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2020 Awareness Items

Awareness Items are great gifts! Rock Your Teal!
(800) 867-0885

Call the Tri-State office to order awareness items for your friends and family. Rock your TEAL and spread awareness of scleroderma!

2020 Inspire - Step Up

It's Time to Step Up for Scleroderma!

Check out our Facebook page for more information how you can make an IMPACT!

 

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Find support that fits your lifestyle

Visit our support group web-page here  If you don’t find a support group to fit your lifestyle, consider starting one yourself!  We will help you all the way!

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SclerodermaVideo.com

Whether you are a patient, caregiver, family member, or medical professional, SclerodermaVideo.com is an invaluable resource! 

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COVID-19, Reviewed July 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More

 

Tri-State News regarding Coronavirus, Covid-19

Your health and safety and that of every person affected by scleroderma is of paramount importance to the Scleroderma Foundation Tri-State Chapter. The Tri-State Chapter takes very seriously the threat the coronavirus presents to individuals living with scleroderma.

Therefore, we have moved our support group meetings to virtual or canceled some in the short term. View our calendar above for individual meeting details.

Our Stepping Out to Cure Scleroderma Walks for June have transitioned to virtual walks as well. Consider Stepping Out and raising awareness in your community, your way! Click on Tri-State Events for further information.


 

Scleroderma E-News

 

Stay Updated with Tri-State Chapter Events & News

Sign Up for the Scleroderma E-News Today!


Want to Inspire Your Community?

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#StepUp4Scleroderma

 

 For more ways to get involved - Contact csnider@scleroderma.org

 

 

 

 

2020 Stepping Out to Cure Scleroderma Walk Season is HERE!

 

 

Virtual Walk 2020 Website.jpgVirtual Walk pages are live!

What is a virtual walk?

Virtual walks is an online fundraising initiative that allows people to register and hold their own symbolic WALK while still raising money for the Scleroderma Foundation Tri-State Chapter Mission.  You can WALK how and when it best fits you (safely and social distancing) in your home, in your yard, around the neighborhood at at time that is convenient to you and your team.

Remember you pick where you would like to do it, who you would like it with, and what time you start.

Represent the Scleroderma Community by wearing a scleroderma t-shirt of choice and share your photos on social media using #SteppingOutforScleroderma #SFTristate

Don't have a scleroderma t-shirt?

Order a 2019 walk t-shirt for $5.00 plus shipping (while supplies last) by calling (800) 867-0885 or create a custom shirt online via cafepress or a similar site.

Step Out in one of these Virtual Walks on October 10, 2020

Albany, NY   |   Binghamton, NY   | Buffalo, NY

Long Island, NY   |   Manhattan, NY   |   New Haven, CT

Poughkeepsie, NY   |   Ridgefield Park, NJ   |   Rochester, NY

Syracuse, NY   |   Westchester, NY

Cannot participate on October 10th?  That's okay! Sign up and participate anytime you can.  We will be sharing photos on our social media that day, and hope you will too (see above for social media tags) - but we'll be excited to hear about your walk whenever you do it.

Can't register online?  Download the registration form and mail it to our office at Scleroderma Foundation Tri-State Chapter 59 Front St, Binghamton, NY 13905

Step Up & Step Out for Scleroderma!

 Together we can Make an Impact!

 

 

About Us

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 


Contact Information

Bruce R. Cowan, Executive Director
bcowan@scleroderma.org


Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free: 800-867-0885
Fax: 607-723-2039

Staff 

Candice Snider, Fundraising Manager
csnider@scleroderma.org

April Roberts, Office Administrator
aroberts@scleroderma.org

Board of Directors 

Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Amy Gietzen 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 

Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Monique Hinchcliff, M.D., M.S. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Founder Member
Harry Spiera, M.D.

 

 

 
National Sponsors
 
Diamond National Sponsors
 
Actelion Plain   Boehringer Ingelheim Plain
 

Chapter Sponsorship Opportunities

Thank you for considering a corporate or individual donation to the Tri-State Chapter. For more information, please contact Candice Snider at csnider@scleroderma.org.