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Local Events


What: 18th Annual Teri's Run and Twilight Walk
When: Friday, September 6, 2019
Kid's Run starts at 6:30 pm; 5K Run and 1.5 Mile Walk start at 7 pm
Where: Green Street - Downingtown, PA 19335
Registration:click here

What: 30th Annual Stepping Out to Cure Scleroderma - Philadelphia Walk
When: Sunday, September 8, 2019
Registration Time: 7:30 am
WalkStart Time: 8:30 am
Where: Memorial Hall, 4231 Avenue of the Republic, Philadelphia, PA 19131
Parkingplenty of FREE street parking on South Concourse, Avenue of the Republic, and the west side of Belmont Avenue
Registration: click here to register, donate, and share
*Please note new date, time and location*

What: Bonnie's Cruisers invites you to a fun-filled Chinese Auction
When: TBD
Where: Crescent Shrine, 700 Highland Dr, Westampton Township, NJ  08060
Information and Tickets: contact 201-688-7363 or 
Or visit their Facebook page


What:  Patient Education Meeting - UPenn, Philadelphia
When: Saturday, November 16, 2019
Speakers: TBD
Where: Smilow Center for Translational Research, 3400 Civic Center Blvd., Philadelphia, PA 19104 (attached to Perelman Center)
Parking: Perelman Center for Advanced Medicine Parking Garage (vouchers provided for this lot)
Registration REQUIRED:  email or call 856-779-7225


What: Giving Tuesday
When: December 3, 2019
Information: call 856-779-7225 for further information


past 2019 events


What: Race 4 Linda 5K and 1-mile Fun Walk
When: Saturday, April 6, 2019
Where: Milton Hershey School, 635 Brook Drive, Hershey, PA 17033
Registration: click here

Scleroderma Education Program
Saturday, April 6, 2019
Where: Hotel ML, 915 NJ-73, Mount Laurel, NJ 08054
Times:  Registration and breakfast 10:00 - 10:30 am
     Program 10:30 am - 1:15 pm
Dr. Kim Friedman, Dry Eye and Sjogrens
Brooke Grossman, Nutrition
Alene Brennan, Wellness in Autoimmune Disease
Cost: free for members, suggested $10 donation for non-members; includes continental breakfast and beverages
Registration: email or call 856-779-7225 by March 31; limited seating

What: Central PA Soup Cook-off
Sunday, April 7, 2019
 The Abbey Bar at Appalachian Brewing Company; 50 North Cameron Street, Harrisburg, PA 17101
More info: click here

What: Strike Out Scleroderma Bowling Fundraiser
Sunday, April 7, 2019
 Laurel Lanes, 2825 NJ-73, Maple Shade Township, NJ 08052
Ticket prices: 
$25 per adult (ages 18 & up)
$15 per teen (ages 12-17)
$8 per child under age 12
Included in the ticket price is bowling shoes, unlimited fountain drinks, and 1 large cheese pizza per each lane of 6 bowlers. (You don't need a team of 6 to participate; we'll combine attendees to form teams, as needed).
Purchase tickets: click here
For more information: or email


Cruise for a Cure
April 28, 2019 (RAIN DATE May 5, 2019)
Sanford School (Gym Parking Lot); 6900 Lancaster Pike; Hockessin, DE
Paved parking and beautiful, tree-lined grounds.
click here
For more information: email or call 856-779-7225


What: Stepping Out To Cure Scleroderma - Ventnor, NJ has been canceled 
When: Saturday, May 4, 2019
Registration Time: 9:30 a.m.
Walk Start Time: 10:30 a.m.
Where: Ventnor Library, 6500 Atlantic Avenue, Ventnor City, NJ 08406


What: 19th Annual Stepping Out to Cure Scleroderma - Allaire Walk
When: Saturday, June 8, 2019
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: Historic Allaire Village, 4263 Atlantic Avenue, Farmingdale, NJ 07727
Registration: click here


What: Scleroderma Foundation National Patient Education Conference
When: July 19 - 21, 2019
Where: Chicago, IL
Registration: conference registration here


What: 4th Annual Sea Isle City White Party
When: Saturday, August 3, 2019
Event time: 12:00 - 4:00 pm
Where: Yacht Club of Sea Isle City, 4487 Venicean Rd, Sea Isle City, NJ 08243
Dress: Wear white attire
About: 4 Hour Open Bar, Food, Raffles, Live Music from Piano Fight Club & more
Ticketsclick here for tickets and more information

What: 15th Annual Stepping Out to Cure Scleroderma - York Walk
When: Saturday, August 10, 2019
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: John Rudy Park, 400 Mundis Race Road, York, PA 17406
Registration: click here to register, donate, and share