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2020 Awareness Items

Awareness Items are great gifts! Rock Your Teal!
(800) 867-0885

Call the Tri-State office to order awareness items for your friends and family. Rock your TEAL and spread awareness of scleroderma!

2020 Inspire - Step Up

It's Time to Step Up for Scleroderma!

Check out our Facebook page for more information how you can make an IMPACT!

 

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Find support that fits your lifestyle

Visit our support group web-page here  If you don’t find a support group to fit your lifestyle, consider starting one yourself!  We will help you all the way!

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SclerodermaVideo.com

Whether you are a patient, caregiver, family member, or medical professional, SclerodermaVideo.com is an invaluable resource! 

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COVID-19 vaccine Q&A from the Foundation's Medical & Scientific Advisory Board. (Updated 8/20/2021)

Tri-State News regarding Coronavirus, Covid-19

Your health and safety and that of every person affected by scleroderma is of paramount importance to the Scleroderma Foundation Tri-State Chapter. The Tri-State Chapter takes very seriously the threat the coronavirus presents to individuals living with scleroderma.

Therefore, we have moved our support group meetings to virtual or canceled some in the short term. View our calendar above for individual meeting details.

Our Stepping Out to Cure Scleroderma Walks for June have transitioned to virtual walks as well. Consider Stepping Out and raising awareness in your community, your way! Click on Tri-State Events for further information.

If you have any questions regarding our events or how to stay connected, please contact our office

(800) 867-0885

Scleroderma Foundation Tri-State Chapter Podcast

 

        Tri-State October Support Groups 

 

Scleroderma E-News

 

Stay Updated with Tri-State Chapter Events & News

Sign Up for the Scleroderma E-News Today!

Want to Inspire Your Community?

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#StepUp4Scleroderma

 

 For more ways to get involved - Contact asorbello@scleroderma.org

 

 

 
 

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We have converted these educational events to video presentations for the health and safety of our scleroderma
patient community. The presentations are on SclerodermaVideo.com for viewing in the comfort of your own home.

UPCOMING

Location

Speakers & Bio

New York, NY

HSS

November 20, 2021
Kimberly Showalter, MD
  • Dr. Kimberly Showalter is an Assistant Attending Rheumatologist at HSS. She specializes in the care of patients with various rheumatic conditions including systemic sclerosis (scleroderma), systemic lupus erythematosus, rheumatoid arthritis, and others. Currently, she conducts clinical and translational research in systemic sclerosis, with a focus on testing novel therapeutics, improving trial outcome measurement tools, and determining predictive patient factors that may assist with personalized disease management. She has received funding and recognition for her research including the Rheumatology Research Foundation Resident Research Preceptorship Award and the Scleroderma Clinical Trials Consortium Young Investigator Award, and the Scleroderma Foundation New Investigator Grant
Kerri Aronson, MD
  • Kerri Aronson is a pulmonologist at Cornell with an interest in interstitial lung disease, including scleroderma associated lung disease. She’s a clinician and investigator. One of her research interests is better understanding what outcomes are meaningful to patients which indeed often gets lost in our reliance on traditional quantitative pulmonary outcome measures. She has proposed a talk entitled “Measuring What Matters; An Overview of Patient Centered Outcomes in Scleroderma- Related Interstitial Lung Disease”.

 2021 Albany Patient Education Forum now available on SclerodermaVideo.com

 

2020 Virtual Walks

Thank You for Stepping Out!

On June 26th, we hosted the Stepping Out to Cure Scleroderma Virtual Event.  Participants, donors and corporate sponsors helped raise over $113,000 and counting.  We would like to thank everyone who contributed to help us keep our promise to the scleroderma community.

If you would like to donate to this year's event, it is not too late, go to SteppingOutWalk.org.

Find out how to stay involved by emailing us now!

 

 

About Us

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Who Are We?

The Scleroderma Foundation Tri-State Chapter is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  All donations are qualified charitable donations to the fullest extent of the law. Our federal tax identification number is 13-3128296. All donations are gratefully accepted.

Our Vision

Striving for a cure!

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

 
 


Contact Information

Candice Snider, Executive Director
csnider@scleroderma.org


Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free: 800-867-0885
Fax: 607-723-2039

 

Staff 

Alexis Sorbello, Fundraising Manager
asorbello@scleroderma.org

April Roberts, Support Services Administrator
aroberts@scleroderma.org

 

Board of Directors 

Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Mary Contadino 
Carla Gage 
Amy Gietzen 
Estelle Randolph
Jonathan Schorr
Frederick Shaw  

Founders 
Mark and Helene Flapan

Medical Advisory Board Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Monique Hinchcliff, M.D., M.S. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Founder Member
Harry Spiera, M.D.

 

 
 
National Sponsors
 
National Sponsors
 
Platinum Corporate Sponsor

       Janssen
 

Gold Corporate Sponsors

Boehringer Ingelheim Plain
 

Horizon Therapeutics logo
 

Chapter Sponsorship Opportunities

Thank you for considering a corporate or individual donation to the Tri-State Chapter. For more information, please contact Alexis Sorbello at asorbello@scleroderma.org.