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Get updates on what's happening at the New England Chapter.

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Join a Stepping Out to Cure Scleroderma Walk

Click here to see events happening throughout New England!

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Join a Support Group

Click here to find a support group near you. We're here to help.

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Watch a Video

Choose from a variety of scleroderma information videos offered by the Scleroderma Foundation, or news on Scleroderma Foundation New England.

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What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

Download a Free Scleroderma Information Packet

Can't download it? Have us mail you a copy! Email: LDesantis@sfnewengland.org

Download SFNE's Chapter brochure

2020 New England Patient Education Seminar

Registration for the SFNE Patient Education Seminar on Saturday, April is now open! Please join us at the Peabody Marriott for a day of informative presentations designed to support patients, and their families and caregivers. Registration is $15 and includes our luncheon. View our program and register today to secure your spot! 

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Find a support group in your area or connect with others by phone. Support groups are a great way to share information and provide encouragement to one another. Looking to start a new support group? Contact us!

Click here for more information >>

YouTube logo Speaker videos available on SFNE YouTube Page

Click here to access videos of the presenters at the 2018 SFNE Patient Education Seminar. On SFNE’s YouTube page, you can see presentations by Dr. Andrew Plaut, Dr. Robert Simms, Maureen Kerrigan, Esq., Dr. Jonathan Garlick, Andrew Botieri, Kendra Raymond and our Ask-the-Experts panel. You can also see a video with interviews from the 2017 Boston Walk. Check it out!

Resources for Financial Assistance Programs

Depending on your treatment regimen and your type of health insurance, options for financial assistance for medications can vary. Click here to access a descriptive list of resources for financial assistance programs by various organizations and pharmaceutical companies.

Clara Health

Find Clinical Trials with Clara Health

Clara Health offers an online platform to empower patients with the knowledge they need to search for clinical trials and make informed treatment decisions. Lilly Stairs, Head of Patient Advocacy, is available to speak with support groups about the services clarahealth.com provides to patients looking for clinical trials.

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Read About What's Going On

Check out articles and past editions of our newsletter, The New England BEACON, for information on research, SFNE activity updates, event information and more.

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About Us

Board of Directors
Don Legere, President
Jane Ladas, Vice President
Jeff Daddio, Treasurer
Steve Lang, Clerk
Brenda Brown
Tony Cappellucci
Zak Karsan
Andrea Mahoney
Joan Meissner
Chris Simms


Board Advisors
Tom Curran
Walter Zagrobski

Medical/Scientific Advisory Board
Vincent Falanga, M.D.
Harrison Farber, M.D.
Carol Feghali Bostwick, Ph.D.
Humphrey Gardner, M.D.
David M. Leader, DMD
Thomas Medsger, Jr., M.D.
John Mulliken, M.D.
Nicole Orzechowski, D.O.
Andrew Plaut, M.D.
Robert Simms, M.D.
Michael Whitfield, Ph.D.
Michael York, M.D.

Contact Information

Executive Director: Lindsay De Santis, ldesantis@sfnewengland.org

Office Mailing Address
Scleroderma Foundation New England Chapter
462 Boston Street, Suite 1-1
Topsfield, MA  01983

Phone: (978) 887-0658
Fax: (978) 887-0659
General Information: sclerodermainfo@sfnewengland.org

Our Mission

To help constituents make contact with each other through support groups, newsletters, and meetings;

To EDUCATE and INFORM the public about scleroderma, what it is, and its consequences through a central base;

To PROMOTE and raise funds for medical research seeking the cause of and cure for scleroderma.

 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos on scleroderma, news events, and a few fun extras. 

 


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