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Local Events

MARCH

What:  Patient Education Meeting - Penn Scleroderma Center 
When: Saturday, March 28, 2020
TimeRegistration and breakfast from 8:30 - 9:00 am, Program from 9:00 – 12:00 pm
Where: Smilow Center for Translational Research, first floor cafe area, 3400 Civic Center Blvd., Philadelphia, PA 19104 (attached to Perelman Center)
Speakers:

Nora Sandorfi, MD, Associate Professor of Medicine - Scleroderma and Indications for Referral to Transplantation
Maria Mercedes Crespo, MD, Co-Director, Lung Transplant Program - Scleroderma and Lung Transplant
Infectious Disease, Transplantation/Medicine - Safety with Immunocompromised Patients
Tamara Claridge PharmD, BCPS, Clinical Pharmacy Specialist Lung Transplant - Pharmacy Concerns for the Scleroderma Lung Transplant Patient  
Katie Stratton RD, LDN, CNSC, Lung Transplant Dietitian Elizabeth Ligon, MSN, M.S. CCC-SLP, Senior Speech Language Pathologist - Nutrition and Speech Concerns for the Scleroderma Lung Transplant Patient
Cost: free for members, suggested $10 donation for non-members; includes continental breakfast and beverages
Parking: Perelman Center for Advanced Medicine Parking Garage (discounted parking vouchers provided for this lot only)
Registration REQUIRED by March 22: register online here

This program is cosponsored by the Scleroderma Foundation of the Delaware Valley (SFDV) and Penn Lung Transplant. SFDV has no affiliation with any hospital or facility. We do not endorse medications or treatments and refer you to your physician for your care. We are pleased to provide materials and programs for your information.


APRIL

What: Race 4 Linda 5K and 1-mile Fun Walk
When: Saturday, April 18, 2020
Where: Milton Hershey School, 635 Brook Drive, Hershey, PA 17033
Registration: click here

What: 
Central PA Soup Cook-off
When: Sunday, April 5, 2020 from 12 - 3 pm
Where: The Abbey Bar at Appalachian Brewing Company; 50 North Cameron Street, Harrisburg, PA 17101
Registration: check back soon

What: Cruise for a Cure
When: Saturday, April 25,2020 (raindate Sunday, April 26)
Where: Pike Creek Shopping Center, 4700 Limestone Rd, Wilmington, DE 19808. Paved parking. 
Registration: check back soon
For more information: email here or call 856-779-7225


JUNE

What: 20th Annual Stepping Out to Cure Scleroderma - Allaire Walk
When: June 13, 2020
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: Historic Allaire Village, 4263 Atlantic Avenue, Farmingdale, NJ 07727
Registration: check back soon to register, donate and share


JULY

What: Scleroderma Foundation National Patient Education Conference
When: July 17-19, 2020
Where: Bellevue, Washington, to the east of Seattle, across Lake Washington. 
Registration: conference registration here


AUGUST 

What: 5th Annual Sea Isle City White Party
When: TBD
Event time: 12:00 - 4:00 pm
Where: Yacht Club of Sea Isle City, 4487 Venicean Rd, Sea Isle City, NJ 08243
Dress: Wear white attire
About: 4 Hour Open Bar, Food, Raffles, Live Music & more
Tickets: check back soon

What: 16th Annual Stepping Out to Cure Scleroderma - York Walk
When: August 8, 2020
Registration Time: 9:30 am
Walk Start Time: 10:30 am
Where: John Rudy Park, 400 Mundis Race Road, York, PA 17406
Registration: check back soon to register, donate, and share

SEPTEMBER 

What: 19th Annual Teri's Run and Twilight Walk
When: TBD
Kid's Run starts at 6:30 pm; 5K Run and 1.5 Mile Walk start at 7 pm
Where: Green Street - Downingtown, PA 19335
Registration: click here

What: 30th Annual Stepping Out to Cure Scleroderma - Philadelphia Walk
When: TBD
Registration: check back soon to register, donate, and share