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Attend class at the new "Virtual University" every Wednesday at 3 p.m. Eastern (Noon Pacfic)

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COVID-19 Information & Recommendations from the Medical & Scientific Advisory Board

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Learn about how scleroderma affects the body
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Increase awareness of the disease and the Scleroderma Foundation's mission of support, education, and research.

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  • What is Scleroderma?
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Virtual University,
Patient Education Series

  • LEARN about the Scleroderma Foundation's Virtual University, patient education fall series.
  • REGISTER for the October 28, 2020, webinar: Making Decisions When It Matters Most: Conversations About Health Care Proxy, Five Wishes and More!.
  • WATCH the video recording of "Coping with Both a Pandemic and Scleroderma."

COVID-19 Information & Recommendations for People with Scleroderma

Read information reviewed and confirmed July 1, 2020 by the Foundation's Medical & Scientific Advisory Board Leadership Committee

2020 National Patient Education Conference & Kids Get Scleroderma, Too! Cancelled

To protect the health of individuals who have scleroderma, the Scleroderma Foundation cancelled its 2020 National Patient Education Conference and Kids Get Scleroderma, Too! conference scheduled to take place July 17-19 in Bellevue, Washington. In lieu of the conference, the Foundation is offering the "Virtual University" patient education series. Learn More


Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


Download Our Free Scleroderma Information Packet

Can’t download It? Have us mail you a copy!

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See our 2018 GuideStar Gold Star profile
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Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #887; October 16, 2020

  • WEBINAR: Coping with Both a Pandemic and Scleroderma; Scleroderma Virtual University Webinar; October 21, 4 - 5 p.m. Eastern
  • VIDEO: Connecting as a Young Adult with Scleroderma
  • Changes in Mental Health Symptoms During COVID-19 Pandemic
  • Multidisciplinary Approach Strongly Encouraged in Systemic Sclerosis
  • VIRTUAL: PeDRA Annual Conference, October 22-23, 2020
  • Keeping Our Promise While Staying Safe
  • COVID 19 Information & Recommendations, Reviewed July 1
  • myPHteam
  • WEBINAR: Working from Home with Ticket to Work, Wednesday, October 21, 3 - 4:30 p.m. ET
  • Clinical Trial Opportunity
    • The AURORA Study

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