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Advocate Resources


Webinar 1:  Monday, October 23, 2017  Grassroots Advocacy Overview

  • Vision, Mission and Goals
  • Equipping Advocates through Grassroots Efforts
  • Spreading the Word

Webinar 2:  Monday, November 27, 2017 Preparing and Sharing your Elevator Speech (pre-recorded) 

  • Preparing your Elevator Speech
  • Opportunities/Missed Opportunities
  • Teachable Moments
  • Examples

Webinar 3:  Monday, December 11, 2017 Using Your Voice to Advance Research and Improve Care: Tips for Effective Advocacy and Congressional Outreach presented by Philip Goglas II and Dane Christiansen of Health & Medicine Counsel of Washington (HMCW)

Webinar 4:  Monday, January 22, 2018  Effective Public Speaking

  • Gestures and Body Language
  • Speaking to Diverse Audiences
  • Visual Aids and Props
  • Talking to Elected Officials

Webinar 5: Monday, Feb. 26, 2018 
"Using Your Voice to Meet with an Elected Official"

Sit in on a mock meeting that's just like the ones patient advocates have in the offices of Congress members. This small group of advocates will likely include a patient who had undergone stem cell therapy, a parent or caregiver of a child with scleroderma, a patient who uses a medical device and an advocate who works in a chapter. Excellent opportunity to see what the day is all about.


RECORDED VIDEOS (click link to view video):

Webinar 1:  Grassroots Advocacy Overview (10/23/17) 

Webinar 2:  Preparing and Sharing Your Elevator Speech (11/27/17)

Webinar 3:  Using Your Voice to Advance Research and Improve Care: Tips for Effective Advocacy and Congressional Outreach (12/11/17)

Webinar 4
:  Effective Public Speaking (1/22/18)

Webinar 5:  Using Your Voice to Meet with an Elected Official (2/26/18)

Contact David Murad, Director or Chapter Relations, at with questions or for more information. Additional resources are below to assist you in your advocacy activities:

An Online Guide to the Legislative Process >>

Tips to Talk to Elected Officials >>