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COVID-19 UPDATE (March 20, 2020): To protect against COVID-19, individuals diagnosed with systemic sclerosis (SSc), especially those who are on immunosuppression treatments, or who have lung disease, need to self-isolate at home for the next 15 days. Read More
Tri-State News regarding Coronavirus, Covid-19Your health and safety and that of every person affected by scleroderma is of paramount importance to the Scleroderma Foundation Tri-State Chapter. The Tri-State Chapter takes very seriously the threat the coronavirus presents to individuals living with scleroderma, who are immunocompromised. There is a growing likelihood of an increase in the spread of the virus in the United States, and we wish to provide you with reliable information from qualified sources to guide you in your decision making regarding Tri-State support group meetings, chapter events, and the activities of daily life. As of March 18, 2020, we have cancelled all Tri-state events and meetings until May 1st. We will continue to evaluate the situation to update our events which will take place in the future, at which time we will make adjustments as necessary under the directives of the CDC, state and local health departments. Click here for more information regarding Covid-19
Stay Updated with Tri-State Chapter Events & NewsSign Up for the Scleroderma E-News Today! Want to Inspire Your Community?
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For more ways to get involved - Contact csnider@scleroderma.org
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Register Now!You can utilize Facebook to raise funds through your Walk Page! For more information, please call 800-867-0885 Register via mail - Registration Form
Also don't forget, you can solicit Corporate Sponsors to benefit your walk efforts. For corporate sponsor form or any other information, please send an email. 2020 Stepping Out to Cure Walk season is HERE! Time to Volunteer!
With partnership with Allforgood.org & Disney, all volunteers and team captains who are registered as a walker and volunteer at the walk will be eligible for an entry for 2 Walt Disney Theme Park Passes.Click on the link below to register as a volunteer!Albany | Binghamton | Long Island | Manhattan | New Haven Poughkeepsie | Ridgefield Park | Rochester | Syracuse | Westchester
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About UsTri-State ChapterWelcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut. "Life is a journey, not a destination." Ralph Waldo Emerson Why Are We Here?Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark. Who Are We?We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you. Our MissionThe mission of the Scleroderma Foundation Tri-State Chapter is threefold:
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Contact InformationBruce R. Cowan, Executive Director Staff Candice Snider, Fundraising Manager April Roberts, Office Administrator |
Board of DirectorsOfficers Members Founders Medical Advisory Board Chair Members
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Chapter Sponsorship Opportunities Thank you for considering a corporate or individual donation to the Tri-State Chapter. For more information, please contact Candice Snider at csnider@scleroderma.org. |
