Who We Are
The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community. Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research. All donations are qualified charitable donations to the fullest extent of the law. Our federal tax identification number is 52-1375827. All donations are gratefully accepted.
What is Scleroderma?
Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.
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- Rare is Strong Every Day, February 29 is Rare Disease Day
- Rare Disease Week on Capitol Hill
- Talking Isn't a Cure, But it Sure Helps, Sunday Sitdowns: February 23, 1 p.m. Eastern Time
- Choosing a Service Provider That's Right for You, WISE Webinar: Wed., Feb. 26, 3-4:30 p.m. ET
- Apply for a Conference Scholarship! March 18 deadline
- Proposed '15% rule' outlines common organ complications in scleroderma
- Be Part of the Cure!
- More Than Scleroderma
- Modernizing ClinicalTrials.Gov
- Celebrate Your Birthday!
- Clinical Trial Opportunities
- Safety and Tolerability Study of AVID200, a Novel TGF-beta 1 & 3 Inhibitor, in Patients with Diffuse Cutaneous Systemic Sclerosis