Forgot password?
   Please leave this field empty
Home | About Us | Careers | Contact Us | Shop | Connect:
SF University 2020 Home Page Banner Summer Series
Attend class at the new "Virtual University" every Wednesday at 3 p.m. Eastern (Noon Pacfic)

Learn More

COVID-19 MSAB Home page banner
COVID-19 Information & Recommendations from the Medical & Scientific Advisory Board

Read the Statement >>

Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

Click here to get started >>

Learn about how scleroderma affects the body
Know the Face of Scleroderma Home Page Banner
Increase awareness of the disease and the Scleroderma Foundation's mission of support, education, and research.

Tell your story of scleroderma

SF University Primary

Attend the new "Virtual University" Patient Education Summer Series.  Learn More.

REGISTER today for the July 15 webinar (3 p.m. - 4 p.m. Eastern)
Medications: What Works? How Can I Get It?"
with Jessica Farrell, Pharm.D., Albany College of Pharmacy and Health Services.

COVID-19 Information & Recommendations for People with Scleroderma

  • 1/4/20 Información Importante Traducida al Español Sobre COVID-19 y Esclerodermia Juvenil
  • 30/3/20 Español "COVID-2019 ("Coronavirus") Información y Recomendaciones del Comité de Asesoría Médica y Científica de la Fundación de la Esclerodermia

 

2020 National Patient Education Conference & Kids Get Scleroderma, Too! Cancelled

To protect the health of individuals who have scleroderma, the Scleroderma Foundation cancelled its 2020 National Patient Education Conference and Kids Get Scleroderma, Too! conference scheduled to take place July 17-19 in Bellevue, Washington. In lieu of the conference, the Foundation is offering the "Virtual University" patient education series. Learn More

 

Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

Read more >>

Download Our Free Scleroderma Information Packet

Can’t download It? Have us mail you a copy!

Buzzworthy Reads>>

scleroderma body thumbnail vertical.jpg

See our 2018 GuideStar Gold Star profile
GuideStar Gold Star

 

 

 

News

Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #873; July 10, 2020

  • WEBINAR: July 15, 3 - 4 p.m. Eastern Time;
    Scleroderma Medications: What Works? How to Get It.
  • VIDEO: Telemedicine: Strategies for a Successful Visit
  • Whereas and Therefore
  • Keeping Our Promise
  • COVID 19 Information & Recommendations, Reviewed July 1
  • Birthday Giving
  • Clinical Trial Opportunity
    • Safety and Tolerability Study of AVID200, a Novel TGF-beta 1 & 3 Inhibitor, in Patients with Diffuse Cutaneous Systemic Sclerosis
 

E-Newsletter Signup

Get the latest news.

Please leave this field empty

Our Sponsors