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COVID-19 Information & Recommendations

2021 Virtual National Patient Education Conference

Pre-Doctoral Summer Fellowship Awards

  • Learn more about the new Arnold Postlethwaite, M.D., Pre-Doctoral Summer Fellowship Awards

Virtual University, Patient Education Series

  • LEARN about the Scleroderma Foundation's 2020 Virtual University, patient education series.

Awards

  • See the 2020 awardees and celebrate the dedication and passion of our volunteers and chapters to advancing the Scleroderma Foundation's mission of support, education, and research.

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

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News

Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #906; February 26, 2021

  • Scleroderma is a Rare Disease
  • Rare Disease Day - Advocating for Equity, February 28
  • TV: Beyond Breathless on A&E; Rare Disease Day, Sunday, February 28, 12 p.m. Eastern Time
  • Take Action
  • WEBINAR: Virtual Scleroderma Education Day Texas, Saturday, February 27, 9 a.m. - 5 p.m. Central Time
  • WEBINAR: Scleroderma 101 for Newly Diagnosed, Saturday, February 27, 10 a.m. - 11 a.m. Pacific Time
  • WEBINAR: COVID-19 Vaccine and Autoimmune Conditions: FAQs, Friday, March 5, 2 p.m. - 3 p.m. Eastern Time
  • Fatigue & Raynaud's Top Physical Activity Barriers in Scleroderma
  • WEBINAR: Black Health Matters Winter Summit, Saturday, February 27, 8:10 a.m. - 5:30 p.m. Eastern Time
  • FACEBOOK LIVE: Sunday Sitdown, Sunday, February 28, 1 p.m. Eastern Time
  • WEBINAR: SPIN-CHAT: Home Activity Engagement (Part I), Wednesday, March 3, 7 p.m. Eastern Time
  • COVID 19 Information & Recommendations, Updated February 10
 

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