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See you in Chicago for the 2019 National Patient Education Conference, July 19-21

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Learn about how scleroderma affects the body


Know the Face of Scleroderma 2019

Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


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Buzzworthy Reads>>

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See our 2018 GuideStar Gold Star profile
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Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #822; July 12, 2019

  • See You in Chicago for the 22nd National Patient Education Conference!
  • Cannabis Conundrum: Weighing the Pros and Cons of THC, CBD, and Related Compounds in Scleroderma, National Patient Education Conference, July 19-21, 2019, Chicago
  • How to Be an Effective School Advocate for a Child with Scleroderma, Kids Get Scleroderma, Too! Program at National Patient Education Conference
  • Call to Action on H.R. 3446
  • Self-Advocacy and Care Coordination, Webinar: July 24, 2019; 2 p.m. Eastern
  • Putting it Together: Reasonable Accommodations and the Path to Employment, Webinar: July 24, 2019; 3 p.m. - 4 p.m. Eastern
  • Cooking with Creativity for the Scleroderma Child, Parents of Children with Scleroderma Virtual Support Group, August 7, 7:30 p.m. - 9:00 p.m.
  • Life-Changing Impact
  • Why Do You Step Out to Cure Scleroderma?
  • eLetter Skips a Week, July 19

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