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Education

Sclero-What? Eighth Annual Scleroderma Regional Education Day

The 2020 Patient Education Day will be held via Zoom on Saturday, October 10, 2020, from 9:00 a.m. to 12 Noon. We are pleased to announce that our keynote speaker will be Carol Feghali−Bostwick, Ph.D. Dr. Feghali−Bostwick will present "Scleroderma Research: What's New?"

Meeting ID: 313 046 7732
Phone (audio only): US: +1 253 215 8782 or +1 346 248 7799
If prompted, enter meeting ID followed by pound sign: 3130467732#
Meeting URL (audio and video): https://us02web.zoom.us/j/3130467732

Time Presentation Speaker 
9:00 - 9:30 a.m. WELCOME RECEPTION
Includes introductions and opening statements
Lacey Bodnar
President of Heartland Chapter
9:30 - 10:20 a.m. Scleroderma Research: What's New? Carol Feghali-Bostwick, Ph.D.
SmartState and Kitty Trask Holt Endowed Chair, Professor of Medicine at Medical University of South Carolina (MUSC)
10:20 - 10:30 a.m. Short Break   
10:30 - 11:15 a.m. A Guide to Scleroderma Treatment Options
Marcus Snow, M.D.
Assistant Professor of Internal Medicine, Division of Rheumatology at University of Nebraska Medical Center (UNMC)
11:15 - 11:20 a.m. Short Break   
11:20 a.m. - 12 p.m. Nutrition Support for a Balanced Inflammatory and Immune Response
Kathy Millington, R.D.
Registered Dietician and Nutritional Health Coach at Natural Grocers, Lincoln, NE
 
12 p.m. EVENT WRAP-UP & CONCLUSION
Includes any final questions and where to find a recording of the program
Heartland Chapter Board of Directors

 

RFTC Carol Feghali-Bostwick sq Marcus Snow MD Kathy Millington RD
Carol Feghali-Bostwick, Ph.D.
Dr. Feghali-Bostwick was recruited to the Division of Rheumatology and Immunology in 2013 as the SmartState and Kitty Trask Holt Endowed Chair and Professor of Medicine at Medical University of South Carolina. Dr. Feghali-Bostwick earned her Ph.D. in Microbiology and Immunology at Tulane University in New Orleans, LA. Dr. Feghali-Bostwick leads a team of clinical and basic scientists focusing on the pathogenic mechanisms underlying fibrosis whose goal is to identify novel targets for therapy and develop new anti-fibrotic strategies for scleroderma/systemic sclerosis, idiopathic pulmonary fibrosis, and other fibrosing conditions. Dr. Feghali-Bostwick also contributes to the mentoring of young physicians and academic scientists.
Marcus Snow, M.D.
Dr. Snow joined Nebraska Medicine in 2015 after over 5 years in private practice in Omaha. He completed his Rheumatology Fellowship at the University of Nebraska Medical Center College of Medicine and currently serves as an Assistant Professor in Internal Medicine, Division of Rheumatology. Dr. Snow sees patients on a regular basis at Village Pointe Clinic and does travel to Columbus, NE for clinic twice a month. His medical interests include general rheumatology (with special interest in Scleroderma and Raynaud's Phenomenon) and when not working, he enjoys swimming, biking, and golfing.
Kathy Millington, R.D.
Kathy Millington is a registered dietitian and she holds the position of Nutritional Health Coach at Natural Grocers in Lincoln, Nebraska. Kathy has a Bachelor of Science degree in dietetics from the University of Nebraska-Lincoln, and she completed her dietetic internship at the University of Iowa. Kathy enjoys educating people on how to use nutrition to support their health through free nutrition coaching sessions, nutrition presentations, and visiting with customers in the aisles at Natural Grocers.


Stepping Out to Cure Scleroderma

It's not too late to donate!  Even though both Stepping Out walks occurred in June, donations are still accepted and would be much appreciated. If the pandemic has taught us one thing, it's that people who have scleroderma are more vulnerable to infectious diseases because their immune system is already compromised. Funding our mission of support, education, and research is the only way to move forward. 

2020 Omaha Stepping Out to Cure Scleroderma Walk Fund Raiser and Family Day

The Nebraska event was held Sunday, June 7, 2020, as a virtual event. Visit the Facebook event page for more information and the latest updates.

2020 Des Moines Stepping Out to Cure Scleroderma Walk Fund Raiser and Family Day

The Iowa event was held Saturday, June 13, 2020, as a virtual event. Visit the Facebook event page for more information and the latest updates.

"Paint Away Scleroderma"

Barbara Burke is available to face paint for private parties to raise money for scleroderma. For more information or to book your event, please contact Barbara at (515) 321-0621 or bb.sundance2011@gmail.com