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GC Stop Scleroderma 2020 Homepage

2020 Walks Are Going Virtual!

Register, fundraise and join us for a virtual walk this summer to help find a cure for scleroderma! More info on our events page.

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You're not alone in struggling with scleroderma. Find a support group near you!

 

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Visit our YouTube, WordPress, and SlideShare websites to access our online resources!

 

 

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COVID-19 UPDATE, May 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More

 

What's New at the Scleroderma Foundation Greater Chicago Chapter

Stepping Out to Cure Scleroderma Walks Are Going Virtual!
To minimize the spread of COVID-19 and protect our scleroderma community we have decided to transition all in-person walks planned for this year to an online experience. We hope you will join us as a “virtual walker” on August 22. Whether walking in the park, down the street or on a treadmill, we can still show our support for scleroderma patients and have fun doing it!

Walk registration now open! Register, donate and fundraise!! More info on our events page.
 
Upcoming Patient Education Webinars
 
Discussion for Caregivers and Family Members - Tuesday, July 14
If you're the family member or friend of someone who has been diagnosed with scleroderma, you may have a lot of questions about this complex disease. This webinar will address the support role that you play and help answer your questions. MORE INFO & REGISTRATION

Advances and Future Aims in Managing Pulmonary Arterial Hypertension - Wednesday, July 29
Dr. Dustin Fraidenburg will describe the basics of Pulmonary Arterial Hypertension in scleroderma (SSc-PAH) including how it is diagnosed. He will also discuss current therapies used to treat SSc-PAH and recent advances in the therapeutic approach. His presentation will also highlight current research and future targets in the management of SSc-PAH. MORE INFO & REGISTRATION
 
Yoga for Scleroderma: Empower yourself to relieve symptoms and reduce stress- Tuesday, August 4
Presented by Erin Shanthi Haddock, C-IAYT & Lori Pierce, RYT 200. Yoga is truly made for everybody. Our certified “Yoga for Scleroderma” instructors who will show you that the foundations of yoga really can benefit EVERYONE. MORE INFO & REGISTRATION
 
 

Our Mission

Improving the lives of patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
     
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
     
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a loved one struggling with scleroderma, or just want to learn more about the disease, we have resources, education events and fundraisers you'll love!

Contact Information

Stephanie Somers Gresh, Executive Director
Melissa Kuhr, Marketing & Fundraising Manager

Scleroderma Foundation Greater Chicago Chapter
125 S. Clark, 17th Floor
Chicago, IL 60603
Phone: 312-660-1131
Email: GCchapter@scleroderma.org 
Facebook: facebook.com/gcscleroderma

Board of Directors
Tony Cogan, President
Jennifer Bryson, Vice President
Eliisa Capstick, Secretary

Dan Clarin, Treasurer

Mary Carns
Jules Cogan
Julie Drewniak
Cleetus Friedman
Carol Goldman
Peter Goldman
David Helfand
John Varga, M.D.

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.

 

 

Patient Education

Patient Education & Support

New Upcoming Webinars!

Discussion for Caregivers and Family Members
Tuesday, July 14
4:00-4:45 pm CST

A Galaxy Not Far Away: Recent Advances in Managing Pulmonary Arterial Hypertension
Wednesday, July 29
​4-5 pm CST

Yoga for Scleroderma: Empower yourself to relieve symptoms and reduce stress
Tuesday, August 4
4-5pm CST


Questions about scleroderma? We have answers! We are committed to providing patients with the knowledge they need to live better. For the latest information about upcoming educational webinars, videos and other resources, visit sclerodermaconference.org.

For presentations and videos from past conferences, take a look at our SlideShare and YouTube sites. 

 

 

 

 

 

 

Patient Support

Support groups provide a forum to share thoughts, concerns, information and meet others who understand the experience of living with scleroderma. Find a support group in your area or connect with others on our online support community, Inspire.

Looking to start a new support group in your area? Contact us at 312-660-1131.


 
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