COVID-19: Imporant information regarding mask wearing for people with scleroderma and the CDC guidelines, from the Foundation's Medical & Scientific Advisory Board. (Updated May 17, 2021)

Tri-State News regarding Coronavirus, Covid-19

Your health and safety and that of every person affected by scleroderma is of paramount importance to the Scleroderma Foundation Tri-State Chapter. The Tri-State Chapter takes very seriously the threat the coronavirus presents to individuals living with scleroderma.

Therefore, we have moved our support group meetings to virtual or canceled some in the short term. View our calendar above for individual meeting details.

Our Stepping Out to Cure Scleroderma Walks for June have transitioned to virtual walks as well. Consider Stepping Out and raising awareness in your community, your way! Click on Tri-State Events for further information.

If you have any questions regarding our events or how to stay connected, please contact our office

(800) 867-0885

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#StepUp4Scleroderma

 For more ways to get involved - Contact csnider@scleroderma.org

We have converted these educational events to video presentations for the health and safety of our scleroderma
patient community. The presentations are on SclerodermaVideo.com for viewing in the comfort of your own home.

About Us

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Who Are We?

The Scleroderma Foundation Tri-State Chapter is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  All donations are qualified charitable donations to the fullest extent of the law. Our federal tax identification number is 13-3128296. All donations are gratefully accepted.

Our Vision

Striving for a cure!

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

• To provide educational and emotional support to people with scleroderma and their families;

• To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;

• To enhance the public’s awareness of this disease.

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

Contact Information

Board of Directors 

Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne
Mary Contadino 
Carla Gage 
Amy Gietzen 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Monique Hinchcliff, M.D., M.S. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Founder Member
Harry Spiera, M.D.

Gold Corporate Sponsor

Silver Corporate Sponsor

Chapter Sponsorship Opportunities

Thank you for considering a corporate or individual donation to the Tri-State Chapter. For more information, please contact Candice Snider at csnider@scleroderma.org.