Login
More gifts.jpg

E-Newsletter Signup

Please leave this field empty

Click Here To See Our National Calendar

Local Events

Due to public safety concerns with Coronavirus (COVID-19), many of the March and April events have been cancelled and some may be rescheduled

APRIL

What: Race 4 Linda 5K and 1-mile Fun Walk
When: Saturday, April 18, 2020; postponed; date will be rescheduled
Where: Milton Hershey School, 635 Brook Drive, Hershey, PA 17033
Registration: click here
Details: The Race 4 Linda is an annual 5K and 1 mile fun walk to raise funds and awareness for Scleroderma. It is held in memory of Linda Hayman and is organized by her daughter, Megan, son Ryan, friends and family. Since the first race, over $50,000 has been raised for Scleroderma research! 

What: 9th Annual Cruise for a Cure
When: Saturday, April 25, 2020 (raindate Sunday, April 26) rescheduled to October 3 (rain date October 4)
Time: 11:00 am - 4:00 pm. Judging starts at noon and trophies awarded at 3:00 pm.
Where: new location - Pike Creek Shopping Center, 4700 Limestone Rd, Wilmington, DE 19808. Paved parking. 
Registration online: click here to register, donate or sponsor
Pre-registration per car $20, Day of event registration per car $25
More information:
email Angie or call 302-425-5054
Details: 
Car show featuring classic, antique, street rods and muscle cars. 9th Annual Cruise for A Cure in loving memory of Al Crowl to benefit the Scleroderma Foundation Delaware Valley Chapter. Help us find a cure for scleroderma. The event is free to the public to attend and all are welcome. Plenty of great music, refreshments, and 50/50 on the paved lot of Pike Creek Shopping Center. Prizes and trophies awarded to top 30 cars judged. Goodie bags and dash plaques to first 100 registered.

What: More than Scleroderma Education Event
When: Tuesday, April 28, 2020 - cancelled
Registration time: 6:00 pm
Start time: 6:30 pm
Where
The Westin Mount Laurel, 555 Fellowship Road, Mt. Laurel Township, NJ 08054
Registration: call 855-415-7492
Details
Family and friends are welcome! Complimentary parking and light refreshments provided.
This event is sponsored by Boehringer Ingelheim, Inc. (BIPI) and the featured speakers are affiliated with BIPI.
More information: click here for flyer


MAY

What
: Women's Health Expo
When: TBD
Where: Blackwood, NJ

What
Harrisburg Senators Night Out at the Ballpark - Senators vs. Altoona Curve
When: Thursday, May 14, 2020 - cancelled
Game Time: TBD
Ticket Cost: $11
Details: Join us for a fun night of baseball. This event is a Central PA Support Group Fundraiser.

What: American Thoracic Society International Conference - Philadelphia
When: Saturday, May 16, 2020 - cancelled
Time: 10:00 am - 2:00 pm
WherePhiladelphia Marriott Downtown Hotel, 1201 Market Street Philadelphia, PA 19107 | Meeting Room (Franklin Hall, 4th fl.)
DetailsThe American Thoracic Society Public Advisory Roundtable (PAR) is pleased to invite you to our 14th annual FREE patient and family forum “Be a Champion for Your Lung Health”
More information: click here for flyer

JUNE

What: Honor the Fight for Scleroderma Luncheon
When: Saturday, June 6
Time: 1:00 - 5:00 pm
Where: American Legion, 69147 Chesnut Street, Upper Darby, PA 19082
Cost: $20
Flyer: click here
More information: email Latasha or call/text 267-584-9205
Details: Food, music, dancing, gift raffles, and more! Speaker from the Scleroderma Foundation. Join us to honor people living and fighting with scleroderma. We will educate the families of those with scleroderma about hope and raise awareness about scleroderma. We hope you can join us and bring your friends and family too!

What: Central PA Family Fun Day Fundraiser
When: Sunday, June 7 - cancelled 
Time: 11:00 am - 4:00 pm
Where: West Fairview Annex in East Pennsboro Township, PA
Tickets: $10 includes admission, 1 hotdog, 1 snack bag, 1 cupcake and 1 water
DetailsRaffles, Door Prizes, Bake Sale, Concession, Games, Activities, Entertainment including West Shore Academy of Martial Arts, Dance Routine, and others, Special Guests including East Pennsboro Fire Department and Police Department and others

What: 20th Annual Stepping Out to Cure Scleroderma - Allaire Walk
When: SaturdayJune 13, 2020
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: Historic Allaire Village, 4263 Atlantic Avenue, Farmingdale, NJ 07727
Registration: click here to register, donate and share

What: Julia's Kicking Scleroderma 5K Run/Walk
When: Sunday, June 14, 2020
Time: 9:00 am
Where: John Paul Park at Lower Nike (Formerly Lower Nike Park), 301 Folly Rd, Chalfont, PA 18914
Register: click here
More information: contact Race Director, Julia Puricelli at 267-408-0877 or email Julia  
Details
Fundraiser for Scleroderma Foundation of Delaware Valley. Awards: Overall and Age Groups Top 1-3 overall, top 1-3 in each age group. Amenities: T-shirt, refreshments, water stations, and plenty of prizes! Race Results: Race will be professionally timed by the Bryn Mawr Racing Co.; Results will be found at http://www.brynmawrracing.com

What
: Central PA Support Group Fundraiser
When: Sunday, June 14 
Time:  11:00 am - 9:00 pm 
Where: Hoss's Steak & Seahouse, 743 Wertzville Rd, Enola, PA 17025
Details: Contact ScleroCentralPa@yahoo.com for voucher to present to server

