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2020 Conference Reveal Seattle
Join us in the Seattle, Washington area for the 2020 National Patient Education Conference, July 17-19

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Learn about how scleroderma affects the body
Know the Face of Scleroderma 2019 Homepage Banner
Increase awareness of the disease and the Scleroderma Foundation's mission of support, education, and research.

Tell your story of scleroderma


Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


Download Our Free Scleroderma Information Packet

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See our 2018 GuideStar Gold Star profile
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Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #853; February 21, 2020

  • Rare is Strong Every Day, February 29 is Rare Disease Day
  • Rare Disease Week on Capitol Hill
  • Talking Isn't a Cure, But it Sure Helps, Sunday Sitdowns: February 23, 1 p.m. Eastern Time
  • Choosing a Service Provider That's Right for You, WISE Webinar: Wed., Feb. 26, 3-4:30 p.m. ET
  • Apply for a Conference Scholarship! March 18 deadline
  • Proposed '15% rule' outlines common organ complications in scleroderma
  • Be Part of the Cure!
  • More Than Scleroderma
  • Modernizing ClinicalTrials.Gov
  • Celebrate Your Birthday!
  • Clinical Trial Opportunities
    • Safety and Tolerability Study of AVID200, a Novel TGF-beta 1 & 3 Inhibitor, in Patients with Diffuse Cutaneous Systemic Sclerosis

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