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We serve the District of Columbia and the surrounding metropolitan areas in Maryland and Virginia
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COVID-19 vaccine Q&A from the Foundation's Medical & Scientific Advisory Board. (Updated 8/20/2021)

National Day of Action - June 29, 2020 

The Scleroderma Foundation’s advocacy efforts remain a priority during the COVID-19 (coronavirus) pandemic. To maximize our grassroots efforts across the country during the current situation, a virtual National Day of Action is scheduled for Monday, June 29, 2020

The health, safety and well-being of everyone within the scleroderma community is of paramount importance to us. Fortunately, we can effectively communicate with Members of Congress from home by email, phone and video meetings. Your active participation helps us educate Members of Congress with increased awareness of scleroderma, how it affects you, and what Congress can do to support those living with scleroderma. 

We encourage our community to call and/or email your representatives to discuss the Scleroderma Foundation’s policy priorities. Whether you are a seasoned advocate or completely new to this process, the National Day of Action is designed to make it easy to ask your elected officials to support issues important to the scleroderma community. 

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Tamanya Jones

2021 New Chapter Board Member: Tamanya Jones

Tamanya is from Westmoreland, VA. In 2016, Tamanya was diagnosed with a severe form of Scleroderma, causing rapid weight loss, loss of mobility and flexibility, skin pigmentation, severe muscle weakness and a various of other things.

Scleroderma made Tamanya's life very difficult, she struggled to to the very basic tasks, all while in school to get her Bachelors degree. Tamanya did not let Scleroderma stop her and with the support of her family, In 2019, Tamanya graduated with her BS degree in Business Administration focusing on Accounting and Financial Qualitative Analysis. Read more



2020 Clinical Trials and Research Projects : Johns Hopkins Scleroderma Center

The Center is actively investigating treatments that can improve our patients’ quality of life and better control disease activity. Current, formal research studies are listed. New studies are being planned to begin in the near future. Read more




2020 New Chapter Board Member: Dr. Evelyn Yvonne Treakle-Moore

For 31 years Dr. Treakle-Moore worked as an area physician focusing on Internal Medicine, Nephrology and Medical Administration. In 2004, she was diagnosed with Systemic Scleroderma. Dr. Treakle-Moore managed to work until December of 2017, at which time she retired. Read more



2020 Central Virginia Walk - A Great Success!

Our 2nd annual Central Virginia Walk held March 7, 2020 at Sweet Briar College was amazingly successful both as a fundraiser and as a community event supporting those affected by scleroderma.
A grand total of over $16,000 was raised for the mission at this year's Walk, far exceeding the original goal. The majority of money raised came from 80 dedicated walkers, their families and over 30 other enthusiastic contributors and supporters. In addition, 26 local sponsors (listed below) were sold sponsorships by Suzanne Raine, Margaret Ann White and Amherst Woman's Club members who organized this walk that is sponsored by our SFGWDC Chapter.
2020 Central VA Walk



2018 group Walk.jpg

Many thanks to all who attended the
2019 Stepping Out to Cure Scleroderma
Central Virginia Walk and Greater Baltimore 5K Walk/Run


2018 Stepping Out to Cure Scleroderma
Greater Baltimore 5K Walk/Run

The Scleroderma Foundation Greater Washington, DC Chapter (SFGWDC) thanks everyone who participated in our 8th Annual Stepping Out to Cure Scleroderma Greater Baltimore 5K Walk/Run on May 19th at Atholton High School! It was great to see so many familiar faces and to meet individuals joining us for the first time! Together, we raised $17,000! It is our committed and dedicated walkers, runners, donors, sponsors, and volunteers who make this possible. It was a great day with great people!

( l-r): Mary Beth Tourbin, Carole Bernard, Sharon Fine, Tom Fine, Alycia Senisi, Mike Senisi
Special thanks to Mike and Alycia Senisi and their family for their ongoing commitment to this event. For the past 8 years, Mike, Alycia, their children and Rosemary Markoff have been instrumental in the success of this event since Mike started it in 2010. Thank you to our event volunteers, including students from Atholton High School, and SFGWDC volunteers Neal Fine, Deborah Aloof, Doretha Ficklin, Quiana Keeve, Sheila Fleet, and Matt Tourbin.

Also, many thanks to SFGWDC Board members: Sharon Fine, President; TJ Keily; Mary Beth Tourbin; Jennifer Loud; and Vanessa Morris; and our Executive Director Carole Bernard.

SFGWDC extends its deepest appreciation for helping in our efforts to raise funds for research and to support the chapter's work!


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Find a Cure for Scleroderma Through Advocacy

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About Us

Board of Directors
Sharon P. Fine, President
Tera Yvette Carter, Treasurer

Contact Information

Scleroderma Foundation
Greater Washington, D.C. Chapter
5004 Domain Place
Alexandria, VA 22311

(703) 282-3016

Board Members
Tamanya Jones
Jennifer Loud
Elizabeth Theisen
Dr. Evelyn Yvonne Treakle-Moore

Medical Advisory Board
Dr. Kathleen Holton
Laura Hummers, M.D.
Victoria Shanmugam, M.D.
Virginia Steen, M.D.

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Photo Gallery

Look through photo galleries from previous events held by our chapter.



video.jpgVideo Gallery

Watch videos pertaining to events held by our chapter and a few fun extras.


Find Us On The Web! (coming soon)

National Sponsors
Platinum Corporate Sponsor


Gold Corporate Sponsors

Boehringer Ingelheim Plain

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