JULY

What: Scleroderma Foundation National Patient Education Conference
When: July 17-19, 2020 - cancelled; new location for July 2021
Where: Bellevue, Washington, to the east of Seattle, across Lake Washington. 
Registration: conference registration here


AUGUST 

What: 5th Annual Sea Isle City White Party
When: TBD
Time: 12:00 - 4:00 pm
Where: Yacht Club of Sea Isle City, 4487 Venicean Rd, Sea Isle City, NJ 08243
Dress: Wear white attire
Details: 4 Hour Open Bar, Food, Raffles, Live Music & more
Tickets: check back soon

What: 16th Annual Stepping Out to Cure Scleroderma - York Walk
When: August 8, 2020
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: John Rudy Park, 400 Mundis Race Road, York, PA 17406
Registration: click here to register, donate, and share

SEPTEMBER 

What: 19th Annual Teri's Run and Twilight Walk
When: September 11, 2020
Time: Kid's Run starts at 6:30 pm; 5K Run and 1.5 Mile Walk start at 7 pm
Where: Green Street - Downingtown, PA 19335
Registration: click here

What: 30th Annual Stepping Out to Cure Scleroderma - Philadelphia Metro Area Walk
When: Sunday, September 13, 2020
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: Cooper River Park, 5300 N Park Drive, Pennsauken, NJ 08109
Registration: click here to register, donate, and share

What: 7th Annual Central PA Soup Cook-off
When: 
Sunday, September 20, 2020 (rescheduled from April)
Time: 12 - 3 pm
Where: 
The Abbey Bar at Appalachian Brewing Company; 50 North Cameron Street, Harrisburg, PA 17101
More information
click here
Tickets: 
Tickets on sale now!  $10 in advance or $15 at the door. Children 8 and under are free.
Details
Sample over 35 soups from both professional and amateur chefs and vote for your favorites in the 7th Annual Central PA Soup Cook-Off. All proceeds from this event benefit The Scleroderma Foundation.


OCTOBER

What: 
9th Annual Cruise for a Cure
When: 
Saturday, October 3 (rain date October 4) - rescheduled from April
Time
11:00 am - 4:00 pm. Judging starts at noon and trophies awarded at 3:00 pm.
Where: new location - Pike Creek Shopping Center, 4700 Limestone Rd, Wilmington, DE 19808. Paved parking. 
Registration online: 
click here to register, donate or sponsor
Pre-registration per car $20, Day of event registration per car $25
More information: 
email Angie or call 302-425-5054
Details: 
Car show featuring classic, antique, street rods and muscle cars. 9th Annual Cruise for A Cure in loving memory of Al Crowl to benefit the Scleroderma Foundation Delaware Valley Chapter. Help us find a cure for scleroderma. The event is free to the public to attend and all are welcome. Plenty of great music, refreshments, and 50/50 on the paved lot of Pike Creek Shopping Center. Prizes and trophies awarded to top 30 cars judged. Goodie bags and dash plaques to first 100 registered.

-----------------------------------------------------------------------------------

PAST EVENTS

MARCH

What: 
Fabulous Shoe Night
When: 
Sunday, March 1, 2020
Time: 
1:00 - 3:00 pm
Where: 
Seasons 52, 160 N Gulph Rd, Ste 101, King of Prussia, Pennsylvania 19406
Tickets: 
click here
Details: Grab some friends (men are welcome at this event) and join us for Fabulous Shoe Night to benefit Fran Robison and Scleroderma Foundation of the Delaware Valley. Your $30 ticket (+ processing fees) includes delicious lite bites, cash bar, and a built-in donation to be divided between Fran Robison and The Scleroderma Foundation of the Delaware Valley. 100% of ticket proceeds, minus event costs, are donated to the cause as well as 100% of all raffle proceeds. Raffles will be available (please note that raffles are CASH ONLY).

What:  Patient Education Meeting - Penn Scleroderma Center 
When: Saturday, March 28, 2020 - cancelled; may be rescheduled
Time: Registration and breakfast from 8:30 - 9:00 am, Program from 9:00 – 12:00 pm
Where: Smilow Center for Translational Research, first floor cafe area, 3400 Civic Center Blvd., Philadelphia, PA 19104 (attached to Perelman Center)
Speakers:

Nora Sandorfi, MD, Associate Professor of Medicine - Scleroderma and Indications for Referral to Transplantation
Maria Mercedes Crespo, MD, Co-Director, Lung Transplant Program - Scleroderma and Lung Transplant
Infectious Disease, Transplantation/Medicine - Safety with Immunocompromised Patients
Tamara Claridge PharmD, BCPS, Clinical Pharmacy Specialist Lung Transplant - Pharmacy Concerns for the Scleroderma Lung Transplant Patient  
Katie Stratton RD, LDN, CNSC, Lung Transplant Dietitian & Elizabeth Ligon, MSN, M.S. CCC-SLP, Senior Speech Language Pathologist - Nutrition and Speech Concerns for the Scleroderma Lung Transplant Patient
Cost: free for members, suggested $10 donation for non-members; includes continental breakfast and beverages
Parking: Perelman Center for Advanced Medicine Parking Garage (discounted parking vouchers provided for this lot only)

This program is cosponsored by the Scleroderma Foundation of the Delaware Valley (SFDV) and Penn Lung Transplant. SFDV has no affiliation with any hospital or facility. We do not endorse medications or treatments and refer you to your physician for your care. We are pleased to provide materials and programs for your information.