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Scleroderma Foundation
National Patient Education Conference

To protect the health of individuals who have scleroderma, the Scleroderma Foundation canceled its 2020 National Patient Education Conference scheduled to take place July 17-19 in Bellevue, Washington.

This action is deeply disappointing for the entire community; however, it is absolutely necessary. As we all know well, individuals with scleroderma, particularly those who have systemic sclerosis, are immuno-compromised and have a heightened risk for the worst-case symptoms of the coronavirus (COVID-19).

This decision was taken after thorough review of information available through public health agencies, primarily the Centers for Disease Control & Prevention and the State of Washington Public Health Department.

SF University PrimaryIn lieu of the eagerly anticipated in-person educational conference and the unique and essential personal connections it provides; the Scleroderma Foundation is offering weekly educational webinars on Wednesdays at 3 p.m. Eastern (Noon Pacific). Visit the "Virtual University" patient education series page to find the schedule of workshops, which begin July 8, 2020 with "Telemedicine:Strategies for a Successful Visit," presented by JoAnna Harper, Pharm.D., R.Ph., CEO of Pain Partners, LLC.

A full refund of conference fees will be given automatically next week (March 16-20) to all who are currently registered to attend.

Hotel room reservations will not be canceled automatically. If you reserved a room, you must contact the hotel independently to cancel the reservation to avoid financial obligation.

We are pleased to announce that the conference will return to Bellevue, Washington in 2022.

The Foundation continues to be the best resource for information about scleroderma. A wealth of information can be found on scleroderma.org.  Information requests can also be submitted by email, SFinfo@scleroderma.org, or by calling the Hope line, (800) 722-4673.

Video recordings of presentations by scleroderma experts at past Foundation conferences can be found at www.YouTube.com/sclerodermaUS.

The National Conference is a special experience, particularly for first-time attendees, but also for those who return every year. The Scleroderma Foundation staff and Board of Directors values each of you very highly, and we look forward to the next opportunity to share time together.

Thank you for your understanding.

About the National Conference

The Annual National Patient Education Conference offers educational and networking opportunities for people living with scleroderma, their caregivers, family members and friends.

Workshops, panel discussions and other educational sessions are led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Conference is a great way to learn about the disease and become connected with others that are dealing with scleroderma.

With more than 60 workshops, dozens of exhibitors and the chance to meet other patients and caregivers, the weekend's activities offer an excellent opportunity for attendees.

Did you know that the actual per person cost of hosting the conference is more than $700? We would like to thank our corporate sponsors and donors for helping to reduce the cost for participants.

New this year, the Kids Get Scleroderma, Too! conference is a separate registration.  While happening on the same dates in the same venue, Kids Get Scleroderma, Too! (KGS2) is exclusively for youth ages 5 to 17 who have scleroderma, their parents, guardians, and siblings.  Visit the KGS2 conference website to learn more.

Thank You to Our Sponsors

Diamond National Sponsors
Actelion Plain   Boehringer Ingelheim Plain