleroderma. More recently, her research interests have expanded in working with our basic scientists to explore the pathobiology of inflammation, injury and fibrosis in the lungs of patients with ILD and pulmonary fibrosis. Dr. Dematte completed her medical school, residency, and fellowship at Stony Brook University.  She is board certified in Internal Medicine, Pulmonary Disease, and Critical Care Medicine.

 

  Ed Harris, MD

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 Harris — originally the founder and CEO of a software company — is a Scleroderma patient and researcher. Mr. Harris currently serves as Director of the Scleroderma Education Project, a non-profit venture with a goal of providing unbiased, up-to-date, research-based, comprehensive information about systemic scleroderma diagnosis and treatments. While the main focus is on patient education, some of the information on the scleroderma Education Project website (SclerodermaInfo.org) is targeted at physician education as well.  Mr. Harris has dual master’s degrees in Research Clinical Psychology and Computer Science from University of Wisconsin-Madison.

 
 

 facebook logoVisit the Scleroderma Foundation Heartland Chapter Facebook page after the event for session recordings.

 

 

Ongoing Events

"Paint Away Scleroderma"

Barbara Burke is available to face paint for private parties to raise money for scleroderma. For more information or to book your event, please contact Barbara at (515) 321-0621 or bb.sundance2011@gmail.com


Past Events

2021 Stepping Out to Cure Scleroderma

Stepping Out Logo Keeping Our PromiseOur 2021 Stepping Out to Cure Scleroderma Fundraiser occured VIRTUALLY on Saturday, June 12, 2021. If you missed the event but would still like to donate to support the Heartland Chapter, it's not too late! You can donate securely online today by visiting our Stepping Out to Cure Scleroderma website.