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Get Ready, Get Set, Walk for a Cure!

Registration is now open for all 2019 walks! Get a team together, register and start fundraising today! Find a walk near you

 

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Cooking Up A Cure Tickets On Sale Now!

Enjoy a night of delicious food and drink from Chicago's best chefs and beverage companies! Get details and tickets

 

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Have You Joined a Support Group Yet?

You're not alone in struggling with scleroderma. Find a support group near you!

 

Online Educational Resources Available

Visit our YouTube, WordPress, and SlideShare websites to access our online resources!

 

 

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What's New at the Scleroderma Foundation of Greater Chicago

Stand with Scleroderma Patients this Holiday Season
Your gift this holiday season helps us bring support and education to scleroderma patients and their families while we fund research to find a cure. We invite you to remember the Scleroderma Foundation when making your holiday giving plans. Thank you for your support this year and every year!

 

New Support Group - Chicago
 Upcoming dates for the newly-formed Chicago support group are now set. Join the group and connect with fellow patients in Chicago! Get more info.
 
 

Our Mission

Improving the lives of patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
     
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
     
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a loved one struggling with scleroderma, or just want to learn more about the disease, we have resources, education events and fundraisers you'll love!

Contact Information

Stephanie Somers Gresh, Executive Director
Melissa Spear, Marketing & Fundraising Manager

Scleroderma Foundation Greater Chicago Chapter
125 S. Clark, 17th Floor
Chicago, IL 60603
Phone: 312-660-1131
Email: GCchapter@scleroderma.org 
Facebook: facebook.com/gcscleroderma

Board of Directors 
Tony Cogan, President 
Jennifer Bryson, Vice President
Eliisa Capstick, Secretary 

Dan Clarin, Treasurer

Eliisa Capstick
Mary Carns
Dan Clarin
Jules Cogan
Cleetus Friedman 
Carol Goldman 
Peter Goldman
David Helfand
John Varga, M.D. 

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.

 

 

Patient Education

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Spring Patient Conference
The Scleroderma Foundation Greater Chicago Chapter is dedicated to keeping the scleroderma community informed, connected and supported. Our next Patient Education Conference will be in April of 2020. Registration opens soon!

Scleroderma 101
Scleroderma 101 is a bi-annual small group session offering information and support for recently diagnosed scleroderma patients. Top specialists and scleroderma support group leaders will be on site to help you understand your diagnosis, build a support system and live better. Registration opens soon for the next Scleroderma 101 session!

For presentations and videos from past conferences, take a look at our SlideShare and YouTube sites. 

 

Patient Support

Support groups provide a forum to share thoughts, concerns, information and meet others who understand the experience of living with scleroderma. Find a support group in your area or connect with others on our online support community, Inspire.

Looking to start a new support group in your area? Contact us at 312-660-1131.


 

Actelion 2019 sponsor      Boehringer Ingelheim 2019 sponsor