2019 Awareness Items 8-20-19

Awareness Items are great gifts! Rock Your Teal!
(800) 867-0885

Call the Tri-State office to order awareness items for your friends and family. Start the new year out spreading awareness of scleroderma!

Step Up Campaign

It's Time to Step Up for Scleroderma!

Check out our Facebook page for more information how you can make an IMPACT!

 

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Find support that fits your lifestyle

Visit our support group web-page here  If you don’t find a support group to fit your lifestyle, consider starting one yourself!  We will help you all the way!

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SclerodermaVideo.com

Whether you are a patient, caregiver, family member, or medical professional, SclerodermaVideo.com is an invaluable resource! 

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Events

Find out how to stay involved by emailing us now.

2020 Walk Incentive

Step up for Scleroderma

Click on the walk site below that you would like to volunteer at to register as a volunteer.  Walk details are tentative!

Albany | Binghamton | Hartford | Long Island | Manhattan 

Poughkeepsie | Ridgefield Park | Rochester | Syracuse 

 Westchester

 Find out how to stay involved by emailing us now. 


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Location

Speakers

Albany, NY

Rochester, NY

Video to come:

  • "Emotional Challenges of Scleroderma"
    Sylvia Johnson, LCSW

New York, NY

HSS

Videos to come:

  • "Endocannabinoid System Manipulation in the Treatment of Scleroderma: A New Therapeutic Strategy?"
    Robert Spiera, MD
  • "Patient Support: A Therapy that Improves Outcomes in Chronic Disease"
    Elizabeth Soto-Cardona, MPH

 

 

 

About Us

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 





Contact Information

Bruce R. Cowan, Executive Director
bcowan@scleroderma.org


Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free: 800-867-0885
Fax: 607-723-2039

Staff 

Candice Snider, Fundraising Manager
csnider@scleroderma.org

Paige Benware, Office Administrator
pbenware@scleroderma.org

Board of Directors 

Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Amy Gietzen 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 

Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

Honorary Member
Harry Spiera, M.D.

 

 

National Sponsors

 

Actelion 2019 sponsor      Boehringer Ingelheim 2019 sponsor

Chapter Sponsorship Opportunities

Thank you for considering a corporate or individual donation to the Tri-State Chapter. For more information, please contact Candice Snider at csnider@scleroderma.org.