2020 Awareness Items

Awareness Items are great gifts! Rock Your Teal!
(800) 867-0885

Call the Tri-State office to order awareness items for your friends and family. Rock your TEAL and spread awareness of scleroderma!

2020 Inspire - Step Up

It's Time to Step Up for Scleroderma!

Check out our Facebook page for more information how you can make an IMPACT!



Find support that fits your lifestyle

Visit our support group web-page here  If you don’t find a support group to fit your lifestyle, consider starting one yourself!  We will help you all the way!



Whether you are a patient, caregiver, family member, or medical professional, SclerodermaVideo.com is an invaluable resource! 

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COVID-19 UPDATE (March 20, 2020): To protect against COVID-19, individuals diagnosed with systemic sclerosis (SSc), especially those who are on immunosuppression treatments, or who have lung disease, need to self-isolate at home for the next 15 days. Read More


Tri-State News regarding Coronavirus, Covid-19

Your health and safety and that of every person affected by scleroderma is of paramount importance to the Scleroderma Foundation Tri-State Chapter. The Tri-State Chapter takes very seriously the threat the coronavirus presents to individuals living with scleroderma, who are immunocompromised. There is a growing likelihood of an increase in the spread of the virus in the United States, and we wish to provide you with reliable information from qualified sources to guide you in your decision making regarding Tri-State support group meetings, chapter events, and the activities of daily life.

 As of March 18, 2020, we have cancelled all Tri-state events and meetings until May 1st. We will continue to evaluate the situation to update our events which will take place in the future, at which time we will make adjustments as necessary under the directives of the CDC, state and local health departments.

Click here for more information regarding Covid-19


Please click here for Scleroderma National's important information related to the coronavirus (COVID-19) 


Scleroderma E-News


Stay Updated with Tri-State Chapter Events & News

Sign Up for the Scleroderma E-News Today!

Want to Inspire Your Community?

SD Tri-State Step Up Logo_final-01.jpg



 For more ways to get involved - Contact csnider@scleroderma.org





 2020 Walk Announcement2.png  

Register Now!

You can utilize Facebook to raise funds through your Walk Page!

For more information, please call 800-867-0885

Register via mail - Registration Form

Walk Location Date Registration Walk
Albany  Crossgates Mall June 7  6:30 pm  7:30 pm
Binghamton  Otsiningo Park June 7  9:00 am  10:00 am
Long Island  Wantagh Park June 7  9:00 am  10:30 am
Manhattan  Riverside Park at 96th St June 14  9:00 am  10:15 am
New Haven Jimmies of Savin Rock June 27 9:00 am 10:15 am
Poughkeepsie  Vassar College June 20  9:00 am  10:15 am
Ridgefield Park  Overpeck Park  June 6  9:00 am  10:30 am
Rochester  Seneca Park June 13  9:00 am  10:00 am
Syracuse Onondaga Lake Park June 6 9:00 am 10:15 am
Westchester Waterfront Park June 14 9:00 am 10:30 am

Also don't forget, you can solicit Corporate Sponsors to benefit your walk efforts. 

For corporate sponsor form or any other information, please send an email.

2020 Stepping Out to Cure Walk season is HERE!

Time to Volunteer!

Disney Promo 2020 - SFTS

With partnership with Allforgood.org & Disney, all volunteers and team captains who are registered as a walker and volunteer at the walk will be eligible for an entry for 2 Walt Disney Theme Park Passes.   

Click on the link below to register as a volunteer!

Albany | Binghamton | Long Island | Manhattan | New Haven

Poughkeepsie | Ridgefield Park | Rochester | Syracuse |  Westchester 



About Us

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.



Contact Information

Bruce R. Cowan, Executive Director

Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free: 800-867-0885
Fax: 607-723-2039


Candice Snider, Fundraising Manager

April Roberts, Office Administrator

Board of Directors 

Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Suzy Ballantyne

Mary Contadino 
Carla Gage 
Amy Gietzen 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Mark and Helene Flapan

Medical Advisory Board Chair
Robert Spiera, M.D. 

Elana Bernstein, M.D.
Howard Blumstein, M.D. 

Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Honorary Member
Harry Spiera, M.D.



National Sponsors


  Diamond National Sponsor  
  Actelion Plain  
  Corporate Sponsors  
Boehringer Ingelheim Plain 2016 United Therapeutics Corbus Pharmaceuticals Logo

Chapter Sponsorship Opportunities

Thank you for considering a corporate or individual donation to the Tri-State Chapter. For more information, please contact Candice Snider at csnider@scleroderma.org.