GC Stop Scleroderma 2020 Homepage

2020 Walks Are Going Virtual!

Register, fundraise and join us for a virtual walk this summer to help find a cure for scleroderma! More info on our events page.

Web banner support groups

Have You Joined a Support Group Yet?

You're not alone in struggling with scleroderma. Find a support group near you!


Online Educational Resources Available

Visit our YouTube, WordPress, and SlideShare websites to access our online resources!



Follow us online!

Facebook Icon Small    Wordpress Icon YouTube Icon


E-Newsletter Signup

Please leave this field empty


COVID-19 UPDATE, May 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More



What's New at the Scleroderma Foundation Greater Chicago Chapter

Stepping Out to Cure Scleroderma Walks Are Going Virtual!
To minimize the spread of COVID-19 and protect our scleroderma community we have decided to transition all in-person walks planned for this year to an online experience. We hope you will join us as a “virtual walker” on August 22. Whether walking in the park, down the street or on a treadmill, we can still show our support for scleroderma patients and have fun doing it!

Walk registration now open! Register, donate and fundraise!! More info on our events page.

Our Mission

Improving the lives of patients. Making strides toward a cure.

The mission of the Scleroderma Foundation is focused on three critical goals:

  1. SUPPORT: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
  2. EDUCATION: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
  3. RESEARCH: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma.

Whether you're a scleroderma patient, have a loved one struggling with scleroderma, or just want to learn more about the disease, we have resources, education events and fundraisers you'll love!

Contact Information

Stephanie Somers Gresh, Executive Director
Melissa Kuhr, Marketing & Fundraising Manager

Scleroderma Foundation Greater Chicago Chapter
125 S. Clark, 17th Floor
Chicago, IL 60603
Phone: 312-660-1131
Email: GCchapter@scleroderma.org 
Facebook: facebook.com/gcscleroderma

Board of Directors 
Tony Cogan, President 
Jennifer Bryson, Vice President
Eliisa Capstick, Secretary 

Dan Clarin, Treasurer

Mary Carns
Jules Cogan
Julie Drewniak
Cleetus Friedman 
Carol Goldman 
Peter Goldman
David Helfand
John Varga, M.D. 

Medical Advisory Board
Richard Burt, M.D.
Jane Dematte, M.D.
Ikuo Hirano, M.D.
Amy Paller, M.D.
Stuart Rich, M.D.
Dean Schraufnagel, M.D.
Nadera Sweiss, M.D.
John Varga, M.D.



Patient Education

Patient Education & Support

Questions about scleroderma? We have answers! We are committed to providing patients with the knowledge they need to live better. For the latest information about upcoming educational webinars, videos and other resources, visit sclerodermaconference.org.

For presentations and videos from past conferences, take a look at our SlideShare and YouTube sites. 


Patient Support

Support groups provide a forum to share thoughts, concerns, information and meet others who understand the experience of living with scleroderma. Find a support group in your area or connect with others on our online support community, Inspire.

Looking to start a new support group in your area? Contact us at 312-660-1131.

Diamond National Sponsors
Actelion Plain   Boehringer Ingelheim Plain