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June 2020

 

National Day of Action - June 29, 2020

The Scleroderma Foundation’s advocacy efforts remain a priority during the COVID-19 (coronavirus) pandemic. To maximize our grassroots efforts across the country during the current situation, a virtual National Day of Action is scheduled for Monday, June 29, 2020 

The health, safety and well-being of everyone within the scleroderma community is of paramount importance to us. Fortunately, we can effectively communicate with Members of Congress from home by email, phone and video meetings. Your active participation helps us educate Members of Congress with increased awareness of scleroderma, how it affects you, and what Congress can do to support those living with scleroderma. 

We encourage our community to call and/or email your representatives to discuss the Scleroderma Foundation’s policy priorities. Whether you are a seasoned advocate or completely new to this process, the National Day of Action is designed to make it easy to ask your elected officials to support issues important to the scleroderma community. 

 

 Take Action: 

Email your Senators and Member of the House of Representatives to share your scleroderma experience and ask them to help us (information on the ask provided below). 

Call the offices of your Senators and Member of the House to share your scleroderma experience and ask them to help us (information on the ask provided below)

 

Make Virtual Visits: 

If you live within the boundaries of a Scleroderma Foundation chapter, please contact chapter leadership before scheduling a meeting. A group of constituents meeting together with a Member of Congress (or their staff) can be much more effective. 

To find and contact your U.S. Senator: 

1. Visit the Senate website at www.senate.gov

2. Conduct a search using the Find Your Senators pull-down menu in the upper right corner (select your state and click Go). 

3. On the results page is a link to the Senators’ websites, contact information, and links to an online contact form (forms vary by Senator). 

 

To find and contact your U.S. Representative: 

1. Visit the House of Representatives website at www.house.gov

2. Conduct a search using the Find Your Representative ZIP Code search box in the upper right corner (enter your ZIP Code and click Go). 

3. On the results page is a photo of your Representative(s), links to the Representative’s website, an online contact form, and a local map. 

4. If your ZIP Code overlaps multiple congressional districts, the results page will include boxes for you to enter your ZIP Code+4 or street address to find your Representative. 

  

Please read more here: 2020_National_Day_of_Action_Prep_Packet.pdf

If you need to find the name of your representative you may look it up at https://www.house.gov/representatives/find-your-representative by inputting your zip code. 

To find the name of your senator please click here:
 
 

Sample letter to House of Representatives: https://drive.google.com/file/d/1DtIgmHJ2Jplu20x07pIRggAPNNq1bVrZ/view?usp=sharing

Sample letter to Senator: https://drive.google.com/file/d/1zUrLLf8Bz5_ysXQz7xv0riuVtL2jbQPt/view?usp=sharing

 

 


  

June 2020

 

Clinical Trials and Research Projects : Johns Hopkins Scleroderma Center 

The Center is actively investigating treatments that can improve our patients’ quality of life and better control disease activity.  Current, formal research studies are listed.  New studies are being planned to begin in the near future. (Read More) 

  


  

 June 2020

  

New Chapter Board MembeDr. Evelyn Yvonne Treakle-Moore

Meet Dr. Evelyn Yvonne Treakle-Moore  

The Chapter's Newest Board Member

 

For 31 years Dr. Treakle-Moore worked as an area physician focusing on Internal Medicine, Nephrology and Medical Administration. In 2004, she was diagnosed with Systemic Scleroderma. Dr. Treakle-Moore managed to work until December of 2017, at which time she retired.

During her career, Dr. Treakle-Moore worked in the Washington, DC/ Maryland/ Virginia areas having completed her internship, residency and fellowship training in 1986. She matriculated at the Medical College of Virginia Commonwealth University from 1977 - 1981, and received her Doctor of Medicine degree in 1981. Dr.Treakle-Moore completed her internship, residency and fellowship training at Howard University Hospital in Washington, DC in Internal Medicine and Nephrology from 1981 to 1986.

After having completed her training in 1986, Dr. Treakle-Moore worked as a local Internist, Nephrologist and Medical Administrator for several area companies including the former Greater Southeast Community Hospital Center for the Aging, Kaiser Permanente, Howard University Hospital and Howard University, Chartered Health Plan (PHP Healthcare Systems), Baltimore Medical Systems and Johns Hopkins Community Physicians Group.

She is married to Robert E. Moore, Jr and resides in Fort Washington, Maryland. 

As an SFGWDC board member Dr. Treakle-Moore looks forward to encouraging and inspiring other fellow Scleroderma patients to strive, make the best of their current situation, and remain as active as possible.

 

 

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