Scleroderma Education Days
The Scleroderma Foundation hosts various educational events for individuals who have scleroderma, and their family members and caregivers throughout the year. Many of these events are run by our chapters and support groups. To find an event near you, contact your local chapter or support group.
National Patient Education Conference
The 2021 National Patient Education Conference will take place online in a virtual format. As the COVID-19 pandemic continues, a virtual conference is the best option to provide access to vital scleroderma information and experts, and at the same time protect the health of individuals who have the disease and all others who attend and support the Conference. Details about registration and programming will be published as plans take shape. Please check the conference web page from time to time and submit your email here to stay up to date.
The Scleroderma Foundation's National Patient Education Conference brings together the leading scleroderma experts from around the world to educate and connect with individuals affected by scleroderma. Typically held in a different city in the United States each year, the National Conference is one of the largest gatherings for the scleroderma community. It includes panel discussions, workshops, and other activities to help answer your questions about the disease.
Sample workshops and discussion topics include:
Conference attendees also can meet with vendors in our exhibit hall, attend a welcome networking dessert reception, and meet with high-profile scleroderma physicians, researchers and other health care professionals in a one-on-one environment. The conference is an excellent opportunity to meet new friends and discuss ways to cope with the disease the a supportive, positive environment.
**Please note that these titles are examples only. If you attend the conference, the program book will contain the actual listing of topics and workshops.
The Foundation also offers the Kids Get Scleroderma, Too! (KGS2) conference for youth, ages 5 to 17, who have scleroderma, and for their parents or guardians and siblings. The 2021 KGS2 conference takes place later in the year. Enter your email address here to receive updates when programming information is available.
The Scleroderma Foundation "Virtual University" Patient Education Series is a series of exciting webinars, live meetings, workshops, and Scleroderma-related patient education videos. See the listing of webinar topics and speakers, and watch video recordings of the 2020 summer series or the fall series.
Juvenile Scleroderma Education
African-American Patient Education Day
In 2014, the Scleroderma Foundation hosted its second educational event dedicated solely to the African-American community. The Foundation partnered with scleroderma experts from Johns Hopkins University Medical Center and Georgetown University Medical Center to host this important event.Find out more about the African-American Patient Education Day
Physician and Continuing Education Courses
The following continuing medical education (CME) and continuing education (CE) courses are available for health care professionals about scleroderma and related diseases:
- Patients & Newly Diagnosed
- Healthcare Professionals