2020 Conference Reveal Seattle
Join us in the Seattle, Washington area for the 2020 National Patient Education Conference, July 17-19

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

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Learn about how scleroderma affects the body
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Increase awareness of the disease and the Scleroderma Foundation's mission of support, education, and research.

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Know the Face of Scleroderma 2019

Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

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See our 2018 GuideStar Gold Star profile
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News

Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #831; September 20, 2019

  • Capitol Hill Day...Taking it to the Hill!
  • FDA Approves First Treatment for SSc-ILD
  • Nutrition and the GI Microbiome in Systemic Sclerosis, 2019 National Conference Video
  • Christina & David Fidalgo: National Volunteers of the Year
  • Local Scleroderma Education Programs
  • WEBINAR: Medications and the Side Effects: Finding the Best Way to Help Your Child Cope, October 2, 2019, 7:30 p.m. - 9 p.m. Eastern
  • Health Advocacy Summit
  • September is Pulmonary Fibrosis Awareness Month
  • World Lung Day 2019, "Healthy Lungs for All", September 25
  • WEBINAR: Putting it Together: Healthcare and the Path to Employment, September 25, 3 p.m. - 4:30 p.m. Eastern
  • myPHteam
  • Be Part of the Cure, Join Stepping Out to Cure Scleroderma

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