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COVID-19, Reviewed July 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More

 

 

2020 Stepping Out to Cure Scleroderma Virtual Adventure
Top Team Fundraisers!        

 2020 Denver Walk Winners                        2020 NO CO Walk Winner      

What a race to the finish! Congrats to our top team fundraisers for our 2020 Stepping Out to Cure Scleroderma Virtual Adventure. We are humbled by the generosity of our scleroderma community, who came together and raised close to $40,000 to support the Rocky Mt. Chapter's mission of Support, Education and Research. 


2020 Walk - Most Creative 

Team Sal's Pals ran away with the Most Creative Fundraising concept award for our 2020 Stepping Out to Cure Scleroderma Virtual Adventure. Aaron and Leanne produced music videos for anyone that made a donation to the team. They raised $2,400 to fight scleroderma.
You can view the videos at: 
www.facebook.com/aaron.graversen



National Day of Action logo JPG no border 

The Rocky Mt. Advocacy Team, led by Cyndy Besselievre, attended meetings with staff members of Rep. Doug Lamborn, Senator Michael Bennet, Rep. Diana DeGette and Senator Cory Gardner on Monday June 29th – World Scleroderma Day and Colorado Scleroderma Awareness Day. Chapter members did a fantastic job sharing their stories on the Zoom calls and the staffers were very interested in learning about how scleroderma had impacted their lives. These efforts resulted in Rep. Lamborn’s commitment to co-sponsor H.R. 3446!  There is still work to be done. If you would like to help with the Scleroderma Foundation Rocky Mt. Chapter’s advocacy efforts, please contact Cyndy Besselievre at cbesselievre@scleroderma.org

   

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About Us

Rocky Mountain Staff and Board

 

  

Board of Directors

Andrew Parr, President
Cyndy Besselievre, Treasurer

Contact Information

Scleroderma Foundation
Rocky Mountain Chapter
5403 E. Evans Ave. 
Denver, CO 80222
Phone: 303-806-6686
Email: cochapter@scleroderma.org

Maria Dastur, Executive Director
mdastur@scleroderma.org

Christine Shephard, Office Administrator 
cshephard@scleroderma.org

Board Members

Barb Frodin
Sandee Maas
Marcy Thompson (not pictured)
Tammy Schell

Medical Advisory Board

Todd Bull, MD, Pulmonologist
University of Colorado Health-Anschutz Campus

Kristin Kilbourn, PhD, MPH, Psychologist
University of Colorado Denver

Jason Kolfenbach, MD, Rheumatologist
University of Colorado Health-Anschutz Campus

Michelle MacDonald, MS, RD Clinical Dietitian
National Jewish Health

Paul Menard-Katcher, MD, Gastroenterologist
University of Colorado Health-Anschutz Campus

Katharine Moore, MD, Pediatrics
Children's Hospital Colorado 

Mehrnaz Maleki, M.D. - Rheumatologist
National Jewish Health 

 

 

 Seaman Family Walk 72   Chapter Photo Gallery

 stepping out walkers water   Chapter Video Gallery

Find Us On The Web!

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Diamond National Sponsors
 
Actelion Plain   Boehringer Ingelheim Plain
 


The Scleroderma Foundation Rocky Mountain Chapter relies on your support
to continue our mission of SUPPORT, EDUCATION, RESEARCH.

We offer chapter-wide sponsorships for organizations that want visibility throughout the year.
Individual event and program sponsorship options are also available.

For more information on sponsorships, 
contact Maria Dastur at mdastur@scleroderma.org or 303-806-6686.

                                          rocky_mountain_chapter_160x129.png  Chapter Sponsorships
   Effort Fund a Need
      denver walk 2020 Denver Stepping Out to
Cure 
Scleroderma Walk
      Fort Collins Walk Pic Northern Colorado Stepping Out to
Cure Scleroderma Walk
      Food Fight For Scleroderma

Food Fight for Scleroderma
Postponed to October 2021