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COVID-19 UPDATE, May 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More
What's New at the Scleroderma Foundation Greater Chicago ChapterStepping Out to Cure Scleroderma Walks Are Going Virtual!
To minimize the spread of COVID-19 and protect our scleroderma community we have decided to transition all in-person walks planned for this year to an online experience. We hope you will join us as a “virtual walker” on August 22. Whether walking in the park, down the street or on a treadmill, we can still show our support for scleroderma patients and have fun doing it!
Walk registration now open! Register, donate and fundraise!! More info on our events page.
Upcoming Patient Education Webinars
Discussion for Caregivers and Family Members - Tuesday, July 14
If you're the family member or friend of someone who has been diagnosed with scleroderma, you may have a lot of questions about this complex disease. This webinar will address the support role that you play and help answer your questions. MORE INFO & REGISTRATION Advances and Future Aims in Managing Pulmonary Arterial Hypertension - Wednesday, July 29
Dr. Dustin Fraidenburg will describe the basics of Pulmonary Arterial Hypertension in scleroderma (SSc-PAH) including how it is diagnosed. He will also discuss current therapies used to treat SSc-PAH and recent advances in the therapeutic approach. His presentation will also highlight current research and future targets in the management of SSc-PAH. MORE INFO & REGISTRATION
Yoga for Scleroderma: Empower yourself to relieve symptoms and reduce stress- Tuesday, August 4
Presented by Erin Shanthi Haddock, C-IAYT & Lori Pierce, RYT 200. Yoga is truly made for everybody. Our certified “Yoga for Scleroderma” instructors who will show you that the foundations of yoga really can benefit EVERYONE. MORE INFO & REGISTRATION
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Our MissionImproving the lives of patients. Making strides toward a cure.The mission of the Scleroderma Foundation is focused on three critical goals:
Whether you're a scleroderma patient, have a loved one struggling with scleroderma, or just want to learn more about the disease, we have resources, education events and fundraisers you'll love! |
Contact InformationStephanie Somers Gresh, Executive Director Scleroderma Foundation Greater Chicago Chapter |
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Board of Directors Mary Carns |
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Medical Advisory Board |
Patient Education
Discussion for Caregivers and Family Members A Galaxy Not Far Away: Recent Advances in Managing Pulmonary Arterial Hypertension Yoga for Scleroderma: Empower yourself to relieve symptoms and reduce stress |
Questions about scleroderma? We have answers! We are committed to providing patients with the knowledge they need to live better. For the latest information about upcoming educational webinars, videos and other resources, visit sclerodermaconference.org. For presentations and videos from past conferences, take a look at our SlideShare and YouTube sites.
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Patient Support
Support groups provide a forum to share thoughts, concerns, information and meet others who understand the experience of living with scleroderma. Find a support group in your area or connect with others on our online support community, Inspire.
Looking to start a new support group in your area? Contact us at 312-660-1131.
Diamond National Sponsors
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