COVID-19 UPDATE, May 1, 2020: Read the most recent update from the Foundation's Medical & Scientific Advisory Board Leadership Committee regarding COVID-19 information and recommendations for individuals with scleroderma, including links to videos and resources. Read More

Tri-State News regarding Coronavirus, Covid-19

Your health and safety and that of every person affected by scleroderma is of paramount importance to the Scleroderma Foundation Tri-State Chapter. The Tri-State Chapter takes very seriously the threat the coronavirus presents to individuals living with scleroderma.

Therefore, we have moved our support group meetings to virtual or canceled some in the short term. View our calendar above for individual meeting details.

Our Stepping Out to Cure Scleroderma Walks for June have transitioned to virtual walks as well. Consider Stepping Out and raising awareness in your community, your way! Click on Tri-State Events for further information.

If you have any questions regarding our events or how to stay connected, please contact our office

(800) 867-0885

Stay Updated with Tri-State Chapter Events & News

Sign Up for the Scleroderma E-News Today!

Want to Inspire Your Community?

#StepUp4Scleroderma

 For more ways to get involved - Contact csnider@scleroderma.org

2020 Stepping Out to Cure Scleroderma Walk Season is HERE!

About Us

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

• To provide educational and emotional support to people with scleroderma and their families;

• To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;

• To enhance the public’s awareness of this disease.

Contact Information

Board of Directors 

Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne
Mary Contadino 
Carla Gage 
Amy Gietzen 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Monique Hinchcliff, M.D., M.S. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Founder Member
Harry Spiera, M.D.

   

Chapter Sponsorship Opportunities

Thank you for considering a corporate or individual donation to the Tri-State Chapter. For more information, please contact Candice Snider at csnider@scleroderma.org.