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Education Events

Scleroderma Education Days

The Scleroderma Foundation hosts various educational events for individuals who have scleroderma, and their family members and caregivers throughout the year. Many of these events are run by our chapters and support groups. To find an event near you, contact your local chapter or support group.

2021 Virtual Conference image square 72National Patient Education Conference

The 2021 National Patient Education Conference will take place online in a virtual format. As the COVID-19 pandemic continues, a virtual conference is the best option to provide access to vital scleroderma information and experts, and at the same time protect the health of individuals who have the disease and all others who attend and support the Conference. Details about registration and programming will be published as plans take shape. Please check the conference web page from time to time and submit your email here to stay up to date.

The Scleroderma Foundation's National Patient Education Conference brings together the leading scleroderma experts from around the world to educate and connect with individuals affected by scleroderma. Typically held in a different city in the United States each year, the National Conference is one of the largest gatherings for the scleroderma community. It includes panel discussions, workshops, and other activities to help answer your questions about the disease.

Sample workshops and discussion topics include:

  • Advances in Basic and Clinical Research
  • Caregiving: Caring for Yourself While Caring for Another
  • For Male Patients Only
  • Managing GI Involvement in Scleroderma
  • Overlapping Conditions in Systemic Sclerosis
  • Scleroderma 101
  • Surgical Options for Hand Involvement
  • and many others**

Conference attendees also can meet with vendors in our exhibit hall, attend a welcome networking dessert reception, and meet with high-profile scleroderma physicians, researchers and other health care professionals in a one-on-one environment. The conference is an excellent opportunity to meet new friends and discuss ways to cope with the disease the a supportive, positive environment.

Learn more about the National Patient Education Conference

**Please note that these titles are examples only. If you attend the conference, the program book will contain the actual listing of topics and workshops.

KGS2 Kids Get Scleroderma Too logo SFThe Foundation also offers the Kids Get Scleroderma, Too! (KGS2) conference for youth, ages 5 to 17, who have scleroderma, and for their parents or guardians and siblings. The 2021 KGS2 conference takes place later in the year. Enter your email address here to receive updates when programming information is available.

Scleroderma Virtual University

Virtual University

The Scleroderma Foundation "Virtual University" Patient Education Series is a series of exciting webinars, live meetings, workshops, and Scleroderma-related patient education videos. See the listing of webinar topics and speakers, and watch video recordings of the 2020 summer series or the fall series.

Juvenile Scleroderma Education

Learn more about the Foundation's juvenile scleroderma education program

African-American Patient Education Day

In 2014, the Scleroderma Foundation hosted its second educational event dedicated solely to the African-American community. The Foundation partnered with scleroderma experts from Johns Hopkins University Medical Center and Georgetown University Medical Center to host this important event.

Find out more about the African-American Patient Education Day

Physician and Continuing Education Courses

doctor workshop at 2011 conferenceThe following continuing medical education (CME) and continuing education (CE) courses are available for health care professionals about scleroderma and related diseases:

Click here to go to our CME page