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Local Events

NOVEMBER

What:  Patient Education Meeting - Penn Scleroderma Center 
When: Saturday, November 16, 2019 
    Registration and breakfast from 8:00 - 9:00
    Program from 9:00 - 11:15 am 
Where: Smilow Center for Translational Research, 3400 Civic Center Blvd., Philadelphia, PA 19104 (attached to Perelman Center)
Speakers
Peter A. Merkel, MD, MPH – Update of Activities of the Penn Scleroderma Center
Nora Sandorfi, MD – Move It! Exercise as Treatment for Scleroderma
Colin Ligon, MD, MHS – Results from Recent International Scleroderma Research Projects
Chris Derk, MD, MS, Colin Ligon, MD, MHS, Nora Sandorfi, MD – Question & Answer Session
Cost: free for members, suggested $10 donation for non-members; includes continental breakfast and beverages
Parking: Perelman Center for Advanced Medicine Parking Garage (vouchers provided for this lot only)
Registration REQUIRED by November 10:  register here or call 856-779-7225 

DECEMBER

What: Giving Tuesday
When: December 3, 2019
Where: www.sfdv.org
Information: call 856-779-7225 for further information

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past 2019 events

APRIL

What: Race 4 Linda 5K and 1-mile Fun Walk
When: Saturday, April 6, 2019
Where: Milton Hershey School, 635 Brook Drive, Hershey, PA 17033
Registration: click here

What: 
Scleroderma Education Program
When: 
Saturday, April 6, 2019
Where: Hotel ML, 915 NJ-73, Mount Laurel, NJ 08054
Times:  Registration and breakfast 10:00 - 10:30 am
     Program 10:30 am - 1:15 pm
Speakers: 
Dr. Kim Friedman, Dry Eye and Sjogrens
Brooke Grossman, Nutrition
Alene Brennan, Wellness in Autoimmune Disease
Cost: free for members, suggested $10 donation for non-members; includes continental breakfast and beverages
Registration: email cferara@scleroderma.org or call 856-779-7225 by March 31; limited seating

What: Central PA Soup Cook-off
When: 
Sunday, April 7, 2019
Where:
 The Abbey Bar at Appalachian Brewing Company; 50 North Cameron Street, Harrisburg, PA 17101
More info: click here

What: Strike Out Scleroderma Bowling Fundraiser
When: 
Sunday, April 7, 2019
Where:
 Laurel Lanes, 2825 NJ-73, Maple Shade Township, NJ 08052
Ticket prices: 
$25 per adult (ages 18 & up)
$15 per teen (ages 12-17)
$8 per child under age 12
Included in the ticket price is bowling shoes, unlimited fountain drinks, and 1 large cheese pizza per each lane of 6 bowlers. (You don't need a team of 6 to participate; we'll combine attendees to form teams, as needed).
Purchase tickets: click here
For more information: https://www.facebook.com/events/392665751536313/?active_tab=about or email strikeoutscleroderma@gmail.com

APRIL

What: 
Cruise for a Cure
When: 
April 28, 2019 (RAIN DATE May 5, 2019)
Where: 
Sanford School (Gym Parking Lot); 6900 Lancaster Pike; Hockessin, DE
Paved parking and beautiful, tree-lined grounds.
Registration: 
click here
For more information: email cferara@scleroderma.org or call 856-779-7225


MAY

What: Stepping Out To Cure Scleroderma - Ventnor, NJ has been canceled 
When: Saturday, May 4, 2019
Registration Time: 9:30 a.m.
Walk Start Time: 10:30 a.m.
Where: Ventnor Library, 6500 Atlantic Avenue, Ventnor City, NJ 08406

JUNE

What: 19th Annual Stepping Out to Cure Scleroderma - Allaire Walk
When: Saturday, June 8, 2019
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: Historic Allaire Village, 4263 Atlantic Avenue, Farmingdale, NJ 07727
Registration: click here


JULY

What: Scleroderma Foundation National Patient Education Conference
When: July 19 - 21, 2019
Where: Chicago, IL
Registration: conference registration here


AUGUST 

What: 4th Annual Sea Isle City White Party
When: Saturday, August 3, 2019
Event time: 12:00 - 4:00 pm
Where: Yacht Club of Sea Isle City, 4487 Venicean Rd, Sea Isle City, NJ 08243
Dress: Wear white attire
About: 4 Hour Open Bar, Food, Raffles, Live Music from Piano Fight Club & more
Ticketsclick here for tickets and more information

What: 15th Annual Stepping Out to Cure Scleroderma - York Walk
When: Saturday, August 10, 2019
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: John Rudy Park, 400 Mundis Race Road, York, PA 17406
Registration: click here to register, donate, and share

SEPTEMBER 

What: 18th Annual Teri's Run and Twilight Walk
When: Friday, September 6, 2019
Kid's Run starts at 6:30 pm; 5K Run and 1.5 Mile Walk start at 7 pm
Where: Green Street - Downingtown, PA 19335
Registration:click here

What: 30th Annual Stepping Out to Cure Scleroderma - Philadelphia Walk
When: Sunday, September 8, 2019
Registration Time: 7:30 am
WalkStart Time: 8:30 am
Where: Memorial Hall, 4231 Avenue of the Republic, Philadelphia, PA 19131
Parking: plenty of FREE street parking on South Concourse, Avenue of the Republic, and the west side of Belmont Avenue
Registration: click here to register, donate, and share